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McPam
Posts: 4
Joined: Fri Jun 28, 2013 6:54 pm

Swollen legs and abdomen advice

Postby McPam » Mon Nov 11, 2013 4:38 pm

Hi everybody

I've lurked on the forum for a while but been too chicken to join in until now.

My husband, Mike, has been diagosed with pancreatic cancer. The mass is in the body of the pancreas, it's advanced and inoperable. You all know how utterly devastated we're feeling right now.

About four weeks ago Mike became jaundiced, went to hopsital to have a stent fitted, but was too agitated under sedation and they couldn't do the procedure. About ten days later they tried again under a general anaesthetic, but couldn't do the procedure because there was a 'kink' in the duct was too acute to work around without risk of puncture. Two days after that, they finally managed to fit the stent accessing through his liver.

The jaundice is going away, he feels a lot better, poo normal colour again and weeing fine again.

But now his serum albumin levels are down to 24 and his legs and abdomen are swelling up like mad. His legs leak and it's really unpleasant for him.

We don't know if it is related to what he has been through to get the stent fitted and a with bit of time and eating as much quality protein as he can will help. Or are we looking at the progression of the cancer and it's probably not going to improve.

Any practical tips or ideas to help are so gratefully received.

Thank you
Pam

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Swollen legs and abdomen advice

Postby J_T » Mon Nov 11, 2013 4:55 pm

Hi Pam and welcome to the forum family. There is lots of practical help and support to be had here as you know if you've been lurking!

I'm afraid I can't offer any informed advice regarding the swelling to Mike's legs and abdomen but would urge you to ring or email Jeni or Dianne, the support nurses here. They are brilliant with their advice and support. I think they finish at 5pm so maybe tomorrow?

Hopefully others may post with more experience of this problem.

Keep posting, we are here to listen and support whenever we can.

Best wishes
Julia x

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Swollen legs and abdomen advice

Postby nikkis » Mon Nov 11, 2013 5:01 pm

Hi Pam,
Sorry I haven't any advice I can give either, but also wanted to say welcome, and echo what Julia said about speaking to the nurses tomorrow,

Best wishes,
Nikki

McPam
Posts: 4
Joined: Fri Jun 28, 2013 6:54 pm

Re: Swollen legs and abdomen advice

Postby McPam » Mon Nov 11, 2013 5:14 pm

Oh, thank you, thank you, I will do - I didn't know I could phone anybody.

It's SUCH a relief just to hear from other people, thank you, I look like I'm being so strong and positive for my husband - but I'm really scared and frightened about the future.

Thank you
Pam x

PCUK Nurse Jeni
Posts: 1111
Joined: Mon Jun 14, 2010 1:30 pm

Re: Swollen legs and abdomen advice

Postby PCUK Nurse Jeni » Mon Nov 11, 2013 5:24 pm

Hi Pam,

Please do call us tomorrow on (020) 3535 7099

Jeni,

Support Team.

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Swollen legs and abdomen advice

Postby nikkis » Mon Nov 11, 2013 5:46 pm

Dear Pam,

Just looking like you are being strong and positive is pretty impressive under the circumstances! I fall apart on a daily basis, so don't feel you always have to keep it together. I am sure Jeni will be able to help you tomorrow,
Nikki

McPam
Posts: 4
Joined: Fri Jun 28, 2013 6:54 pm

Re: Swollen legs and abdomen advice

Postby McPam » Mon Nov 11, 2013 6:37 pm

Thank you Jeni - will call tomorrow.

Thank you Nikki - :-)

McPam
Posts: 4
Joined: Fri Jun 28, 2013 6:54 pm

Re: Swollen legs and abdomen advice

Postby McPam » Mon Nov 11, 2013 6:37 pm

Thank you Jeni - will call tomorrow.

Thank you Nikki.

misslittlestar2
Posts: 1
Joined: Mon Jul 22, 2013 11:02 pm

Re: Swollen legs and abdomen advice

Postby misslittlestar2 » Mon Nov 11, 2013 9:36 pm

Hiya,

My mum suffered quite badly with swollen legs and we could never really get to the bottom of it but they thought it was due to her worsening liver function and lack of protein. She also had a swollen stomach and they did offer to drain this but she refused and it did get better on it's own accord. Her legs never improved much at all though. Thinking of you and your husband. This cancer seems to throw all sorts of symptoms at you, here if you want to talk xx

marie souter
Posts: 198
Joined: Thu May 30, 2013 7:58 pm

Re: Swollen legs and abdomen advice

Postby marie souter » Mon Nov 11, 2013 10:23 pm

Hiya....my mom suffered swollen stomach ... Few reasons cud b causing it ... Partial obstruction of the bowel causing a gassy build up ... Sludge in the stents .. Ascites .... Fluid in the abdominal cavity .... Cud push a scan?

marie souter
Posts: 198
Joined: Thu May 30, 2013 7:58 pm

Re: Swollen legs and abdomen advice

Postby marie souter » Mon Nov 11, 2013 10:25 pm

Hope u find out soon .. Tough times my heart goes out to you

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: Swollen legs and abdomen advice

Postby Bee » Mon Nov 11, 2013 10:27 pm

Hi Pam,
I can't answer your questions about the swelling and low albumin, but like others have said I am sure the nurses will be able to help.
What I do know is that you have come to a wonderfully supportive forum, we all know how scared you are , but you are not alone.
Bee xx

cestrian
Posts: 220
Joined: Mon Jun 03, 2013 12:20 pm

Re: Swollen legs and abdomen advice

Postby cestrian » Tue Nov 12, 2013 2:05 am

Dear Pam

Welcome to the forum and pleased to see it swing into action quickly to offer you help and advice. You should of course have a local medical professional available with whom you can discuss any problems Mike is experiencing but all too often this help is either non-existent or delivered by an ever-changing anonymous multitude who fail to take responsibility.

The great nurses on the forum are then a source of huge value with their vast experience and willingness to advise. Do however try to pin someone down locally as well as problems have a nasty habit of arising at the most inconvenient times! GP, Oncology team, McMillans, Marie Curie are all resources to use. The scandal is that you appear to have been left to worry on your own instead of being given all the back-up support that carers for sufferers of PC need to have available.

Love and Peace

Mike

jules 2015
Posts: 55
Joined: Mon Sep 23, 2013 10:20 pm

Re: Swollen legs and abdomen advice

Postby jules 2015 » Tue Nov 12, 2013 9:17 am

Hi Pam
I echo what everyone else has said, there are many reasons for both the swelling in legs and tummy which need to be checked out asap. I would call your gp and ask them to come out as a home visit and explain the urgency or failing that speak to your oncology team that is what they are there for you shouldn't have to be worrying about this on your own
Wishing you lots of luck with your journey with this terrible disease
Julie x

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Swollen legs and abdomen advice

Postby Cathy » Wed Nov 13, 2013 11:48 am

Hi Pam

I am afraid I can't offer any practical advice myself not having had experience of what your hubby is experiencing but just wanted to welcome you. If you have been lurking, as Julia says, you will probably already know some of our stories. This is a great site for support and advice as I am sure you will find.

All the best with getting to the bottom of your hubby's legs and stomach swelling.

Cathy xx