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DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: No bed available at hospital for gastric bypass!!!

Postby DRAD3 » Thu Sep 27, 2012 7:17 pm

Hi Paul
Hadn't realised you were self employed - makes it kind of impossible - I feel for you and wish it could be easier. So glad all the chasing is working. My husband was also on MST at 12 hour intervals with liquid morphine for breakthrough pain (although he seldom needed this). The pain relief seems to vary from person to person and I'm not sure whether this depends on the care provider or the individual symptoms and needs of the patient, bearing in mind how different they can be (my husband had no sickness at all). Thinking of you and your lady and sending you both strength.
Deb
x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Fri Sep 28, 2012 8:50 am

So glad i was given advice to chase things up. The oncology department was contacted yesterday and knew nothing about her!! Many calls to people within the system (who were just passing the buck) and she was finally offered a place for mid November!!!!! After being told politely and firmly that this was not acceptable, a date was given for 11th October (2 hours after we get married!). If we hadn't pushed as you were telling me, who knows what would have happened. Nothing at all probably! Life saving advice. Many thanks. Will be on later. Got to rush ....work.
Huggs to you all and hoping the chemo goes well.

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: No bed available at hospital for gastric bypass!!!

Postby susikus » Fri Sep 28, 2012 12:48 pm

Thank goodness you asked Paul! And well done for perseverance, it isn't easy is it? And a wedding day appointment - well what a wonderful wedding present! How is your fiancee feeling in herself now? Do you have much to plan or do for the wedding?

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Mon Oct 01, 2012 10:43 pm

Hi folks. Had a pleasant saturday night/Sunday/half of Monday. Still sickness but slept well last night. Since I came home, she is being very sick again. It has changed though. It's not bile like after the op. It's vomit - mainly liquid. It was wonderful to be with her but, once again, I feel useless down here. At least I know her good friend is staying with her after having her sister and brother in law there for last week. It's like changing shifts!
Wedding plans are very simple. The hospital for the oncology appointment is just across the road from the registry office! However, I think we will have time to go home for a cuppa before we are due there after the marriage ceremony. She is just worried that she might be feeling too weak on the day. I wish she could keep down the food and build some strength back up. The antemetics don't seem to work all the time. There seems to be no pattern. Just when we thought it was volume of food/drink that was the issue, we now are not so sure. Hopefully we will have more information during the week. Hopefully GP will do a home visit tomorrow.
Thinking of you all.
Huggs
Paul

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: No bed available at hospital for gastric bypass!!!

Postby susikus » Tue Oct 02, 2012 7:35 am

I hope she gets good help with the nausea and vomiting. It's the pits - makes you feel so lousy and there is so little anyone looking on can do to help. Is she on regular anti-emetics Paul? We have found that the most helpful thing - prevent rather than cure - so 4 times a day Pete takes 2 metochlopramide (maxalon) which is a good anti-emetic and helps the stomach to empty (the right way!), usually half-an-hour before meals and a bit before bedtime. We need extra for chemo time. Hope the GP is helpful but also talk to your MacMillan nurse - they are v v good at symptom control. Also is her pain well controlled because pain can make nausea worse.

Just nine days till your wedding... I hope you have a lovely day, we will all be thinking of you, and in our heads walking with you.

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: No bed available at hospital for gastric bypass!!!

Postby DRAD3 » Tue Oct 02, 2012 8:33 pm

Hi Paul
Good to hear you had a nice weekend and your lady is being well care for by her team of loved ones - sounds like a well oiled machine! I do hope the GP can get her meds sorted so she can gain some strength and keep her food down. As Sue said, Macmillan nurse may be more helpful. Thinking of you as always.
Deb
x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Tue Oct 02, 2012 10:57 pm

GP called out today for home visit (I'm still down here). It seems there has been a breakdown in communication between the hospital and the GP surgery - hence hte neglect over the past week. At least we contacted Macmillan directly last week. The GP has changed the antiemetic meds, has sorted daily district nurse visits (syringe driver in from tomorrow)and is ringing the surgeon for further advice. I can't believe that another week has been wasted with unnecessary suffering caused. Anyway, regardless of the cause of the delay, I feel happier that SOMETHING is being done at last. I hope she will be strong enough for the 11th, but who knows? I couldn't even phone her tonight as she was too tired to speak to me. Hopefully she will improve with the new meds and, anyway, I will be there in the flesh on Saturday evening!
I read all of your posts and feel so much for what you are going through. I wish I had the knowledge and experience to be able to give you all some worthwhile advice. All I would say is don't rely on the system. It doesn't always work the way you think or hope or assume it will. Check every stage. Chase everything up. At least then you have given it your best shot for your loved one. Being there for them goes without saying. So I didn't say it!
Sending you all my prayers and hopes,

Hugs, Paul xx

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: No bed available at hospital for gastric bypass!!!

Postby susikus » Wed Oct 03, 2012 8:14 am

Keep going Paul, you're doing grand and your lady loves you and knows you love her. Good to hear the GP is on the ball now. I so hope that symptoms improve over the coming days so that you may both enjoy your wedding. Lots of love to you both, Sue.

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: No bed available at hospital for gastric bypass!!!

Postby DRAD3 » Wed Oct 03, 2012 8:15 pm

Hi Paul
It shouldn't be this difficult should it? As if it isn't hard enough just dealing with PC, you have to chase, check and then check and chase again. I'm feeling pretty angry today for everyone and so powerless. You are doing amazingly well, Paul and so sorry to hear your lady was not up to a chat - that must be so difficult for you both - roll on the weekend again. I hope things improve and you get to enjoy some quality time together. Take care.
Deb
x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Thu Oct 04, 2012 12:59 am

Thanks for your thoughtful replies. It means so much to have this contact with people who really understand this stuff. The doc only gave her ONE tablet of the new atiemetic on the basis that the District nurse would give more when they came the next day (today). Of course, they did not have the medication!! This meant that her friend (who is staying with her) had to go to theGP surgery and DEMAND a prescription which she then had dispensed at the local chemists. She then drove back to the house and gave it to the district nurse who then administered the treatment!! What the hell is wrong with these "professionals"? Did the GP not realise that the nurses would NOT have the medication with them?
My love is now so weak and tired that I have, yet again, not been able to talk to her. She now WANTS to go back to hospital so they can give her the things she needs. I think the GP will have her admitted to the local community hospital so she can be on a saline drip and, hopefully, get rehydrated. Why do we have to push? Why does the system not work effectively?
Unless there is a BIG change in her strength and well being, I can not see our marriage taking place a week tomorrow. HOWEVER, I am going to stay positive and believe that she will be given the appropriate care and will bounce back. After that we can see the oncologist (which, if I am honest, should have happened weeks ago - even before the gastric bypass op).
Sory to rant folks. Just telling it as it is...and it shouldn't be like this for anyone.
Thinking of each and every one of you and your loved ones.
Hugs,
Paul

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: No bed available at hospital for gastric bypass!!!

Postby susikus » Thu Oct 04, 2012 7:35 am

Oh Paul, hugs for you too. What an awful emotional rollercoaster you are on. I so hope that your fiancee gets some effective help today, even if that does mean being admitted. Do you have contact with a specialist nurse? She would be a good person to have on board and talking to the GP. I have come to realise that despite the fact that I have worked for 35 years for the NHS I cannot remember nursing someone with PC before and it isn't the same as having cancer anywhere else. I cannot remember anyone at our GP practice with the disease, and my own GP has 2, us and one other patient. What I am trying to say is that lots of nurses and doctors have little or no experience of the peculiarities and speciality of PC. They are trying to help, they want to help, but they don't always know how to help. That is why we have specialist nurses and doctors. Good luck today Paul, let us know what happens and I do so hope she feels better soon, lots of love, Sue

luce873
Posts: 15
Joined: Mon Oct 01, 2012 1:29 pm

Re: No bed available at hospital for gastric bypass!!!

Postby luce873 » Thu Oct 04, 2012 10:41 am

So sorry Paul for you and your fiance that the service is letting you down and you're having to do so much of the chasing and organising yourself, the last thing you need, how frustrating. It sounds like you are doing a fabulous job tho.
You've inspired me to continue to chase, nag and chivvy up every line of enquiry, it does make such a difference to the speed things get done, doesn't it? Keep plugging away, you are doing amazingly,
Lots of love and positive vibes coming your way,
Lucy x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: No bed available at hospital for gastric bypass!!!

Postby yorkypaul » Thu Oct 04, 2012 6:08 pm

Thanks for your replies Deb, Sue and Lucy. The chasing up is being done by those who are up there really, not me. I'm just another voice while I'm down here. This afternoon she was taken by ambulance to the hospital where she had the gastric bypass op. The same fantastic surgeon will be looking after her. I guess priority will be to address the dehydration. The vomiting seems to have stopped today following the new meds given by the GP and administered by the district nurses. I am sooo relieved that she is going to get the care she needs once again.
Thinking of you all
Paul

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: No bed available at hospital for gastric bypass!!!

Postby DRAD3 » Thu Oct 04, 2012 7:55 pm

Hi Paul
So glad your lady is in hospital and getting the care she wants, needs and deserves. Keeping everything crossed that she does, indeed, bounce back over the next week and you are able to have your wedding day go ahead as planned. That would be such a boost for you both, I am sure.
I cannot believe the awful situation you are having to endure and I think Sue is right that it is purely down to ignorance about PC. I am sure everyone wants to help but they don't know what to do - it is the system at fault and again comes back to raising awareness about PC at every level.
Keep your spirits up, Paul, and do hope you get to hear your lady's voice very soon.
love
Deb
x

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: No bed available at hospital for gastric bypass!!!

Postby laura » Thu Oct 04, 2012 11:34 pm

hi paul, you both certainley have not been having an easy ride, for your fiancee sake i am pleased she is in hospital, hope they sort things out quickly for her, you take care with all the driving your doing on top of working and worrying!!!
lets hope things really buck up soon for her and she can look forward, and plan, for your special day, you do know that it can still go ahead in hospital if neccassary?
my love and gentle cuddles to you both, laura xxx