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Posts: 88
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Re: bri's progress

Postby Catherine » Fri Nov 30, 2012 2:34 pm

Hi Laura,

Bless you and Bri, I'm sending you good wishes and positive thoughts.

Catherine xx

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Re: bri's progress

Postby Sones » Fri Nov 30, 2012 3:17 pm

Hi Laura so sorry to hear your news re Bri, you are so supportive to us all on this site.
Sending you strength and good wishes.

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Joined: Tue Sep 20, 2011 9:18 am

Re: bri's progress

Postby rachelqt » Sun Dec 02, 2012 8:46 am

Hi Laura!
So glad you and Bri had a nice holiday and had nothing too do..lol! Sorry about your friend Wendy, this place of grief sure is hard. I was so strong when dad passed away, but now 8 weeks after dads gone it has finally caught up with me, so have come too the conclusion I just have to go with it and not hide from it, trying to look at it as a time to recover from the hellish year we had.

I hope this is only a hicup for Bri and as always you remain positive and upbeat, which is the key tool for this disease. It seems your team is really behind you and will do everything to try and treat this if it plays up.

Thinking of you as always,
Stay Positive
Much love Rachel xx

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Re: bri's progress

Postby Hopefulwife » Sun Dec 02, 2012 8:03 pm

Hello Laura,
It's been a while since I checked in to see how you are doing and was saddened to hear about your dear friend Wendy's passing. I was also sorry to read that Bri has had a setback, but it sounds like your team have things under control and I know for sure you are in Bri's corner and won't let anything slip by. I'm glad you both managed a holiday though.

You are such an inspiration to all of us who have ended up on a road we didn't want to travel. It would have been Steve's 60th birthday today and I felt drawn to see how my PC compatriots were doing and check on progress particularly with you both. It has been a very hard day for us and one son has really struggled. We had a family lunch planned with my parents but he was too angry and upset to come with us so ended up on his own all day leaving the rest of us to try and keep some normality going. So I started the day with floods of uncontrollable tears (they've been locked away for so long) then gradually gathered my composure and put on the "brave face" again. It was one more anniversary to get past - we still have 23rd December when Steve passed away to get through, and of course Christmas, but as my other son said, "we've already had a Christmas without Dad", so nearly there.

Having this forum is like an old friend who you know doesn't mind the odd vent, so that's what I've done and I hope I don't have to apologise for it - because most of you understand where I am coming from. The time after losing a loved one is so surreal and I can't believe that it's almost a year since losing Steve, but I just keep busy and hope that time will heal - but it is still there. A friend of mine suggested you put the grief in a box and every now and then it's OK to lift the lid and delve inside, but you have to put the lid back down and realise that there is a future. Easier said than done sometimes, but I do see their point.

So please keep positive and try to have some "me time" if that's possible. Thanks for reading,
Lots of hugs, Diane xxxx

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Re: bri's progress

Postby laura » Sun Dec 02, 2012 10:29 pm

hi rachel and diane,

rachel really pleased to hear from you, you have been in my thoughts recently, i cant say i know how you feel cos havent trod the road you have, it has surprised me how im feeling about wendy, i know its anxiety, i wake up with a sick ache in my stomach and feel so sad, how on earth will i cope if anything happens to bri? i know i dont have a choice, but im so scared. rachel your so right about being able to cry and not bottle it up, i havent cried over wend, which is weird, cos i really cared about her! guess it will come. still got her clothes etc to sort for her husband and her bank stuff?

diane much of the above is applicable to you, but please please, never feel the need to apologise, every one here is here for you xx i knew it was close, the anniversary of losing steve, i think you are doing so well, am sorry your one son is finding it difficult to cope with, would he talk to someone?, perhaps one of the folks on here, he might cope not being face to face? we all hurt when we cant sort our kids hurt out, dont we? we have to remind ourselves we are human ourselves. hope you are managing to get some pleasure from your conservatory. thinking of you both and sending you big hugs and a cuddle, keep in touch if you feel up to it. love as always laura xxxx
hi to all my other fellow correspondants, wishing everyone peaceful times with your loved ones, laura xx

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Re: bri's progress

Postby laura » Mon Dec 03, 2012 5:05 pm

hello again everyone, just a little update ! sort of,! our clinical physciatrist, whos lovely, visited today, see him 3 monthly re bris mcd, he read the result of last wks scan, and explained it so well, with diagrams etc, he said it was so minimal, forget about it, but would look the scan up when back in office, so do feel better about it, i know this seems so paltry to what others on here are going thru! sorry folksxxx
ali/helen didnt mention your name, hope you are coping? love to all laura xxx

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Re: bri's progress

Postby Sammy-Lou » Mon Dec 03, 2012 11:23 pm

Laura, will be thinking of you and Brian, don't trivialise anything, its what is happening in your life and don't compare cos it's important to you and we all want to be here for you like you are for everyone here! Keep us posted! Love and hugs xxx

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Re: bri's progress

Postby Lulu » Sat Dec 08, 2012 1:57 pm

Laura, you and Bri are an inspiration to all of us here and I totally understand how you must have felt when you got this recent news. But I am so glad you are feeling a bit better since you spoke to your doctor. It probably is minimal but I suspect you are on the 'alert' for any sign or symptom and that is completely understandable.
You and Bri are often talked about in our house. Even though I dont know you I feel as though I do. I tell Bri's story when I see Dad wilting under this terrible disease and it always gives him a boost, Dad loved the fact he is able to go bowling again! I think he thought if Bri can do that, I might be able to do that again soon. So let him know how much he is helping others - as you are too. Much love, Lulu x

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Re: bri's progress

Postby laura » Sun Dec 09, 2012 4:17 pm

hello lulu, tks for your reply, am so pleased that some of bris acheivments are able to help others, i dont recount too much because i wouldnt want it to have the opposite effect, if you understand,

this weekend we both have had such lazy days. yesterday i had real bad fibromyalgia would not have been able to post, bit easier today, slept most of the day!! bri today has slept most of the day, says he has achey body?? Anyway onwards and upwards eh!
thinking of you love laura xx :|

Posts: 385
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Re: bri's progress

Postby laura » Sat Feb 09, 2013 10:17 pm

hello to everyone, sorry for being absent for a while, just not coping very well at times, should be buzzing really, my "get up and go, seems to have got up and gone"
However, we saw our oncologist on thurs 7th and all is well, no change to scan and he said nodules been there some months, just the way the radiographer wrote the report, says brian is doing very very well, see us in three months but no scan next time, he thinks the scan and then the wait makes brian quite anxious, would agree there, they are going to try fentanyl patches instead of mst and see if that helps with profuse sweating, our physciatrist also visited on 4th and is arranging a head scan, as brian feels the symptoms from that are causing possibly more probs than the pc, have to say things are difficult sometimes and when bri gets stressed it has a knock on effect on me, but hey, we are i know, very lucky, so onwards and upwards
much love to all of you and your loved ones, real sorry im not very animated at the mo.
take care laura xxxxxxxxxx :roll: FUNDRAISING, OOPS didnt post this either!! did my yearly bowling tournament last sun 3rd, had 64 bowlers, 16 teams from various parts of cornwall and even one in plymouth, some travelled over an hour!, managed to raise £650.00 clear profit, so was pleased with that, great supportive people, even had 37 raffle prizes, had food available all day, went well, fair dinkum knackered the next day, thought you all might like to know, love n hugs laura xxx

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Re: bri's progress

Postby Catherine » Sat Feb 09, 2013 10:44 pm


That is brilliant news. But there is no wonder you are feeling non animated and a little stressed - you've had three years of this roller coaster and life hasn't been kind to you in the mean time. Take some time for you, and do some things you enjoy. Well done on the fund raising. You must be exhausted though - have a lovely rest if you can.

Lots of love

Catherine xxx

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Joined: Tue Sep 20, 2011 9:18 am

Re: bri's progress

Postby rachelqt » Sun Feb 10, 2013 9:30 am

Hi Laura,

So pleased that everything is stable with Bri! Gives so many so much hope, I know it did with my Dad and family!

I know its hard for you because you feel all the emotions that come with this and that in itself is a great effort to face everyday.
It does catch up with you every now and again which is 'normal'. I can totally understand the knock on effect, so if you can grab a little 'me' time, take it!

Personally I feel drained after our experience, I go over and over it all the time sometimes with disbelief that a strong man went so downhill and amazed how we got through it all, but I do know it takes time to get to a better place!
I intend to live life to the full for my dads memory!

Wishing you strength & love Laura
Rachel xx

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Re: bri's progress

Postby Morwenna » Sun Feb 10, 2013 10:03 pm

Hi Laura
Great to hear from you, I have been looking out for your update on bri, great news that the tumour hasn't grown :) he really is doing amazingly.
I'm not surprised you are feeling a bit all over the place, it really is hard work trying to hold it all together all the time, i'm so up and down at the moment it's pretty exhausting isn't it?!!
Please keep in touch, sending you big hugs..

Morwenna x

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Re: bri's progress

Postby charney » Mon Feb 11, 2013 9:26 am

what great news Laura, Bri is as other people have said a great inspiration and
sends hope to everyone. Im not surprised you are feeling low at the moment, you have been
through a tough time lately and the rollercoaster ride of the last few years cannot have helped. you are always here with your undying support for everyone on this site, take some time out for yourself, im sure everyone on here will be right behind and right here if needed. Keep Strong
love and best wishes
cheryl x

PCUK Nurse Jeni
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Joined: Mon Jun 14, 2010 1:30 pm

Re: bri's progress

Postby PCUK Nurse Jeni » Mon Feb 11, 2013 9:46 am

Great news Laura!

Very pleased for you both.