A forum for advanced pancreatic cancer issues

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PCUK Nurse Dianne
Posts: 285
Joined: Tue Aug 14, 2012 3:29 pm

Re: bri's progress

Postby PCUK Nurse Dianne » Tue May 14, 2013 4:24 pm

Hi Laura,

That is great news, and as difficult as it may be sometimes sharing this news with others, thank you for doing so. It is always important to hear the 'good news stories' too as this is what gives inspiration to others. So well done both of you, and take care of yourselves and continue to share with your forum family.

Best wishes,

Dianne

Support Team

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: bri's progress

Postby DRAD3 » Thu May 16, 2013 10:15 am

Hi Laura
How wonderful! Do not feel bad for sharing your good news, as Dianne said, this is SO important and gives everyone needing hope a good lift.
So glad you enjoyed your holiday and I do hope you are coping OK with the thoughts that still go round your head about your son. Don't torture yourself - some things will never make any sense - you just have to accept it and make some sort of peace with it. Easier said than done, I know!
I have come out the other side of a surreal few weeks - preparing for the anniversary of Gary's death and taking his ashes to be scattered. I am so glad I took my time in deciding what to do because in the end I felt it was so right.
My daughter and I stayed in a lovely guest house with amazing sea views - one where Gary and I went many times. Scattering his ashes felt like the final acceptance that he was no longer with us physically but a couple of amazing things happened which were quite magical and confirmed my belief that he is with us in spirit.
I am in love with Cornwall and go regularly so perhaps on my next trip, I will ask the support team to give me your email address and we can see if a meet up is possible?
Take care, Laura - love to Bri and long may he continue to defy the odds and keep you and your forum family smiling.
Love to everyone.
Deb
x

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: bri's progress

Postby laura » Sun May 19, 2013 10:30 pm

deb, thanks for your post, lovely to hear from you :D , so good you were pleased with your visit to cornwall, and great your daughter was with you, and you had some nice "experiences". we have to take whatever comfort is offered, dont we?.
of course i would be delighted to meet up with you, on a future visit, if you too would like to?,
i can relate [in a different way] to your odd few weeks, i feel a bit in limbo myself. n really should be junping through hoops [ metaphorically speaking these days lol] but i seem full of aches/pains,nauseous feelings, hot n cold,, no im not pregnant!!!
might just go and see the dr, cos its dragging me down and i dont know whats wrong.
however, again thanks for your post, take care of yourself and chat soon love laura xxxx

to all other friends and postees my thoughts and good wishes and lots of strength are with you on your journeys xxxxxx

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: bri's progress

Postby DRAD3 » Tue May 21, 2013 10:06 am

Let us know how you get on, Laura, won't you? Don't like to hear that you are not feeling well. Def a good idea to get checked out, especially if it is making you feel down mentally - we all know how important it is to remain psychologically strong and positive. xx

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: bri's progress

Postby J_T » Tue May 21, 2013 7:34 pm

Yes, Laura, take care of yourself. Hope you are soon feeling better. xxx

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: bri's progress

Postby laura » Wed Nov 27, 2013 1:33 am

hi all, we went for our oncology appointment last week, and they are really pleased with how brian is, his weight is maintained [ still using lots of creon!]. our consultant doesnt want too see us for 6 months, have stopped scanning regularly now, they are going more by how bri looks and feels, we were assured that if we had any concerns at all we only have to ring and they will arrange an appointment and scan, so as usual cannot ask for better treatment.

i cannot believe that we are nearly 4 years since diagnosis, how lucky is that?

please all of you, dont give up hope, stay positive and focused and fool this damned disease.

my love and best wishes to all on here, to those who are carrying this uninvited passenger, and to, those that care and support, such a hard job, but such an important role, hi also to anyone who remembers us??

love and hugs laura xxx

cestrian
Posts: 220
Joined: Mon Jun 03, 2013 12:20 pm

Re: bri's progress

Postby cestrian » Wed Nov 27, 2013 6:42 am

Hi Laura

Not seen any of your thread previously as your last post was before I joined the forum. It is so good to hear some uplifting news when we are so often just hearing tales of woe. Well done Brian and long may you continue to beat the system and keep all our spirits up.

Love and Peace

Mike

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: bri's progress

Postby Cathy » Wed Nov 27, 2013 10:15 am

Hi Laura

Bri really is an inspiration and a beacon of hope to all of us on here battling this bl**dy thing.

Keep posting and keeping us updated.

Cathy xx

charney
Posts: 74
Joined: Wed Mar 14, 2012 2:29 pm

Re: bri's progress

Postby charney » Wed Nov 27, 2013 11:36 am

Laura so nice to hear that Brian is still doing so well, Its been over a year now
since my mother in law died from this awful disease and I still pop on this forum
to see how everyone is doing. I cannot forget the help and advise you gave to me
and I am really pleased that you are doing so well, such positive news, the last few months have been so sad on this forum and my heart goes out to the families who have lost their loved ones

love and best wishes
Cheryl

PCUK Nurse Jeni
Posts: 1070
Joined: Mon Jun 14, 2010 1:30 pm

Re: bri's progress

Postby PCUK Nurse Jeni » Wed Nov 27, 2013 12:44 pm

Laura,

Thanks for posting this great news! So pleased for you and Bri in particular, of course!

Its so good of you to pop in now and again - hope you are both well.

Great news about the appointments and scans - I am sure that you are as good a judge as any as to when Bri is not at his best, and great that you have open access. Nice to hear a good story - thank you Laura.

Jeni.

marie souter
Posts: 198
Joined: Thu May 30, 2013 7:58 pm

Re: bri's progress

Postby marie souter » Wed Nov 27, 2013 7:03 pm

Brill news you guys, nice to see some good news when I logged on today xx

keep fighting the good fight

hugz
marie
xx

rachelqt
Posts: 175
Joined: Tue Sep 20, 2011 9:18 am

Re: bri's progress

Postby rachelqt » Wed Nov 27, 2013 11:07 pm

Hello Laura!
Hope your well! Wow, Bri is doing amazing, delighted for you both! As I have said before Bri's journey gave my dad and family hope! Great to hear the good stories out there!
Lovely to hear from you!
Rachel x

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: bri's progress

Postby J_T » Wed Nov 27, 2013 11:12 pm

Fabulous to hear Brian is still doing so well. His story is amazing and one of hope for everyone affected by this disease.

Much love to you both.

Julia x

InfoForMum
Posts: 332
Joined: Mon Aug 19, 2013 12:01 pm

Re: bri's progress

Postby InfoForMum » Wed Nov 27, 2013 11:48 pm

Hi Laura, like Mike I joined well after you started posting so was delighted to see such fabulous news 4 years down the road from diagnosis.

I'm going off in search of your earliest posts to share some stuff with my Mum. I post on her behalf (diagnosed borderline resectable LAPC in head of pancreas in early August), but what I pass on, especially the great day to day experience shared and the wonderful good news, makes a massive difference.

You sound like a lovely lady and your man sounds like an absolute hero. Long may the good stuff continue!

Sarah

Striving4dad
Posts: 4
Joined: Thu Sep 13, 2012 4:59 pm

Re: bri's progress

Postby Striving4dad » Thu Nov 28, 2013 10:34 pm

Great to hear Bri is doing well Laura - long may it continue.

My dad was diagnosed with inoperable PC in May 2011 and has continued to have GEMCAP since then. His markers were 5,000 when he was first diagnosed and have reduced significantly to below 20 and my family and I hope for it to continue and my dad to stay strong.

I have read this site many times and I do appreciate my dad is one of the "luckier" ones.

This forum is amazingly supportive to new and old forum friends. I haven't really posted on here myself; if I'm honest I haven't known what to say. I am known for talking lots, but I'm not so good at writing and saying what I would like to say.

I hope my dads response to treatment does give hope to others, carers and loved ones.

Take care and keep strong, sending positive thoughts to you all x