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Sueba
Posts: 94
Joined: Sat Oct 20, 2012 4:08 am

Re: No bed available at hospital for gastric bypass!!!

Postby Sueba » Tue Nov 20, 2012 6:50 pm

Paul
So glad to hear your wife is coming home and you can enjoy some quality time together!
Hugs
Sue b
Xx

Lulu
Posts: 30
Joined: Fri Oct 19, 2012 6:05 pm

Re: No bed available at hospital for gastric bypass!!!

Postby Lulu » Tue Nov 20, 2012 7:30 pm

Paul, over the moon to hear your wife is able to come home and fantastic news that the sickness seems to be under control at last. Long may that continue. Remember how well you are doing holding it all together, a lot of men could not handle this the way you are doing, you are an inspiration. I'm very proud of you my cyber friend - well done, and always know we are here for you whenever you need us x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Thu Nov 22, 2012 4:40 pm

Thanks everyone for your good wishes. 2nd day at home now. Pain and sickness still under control but she is so very, very weak. Needs help with getting up and down, out of bath etc etc. Mood is up and down. Feels a bit "odd" today like when blood pressure was too low at one point in hospital. Sleeping on sofa a lot. Very frail. At least the pain and sickness have gone for now at least.
Thinking of you all,
Paul x

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: No bed available at hospital for gastric bypass!!!

Postby DRAD3 » Thu Nov 22, 2012 7:41 pm

Thinking of you both, Paul and so happy to hear pain and sickness under control at the moment. Hope you are enjoying your precious days together and being in one place, rather than dashing about being in two places at once. Take care of yourself as well as your beloved Andrea.
Deb
xxx

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: No bed available at hospital for gastric bypass!!!

Postby laura » Thu Nov 22, 2012 11:25 pm

hi paul, just to let you know you are both in my thoughts and hopes. i so admire you in the way you are coping, [ well, outwardly anyway] my love to andrea and you, love lauraxxx

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Mon Nov 26, 2012 10:50 pm

A bumpy ride this week. On Friday, Andrea was sick in the morning - first time in 6 days. I should have smelt a rat. In the afternoon she was in real pain (scale of 1 to ten? I asked. 7 she replied.) DN's asked GP to write up meds for the weekend - stronger doses of morphione etc. Request was left on doctors computer keypad so she couldn't miss it. She ignored it! DN had to call at surgery later in the afternoon and INSIST that the GP dealt with the meds immediately. It was done. The prescription was dropped at the pharmacy by the DN's on the way to us. I was told to collect in 30 mins. ASndrea was given morphine (orally) to help the pain. Nurses went to next client and were coming back in 30 minutes. I was to nip to the pharmacy. I didn't. I wouldn't leave her as the pain was still intense. DN's arrived back 40 mins later and I was just about to give more morphine (as instructed). DN's did it and waited with her while I went to pharmacy. GP had messed up the prescription!! Pharmacist realised the importance of the meds and got me to ring DN's who told him what the meds (morphine) read on the sheet. He did the meds according to the sheet. Sorted. Incompetent, uncaring GP!
Not a great weekend. Very frequent bowel movements. Eating a bit though. I came home last night - daughter in law in place. Bad night. Little sleep, still needing the loo to poo very often. Rang GP to sort the liquid steroids. Hit a barrier. GP prescribes tablets!! Ask to speak to GP or practice manager - refused by receptionist! Calling GP out for home visit in the morning. Out of hours tonight if required.
She is so tired of this and feels that they do not want to help her. II want her to get the Macmillan nurse involved tomorrow (she was off today). I am at a loss to understand how they can treat anyone like this!

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: No bed available at hospital for gastric bypass!!!

Postby laura » Tue Nov 27, 2012 12:22 am

hi paul, so upsetting for you and andrea, and sorry that things are a bit difficult at the moment, could you, perhaps, make an app for you to see the doctor yourself and have a frank talk with him/her? and explain how frustrating it is for you both, particularly with receptionist REFUSING ? to do something for you, does she really have that sortof power???

perhaps macmillan nurses can be your sole contact re meds etc?

thinking of you both, and paul it is not possible to judge in advance what is going to happen, so dont beat yourself up my love, carry on what your doing so well, caring for and loving your dear wife. love and strength coming your way, laura xxxx

Sammy-Lou
Posts: 56
Joined: Wed Sep 12, 2012 3:02 pm

Re: No bed available at hospital for gastric bypass!!!

Postby Sammy-Lou » Thu Nov 29, 2012 11:12 am

Oh Paul, I have popped in on yours and Andrea's story from time to time and I'm so sorry to hear of your latest struggle, so difficult for you to go through, it seems ridiculous to have to fight to make sure someone isn't in pain doesn't it! You are coping amazingly and I am pleased you are able to be at home together, let's hope you get somewhere with Macmillian so all these things can be managed so you have as long as possible at home together.
I don't have any advice for you but am sending love and best wishes to you both, will be thinking of you.
Sam xx

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Thu Nov 29, 2012 6:19 pm

I am lost for words. The GP surgery is unbelieveable. A stool sample was requested following a GP visit (not the regular GP, she seems to do everything she can now to avoid any contact). It was suggested that there might be an infection causing the frequent bowel movements. A sample was taken to the surgery, correctly labelled as required. Today we are told by the surgery that they have no record of ever having received it!!! They have checked with the hospital labs (just in case) and they, too have no record of it! The GP will also not prescribe Creon without the stool sample.The surgery is implying that we have not taken the sample in to them in the first place!! My daughter in law had to make a special trip to the surgery to take it in! Of course they have received it - they have simply lost it.
In the midst of all this suffering and despair, we don't need this kind of treatment. A complaint has been logged with PALS. There are other similar complaints that can be read on the PALS site about this GP practice.

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Sat Dec 01, 2012 12:32 am

Today they have found the sample at the surgery!! It will now be next week when we get the results. Palliative care consultant awaiting results to determine if we will go ahead with Creon. Yet another delay. At least there is some movement now though.
Can't wait to be up there again tomorrow. Feel so let down by the GP. Thank heavens for the DN's and Macmillan nurses. So sorry to be doom and gloom on the site when so many of us are hoping for a beacon of light.
My hopes and prayers are with you all.
Hugs,
Paul x

Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

Re: No bed available at hospital for gastric bypass!!!

Postby Sones » Sat Dec 01, 2012 7:23 pm

Hi Paul I have been following your posts and my heart goes out to you and Andrea. Like yourselves I have not had good experiences from GP's, it took them more than two years and a complaint letter before they agreed for me to have a scan. However, I'm sure there are lots of people out there who have excellent GP's, were just unfortunate that's it's not us.
You have been so strong and Andrea seems to be going through so much, why can't they give her Creon?
Do take care of yourself Paul, you must be exhausted with travelling and worrying about Andrea.
Best wishes to you both.
Sue.x

PCUK Nurse Jeni
Posts: 1106
Joined: Mon Jun 14, 2010 1:30 pm

Re: No bed available at hospital for gastric bypass!!!

Postby PCUK Nurse Jeni » Mon Dec 03, 2012 11:06 am

Hi Paul,

Sorry to hear about this confusion you and Andrea are going through.

I am going to email you directly regarding creon, etc...

Kind regards,

Jeni.

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Tue Dec 04, 2012 4:24 pm

Thanks Jeni. That would be great.GP doesn't even seem to know what Creon is!

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Fri Dec 07, 2012 8:22 am

After getting some really useful information via Jeni on the PCUK support team, I was able to press the GP for Creon for Andrea. Hopefully we should collect it today from the pharmacy. The GP appeared to have no knowledge about the need for the use of enzymes and, even after reading (hopefully) the link I was sent, was reluctant to prescribe the Creon, saying she didn't see the benefit! I wonder if she actually read the link.

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: No bed available at hospital for gastric bypass!!!

Postby susikus » Fri Dec 07, 2012 2:27 pm

Until Pete was ill and I read this forum I had never heard of creon. I am not surprised that GPs don't know about it. They should listen and learn though...
Hugs Paul.
love
Sue
xxx