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Re: Help - Husband just being diagnosed with advanced cancer!

Posted: Tue Oct 09, 2012 8:05 am
by susikus
Good that the DVT has been diagnosed and that anticoagulants are going in. So glad that you can spend 12 hours a day with Bill - it must feel very strange (and horrid) coming home without him. Hugs Jools, you are doing brilliantly, love Sue xxx

Re: Help - Husband just being diagnosed with advanced cancer!

Posted: Sat Oct 13, 2012 9:47 am
by Jool2504
Hi everyone,

We have had a busy week both whilst Bill was in hospital till Tuesday and since we got back home. Not impressed with the hospital, they told him at 8am he could go home, at 3pm he is was such a state they let him leave, his meds had to be collected after 7pm! With all this going on they didn't give him his lunchtime pills so his bowels are in a mess again.

Wednesday we got a call from the Dr saying he doesn't want Bill on warfarine as it has an effect on his liver, and with Bill chemo and PC in his liver we'd never get the levels right, so he just on the injections, which I am giving him each evening.

Its nacrosis in his toes, his foot is now dressed and bandaged up to just below his knee. He can get around on it. We are having a lighter wheelchair as I am struggling with the one my father has loaned us.

Been trying to get his bowels back to something he can cope with so now back on the movacol, lactulose and senna.

District nurse coming in twice a week to redress and access his toes. Oncology again on Monday hope they put him back on Chemo, Consultant doesn't know about the warfarine yet!!

Bath lift has arrived, its cool (I'm a gadget fan) not used it yet.

Family dinner tomorrow, at Bills favourite restaurant TGI Fridays. Trying to keep him as rested as possible prior to lunch.

Hope everyone else is ok, I'm not very good with names, but thanks for your support.

Jools & Bill

Re: Help - Husband just being diagnosed with advanced cancer!

Posted: Sat Oct 13, 2012 1:39 pm
by susikus
So glad Bill is home again. I am impressed at the plan to go to TGIF. We love going there too but Pete could no more eat a meal than fly to the moon at the moment! One day maybe...

Am guessing you're giving clexane injections - so are we!Good luck with oncology on Monday, hope they can restart chemo soon for Bill. Ours is currently stopped through jaundice - if it's not one thing, it's another...

love to you both
Sue, xxx

Re: Help - Husband just being diagnosed with advanced cancer!

Posted: Sat Oct 13, 2012 3:22 pm
by yorkypaul
Hey Jools. Hope you have a great family time at TGIF!! Keep pushing if things at the hospital are not what you are wanting. I find that firm, polite pressure works well. Ask lots of questions too. Write things down when you have a consultation.
Got to rush. Drove back home last night to catch up on a few hours work today and am now hitting the road back up there till Sunday night or Monday morning. Struggle to know what day it is sometimes! I bet you are the same!
Thinking of both you and Bill.
Hugs
Paul

Re: Help - Husband just being diagnosed with advanced cancer!

Posted: Sun Oct 14, 2012 2:13 pm
by DRAD3
Hi Jools
So much going on for you and Bill but it sounds like you are an amazing circus ring master and getting it running extremely smoothly (hospital notwithstanding - what's new?!) You sound like an amazing lady. I do hope you are enjoying your TGI-Sunday and that you have some fun playing with the new bath lift! Love to you and Bill.
Keep us posted and keep well.
Deb
x

Re: Help - Husband just being diagnosed with advanced cancer!

Posted: Tue Oct 16, 2012 8:56 pm
by Jool2504
Hi,

Sue sorry to hear about your jaundice trouble, hope it clears soon and chemo can continue.
Oncologist was ok about injections and no warfarine. Sorry just had to pop off hes in a state got cramp in his leg and fingers. Sorted him out and now I'm back.
Lost my train of thought.
Chemo continues tomorrow, he has put on a bit of weight. Feeling quite sick, will see if I can up his anti sickness meds.
The family lunch went very well, lovely to see everyone all together, Bill ate a minute amount.
Had to take his foot dressings off yesterday as his foot and ankle were really swollen, cleaned his toes up and left to breathe for a while. Strapped his back up for bed, District Nurse came today, prior to her visit I got Bill in the bath, he stayed in there for an hour! She agreed with me he shouldn't be left for 4 days inbetween checks so they'll be back again on Thursday and Saturday. Both feet are really swollen, any suggestions on what could be causing it and how to try and aleviate it?
On a lighter note I finally finished removing the bedding plants in front and back gardens and replaced with winter plants, did it over a few days but its one more thing off my mind as Bill loves his garden, thank god its not too big.
Hope everyone has a good day tomorrow.
J

Re: Help - Husband just being diagnosed with advanced cancer!

Posted: Wed Oct 17, 2012 11:22 pm
by yorkypaul
Hi Jools. Wish I had the knowledge to offer advice on the swelling. I can ALWAYS offer my ear to bend about anything you care to talk about though! I'm glad you managed to sort the garden. You should see mine! Nettles to shoulder height. I used to mow it all with a ride-on mower once! How life changes.
Just thought I'd let you know that I am reading your posts and, when I can, will let you know that I am listening to what you say. You are both in my thoughts and prayers.
Hugs,
Paul

Re: Help - Husband just being diagnosed with advanced cancer!

Posted: Thu Oct 18, 2012 8:20 am
by susikus
Jools, can you talk to the nurses about what is causing the swelling in Bills legs - there are different things that could be contributing but it would be wrong of any of us to suggest solutions without seeing the whole picture - and then depending on what is thought to be the cause comes the possible solutions. Sounds like they are coming today so you could discuss it with them. Good to hear Bill has put some weight on - wow! - I wish Pete would. And well done on the gardening - our method of gardening is 'slash and burn' (big woodland garden, nothing needs to be kept tidy, suits us perfectly!). Here's to a good day for us all...
love
Sue
xxx