A forum for advanced pancreatic cancer issues

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Jwilson
Posts: 100
Joined: Sun Jun 09, 2013 9:52 am

Re: Help us please.

Postby Jwilson » Sun Sep 29, 2013 12:50 pm

Emma. Good morning! I hope you are getting to grips with all that has happened to you and your hubby. I just wanted to say.........croissants! Bill can eat warm croissants dunked in raspberry jam even on the worst of days when he can eat nothing else, oh and porridge with honey in it always slips down well. Hardly masterchef but hey you would try anything to get food into these men! Chicken pie as well and I have started making these myself, but I buy frozen pastry! The desire to eat just seems to disappear doesn't it and Bill says things taste wrong. So there it is croissants, porridge and chicken pie! And.....don't panic
Love June

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: Help us please.

Postby EmmaR » Sun Sep 29, 2013 4:35 pm

Thank you all you are so helpful and encouraging June hubby as been managing porridge with honey small banana stewed apples and custard ,not altogether but he still leaves a little says it's to much he as changed to whole milk haven't had that for years and as been drinking a small glass ,but he is still very weak but says that he must try to eat ,family been back and for today he try's to cheer up for the grand kids but conversation is taking its tole on him but they no when to leave ,this morning was a beautiful morning and a normal Sunday for us would have been a six mile walk in our local forest I looked out and thought if we could only go one more time then the tears came hubby was still in bed so I had time to put on the smiley face so so hard to do .
Kind Regards to you all and your loved ones x

KATB
Posts: 178
Joined: Thu Mar 28, 2013 10:41 am

Re: Help us please.

Postby KATB » Sun Sep 29, 2013 5:33 pm

Hi Emma

We had the same this morning, looking out at the stunning weather and the hills beyond and thinking how normally on day like this we'd be out walking up a mountain with dad and finishing off with a pub lunch :cry:

It's a tough disease, it really is.

Chin up xxx

PCUK Nurse Dianne
Posts: 286
Joined: Tue Aug 14, 2012 3:29 pm

Re: Help us please.

Postby PCUK Nurse Dianne » Mon Sep 30, 2013 3:07 pm

Hi Emma,

I am sorry to hear of your husband's recent diagnosis, such a difficult time for you both at present. I am sure you will find the forum a very supportive place, with some lovely family members and all very supportive to you at this time.

Please feel free to contact us on the support line (020 35357099 or support@pancreaticcancer.org.uk) as we may be able to help you with some further support and guidance that you may find helpful.

Kind regards,

Dianne
Support Team

liz99
Posts: 9
Joined: Sun Apr 28, 2013 7:34 pm

Re: Help us please.

Postby liz99 » Mon Sep 30, 2013 8:16 pm

Hi Emma,
I am sorry to hear of your husbands diagnosis, my husband was diagnosed in April this year and I remember how awful and confusing it was in those first few weeks.
I found it helpful to write questions down to take to the oncology appointments as I could never remember anything when we got to the appointments otherwise.
Others have given good advise regarding apetite, and I would echo the eat whatever they feel like - ice cream is my husbands favourite - and mashed potato (not together!!)
Another thing worth considering is an anti-depressant, as having this diagnosis can have a huge impact on mood and can result in depression. My husband was started on a low dose anti-depressant (after my insisting on this - I am a mental health nurse) and this did lift his mood slightly and his appetite.
Not saying this is the same for your husband - but worth a discussion.

Take care and do use this forum - I have often read entries which has helped me enormously through the darker days. (have not felt up to contributing until recently)

Liz

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: Help us please.

Postby EmmaR » Wed Oct 02, 2013 4:28 pm

Hello all things seem a little brighter hubby started mst's twice a day and is taking the 3 steroids in the morning he is eating a bit more and not going to bed in the day !! We both slept better last night I had been so tired !! Didn't know if I was coming or going still waiting biopsy results and appointment with onc I think he was so tired taken all the co/ codemols the mst's seem much better at controlling the pain I know he is still unwell but this little improvement is better than nothing the doc came to see us and sorted out the dose for the mst's and told him the steroids were not only for appetite and would make him feel a little better I think one of you good people on this forum had also said that . I will keep in touch .
EmmaR

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Help us please.

Postby J_T » Wed Oct 02, 2013 5:22 pm

Hi Emma, that is good news, all the little victories count! Glad to hear you are both getting some much needed sleep, we all know about that!

Keep us informed
Julia

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: Help us please.

Postby EmmaR » Fri Oct 11, 2013 9:51 pm

Hello all,
Had biopsy result yesterday confirmed the cancer the consultant had already sent off the referral to the onc so should have an appointment soon ! Both consultant and specialist nurse thought he was ok for chemo but onc has the final say so fingers crossed he is to start creons soon oh dear more tablets have to get a bigger box ! Joking aside he is still very tired and looks so thin but he is trying hard to eat as much as he can thanks again for all your support.
Love to all Emma x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Help us please.

Postby Slewis7313 » Sat Oct 12, 2013 7:38 am

Hi Emma, just a quck not to remind you (if you don't already know) that there is a Maggies Centre at Singleton where you can drop in at any time. I cannot stress enough what a help they have been to the family especially in the early days. They will make you very welcome! If you are seeing the Oncologist in Singleton, you will find Maggies next to the chemo centre. They will tell you how to get there. I'm off to Cyprus today for a week on business, but am around the week after if you would like to meet at Maggies (or somewher else) for a chat

Take care

Steve

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: Help us please.

Postby EmmaR » Sat Oct 12, 2013 9:01 pm

Dear Steve how kind of you for the offer of a chat and the info , but my hubby will be having his chemo if suitable at X at X hope it's ok to mention hospital names , have a good time in hopefully sunny Cyprus even if it is business will keep you posted on OH progress and hope to hear good news from you regarding your treatment in Germany you and your family are in my thoughts be positive !
Kind Regards Emma x