A forum for advanced pancreatic cancer issues

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Lulu
Posts: 30
Joined: Fri Oct 19, 2012 6:05 pm

Re: No bed available at hospital for gastric bypass!!!

Postby Lulu » Sat Dec 22, 2012 7:10 pm

Oh Paul, I know how hard this is. Hug Andrea close to you. Thinking of you both, Lulu xx

PCUK Nurse Jeni
Posts: 1107
Joined: Mon Jun 14, 2010 1:30 pm

Re: No bed available at hospital for gastric bypass!!!

Postby PCUK Nurse Jeni » Mon Dec 24, 2012 10:44 am

Hi Paul,

So sorry to hear that Andrea is so unwell now. Please be assured you are in our thoughts.

It sounds like you are right in saying she has had enough. What a painful thing for you to watch. I hope there is plenty of support around you.
We will be about after today on 27th and 28th December, so do get in touch should you need to.

Take care,

Jeni.

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: No bed available at hospital for gastric bypass!!!

Postby DRAD3 » Mon Dec 24, 2012 6:26 pm

My thoughts are with you and Andrea, Paul. Sending you love and strength and hoping that Andrea is at peace and pain free and that you have some more loving times to share still. You have both been amazing and your love for each other will help you both through what is to come. Will continue to think of you. Deb xx

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Thu Dec 27, 2012 1:26 pm

Hospital bed has been ordered for downstairs now. This morning the DN got the Dr to come as Andrea has substantial abdominal swelling. Spironolactone prescribed as it is obviously fluid build up. My lovely Andrea still managed to text me this morning to ask how I am!! I am going back up on Saturday afternoon. My 19 year old daughter (who loves Andrea to bits) has taken the weekend off work to come with me, but now seems to have got a bug - not sure if it's the winter vomit thing. So, I'll be going on my own. I won't go if there is a chance of me carrying the bug to Andrea though.
So, we carry on down this awful road that leads only to one destination. My heart is in pieces. Thinking of all my forum friends, all at different points along this same road. Stay as strong as you are able. Big hugs,
Paul

Catherine
Posts: 88
Joined: Sat Nov 24, 2012 11:31 pm

Re: No bed available at hospital for gastric bypass!!!

Postby Catherine » Sat Dec 29, 2012 1:31 am

Oh Paul, I have been reading yours and Andrea's story. My heart goes out to you and you have both been in my thoughts. I really hope you haven't got the dreaded bug and you get to spend the weekend with Andrea.
Catherine x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Tue Jan 01, 2013 7:46 pm

I did get my weekend with Andrea. She is so very tired. The anti sickness meds have had to be increased and mixed in an attempt to stop the constant nausea. The bigger patches seem to be in control of the pain.We also have water tablets now to try to combat the abdominal swelling. I slept on the sofa as I did not want to be upstairs away from her. We were up hourly through the night. I am so glad I was able to be with her. Her son and daughter in law have now moved in to care for her. They are lovely.She has slept most of the day and so I have not had the chance to talk to her. Tonight she has eaten a little but has gone straight back to sleep. I am going back up on Friday night and will be staying until Monday evening. She is so very weak now.
I hope that Christmas passed without too much anguish for you all. I wish a peaceful, hopeful 2013 to you all. You are all in my thoughts.
Hugs,
Paul

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: No bed available at hospital for gastric bypass!!!

Postby laura » Tue Jan 01, 2013 8:00 pm

hi paul, have been looking out for a post from you, pleased that you were able to spend special time with andrea, also that she has family with her.
thinking of you both and wishing you much strength paul,
hug and a kiss , lauraxx

Morwenna
Posts: 50
Joined: Mon Dec 03, 2012 6:43 pm

Re: No bed available at hospital for gastric bypass!!!

Postby Morwenna » Tue Jan 01, 2013 9:15 pm

Hi Paul
I have been following your posts and what a rollercoaster you have been on. Isn't it hard hearing everyone talking about the year ahead and how great it's going to be...when for us its just full of uncertainty!! I don't want to think about about a whole year, a day at a time is quite enough. I hope Andrea isn't in too much pain, you are a wonderful husband to her, keep strong, thinking of you both
Morwenna x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Fri Jan 04, 2013 5:50 am

Thank you so much for your kind wishes. I am up with Andrea now. I came up a day earlier as she is deteriorating rapidly. She is asleep most of the time. For the brief periods she is awake, she is not always coherent - sometimes more than others. Tummy quite large with fluid and some swelling in feet and one leg. Not eating at all and only small amounts of water with a straw. Only woke once - at 5 a.m. Helped her to sofa for a 15 min sit, then back into bed. Have to support/lift for everything. Her poor son was up with her most o weds night, so at least he can get a little sleep now. My poor darling is but a shadow now. She said on Tues that she is not fighting any more. At least she seems pain free. She has been sick a couple of times - very tiny amounts very dark green. She is just treading the path now.
Thank you all for your support. My thoughts are with you all as we deal with this awful, cruel disease. Hugs,
Paul x

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: No bed available at hospital for gastric bypass!!!

Postby DRAD3 » Fri Jan 04, 2013 7:41 pm

So sorry Paul. We are alongside you on that path and wishing Andrea peace and comfort. I know she will feel much loved by you and by her family and that is a blessing I am sure she appreciates and it will serve to help her on her journey. We are here for you, as always.
Deb
x

louiepc
Posts: 238
Joined: Wed Aug 10, 2011 10:38 pm

Re: No bed available at hospital for gastric bypass!!!

Postby louiepc » Fri Jan 04, 2013 10:06 pm

Paul

I am so very sorry to hear how poorly Andrea is, it is so difficult seeing someone you love in such a desparate position. I remember reading to mum and chatting to her as much as could, had been told that even though she may be asleep she could still hear me.

Much love to you on this terrible journey.

louie xx

Lulu
Posts: 30
Joined: Fri Oct 19, 2012 6:05 pm

Re: No bed available at hospital for gastric bypass!!!

Postby Lulu » Fri Jan 04, 2013 10:41 pm

Paul, there is nothing I can say or do to take the suffering away, I just wish I could - and I do know how helpless and how lost you will be feeling right now. Please know I am thinking of you all, Hugs, Lulu x

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: No bed available at hospital for gastric bypass!!!

Postby laura » Fri Jan 04, 2013 11:01 pm

paul, i am so sorry to read you are at a sad point in both your lives, my thoughts and love are with you both, sending you much strength and hugs, love laura xxx

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Sun Jan 06, 2013 10:50 pm

4th day without food. Minimal fluid intake too. Not in pain or nauseous at the moment. Will see how tonight goes.she tells me it is time to leave this place. Often incoherent. Got lorazepam if she gets agitated. I am here with her son and his wife. They are great. Hope she has a peaceful night.
Thinking of you all.
Hugs,
Paul

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: No bed available at hospital for gastric bypass!!!

Postby susikus » Sun Jan 06, 2013 11:49 pm

Oh Paul, I am so so sorry, it is so hard just to keep going. You and Andrea are constantly in my thoughts. I have had a bad day today, probably my worst since Pete died and I have cried a lot. Knowing you are facing the same journey makes it seem all the worse. I send you love and wish you strength.