A forum for advanced pancreatic cancer issues

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Jwilson
Posts: 100
Joined: Sun Jun 09, 2013 9:52 am

Re: Heidelberg University Hospital

Postby Jwilson » Sat Oct 12, 2013 4:59 pm

Really good luck with your op Steve. We tend to not look past our own professionals who are sitting in front of us. We were told in May when the Whipple was not able to be done for Bill and a bypass had been done instead that' no surgeon in the world could have removed that tumour' . So until right now I never thought of looking elsewhere for help. Food for thought Steve. Thanks for posting and everything crossed for a successful outcome for you.
June

Sueba
Posts: 94
Joined: Sat Oct 20, 2012 4:08 am

Re: Heidelberg University Hospital

Postby Sueba » Sun Oct 13, 2013 7:44 am

Steve
Fantastic news!we both wish you the best of luck for a quick recovery
Sue and Mick
Xx

karen17
Posts: 157
Joined: Sun Dec 30, 2012 8:38 pm

Re: Heidelberg University Hospital

Postby karen17 » Sun Oct 13, 2013 9:32 am

So so very pleased for you Steve and wishing you all the best and a speedy recovery. You go kick this evil disease up the backside for all of us!
Karen xx

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Heidelberg University Hospital

Postby Cathy » Sun Oct 13, 2013 3:15 pm

Hi Steve

I've just caught up with your updates and wish you all the very best of luck with the op. How fantastic that they feel confident they can remove the bugger. You and your family must feel absolutely delighted.

Cathy xxx

AnneK
Posts: 9
Joined: Sun Sep 01, 2013 6:42 pm

Re: Heidelberg University Hospital

Postby AnneK » Tue Oct 15, 2013 11:18 am

Hi Steve
So, so pleased for you and wish you all the very best with the op. It is such fantastic news and gives hope to others of us in a similar situation. Lots of love to you and your family.
Anne

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Heidelberg University Hospital

Postby Slewis7313 » Tue Oct 29, 2013 6:10 pm

This will be a struggle as my iPad won't work and i am on my smartphone. I am now an in-patient and ready for tomorrow's operation at 07:00. We have met with the surgeon and radiotherapy specialist and all are very positive. They expect the operation to last only 3-4 hours as long as there are no complications. They pointed out that they do between. 5 and 7 every day and mine seems to be a pretty straightforward operation with no indication that they will need to remove the tail of the pancreas. The radiotherapist is on standby and may not be needed. She did point out that i had one of the smallest she had ever seen, but did afterwards point out that she was referring to the tumour!

Be in touch soon!

Take care

Steve
X

karen17
Posts: 157
Joined: Sun Dec 30, 2012 8:38 pm

Re: Heidelberg University Hospital

Postby karen17 » Tue Oct 29, 2013 7:09 pm

We're all rooting for you Steve. Wishing you all the very best
Karen xx

InfoForMum
Posts: 332
Joined: Mon Aug 19, 2013 12:01 pm

Re: Heidelberg University Hospital

Postby InfoForMum » Tue Oct 29, 2013 7:31 pm

lmao at your radiotherapist. What's a man's ego compared to his good health, but like you I think she was probably talking about your tumour ;-)

Will be thinking of you as my 4 year old alarm clock jumps on my chest to wake me up (7am come rain, shine or clock changes - god knows how she knows, cos the hour change always confuses the heck out of me!)

How marvellous to be talked about as a routine and average patient. Not often you can say that, but guessing it was music to your ears. Very very very best wishes for it all - op, immediate recovery and convalesence.

Hugs

Sarah
XXX
Last edited by InfoForMum on Wed Oct 30, 2013 10:07 am, edited 1 time in total.

Hope56
Posts: 5
Joined: Wed Jun 27, 2012 7:28 pm

Re: Heidelberg University Hospital

Postby Hope56 » Tue Oct 29, 2013 8:07 pm

I am amazed that they do so many a day and view them as routine. Wake up UK surgeons. To be able to offer hope to those suffering from PC will sit much easier at the end of your working day.
Steve...you have offered nothing but support, comfort and positivity to others on this forum despite dealing with the disease yourself. So I wish you good luck for tomorrow and the coming days, weeks, months and years.....Positive thoughts are flying your way . Best wishes - Hope

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Heidelberg University Hospital

Postby Cathy » Wed Oct 30, 2013 1:26 am

Steve!...

LOL! Honestly ;). You men......

We will be looking out for your first post op post eagerly.

All the very best.

Cathy xxxxx

Holly13
Posts: 5
Joined: Wed Jan 02, 2013 3:57 pm

Re: Heidelberg University Hospital

Postby Holly13 » Wed Oct 30, 2013 8:19 am

Hi all, I'm posting on behalf of my dad, Steve. He asked me to keep the forum family updated re his op today until he is able to return on here himself, which I'm sure won't be too long!

My dad went into theatre at 7.15 this morning (6.15 UK time), a little nervous understandably but also keen to get on with it. He even managed to pose for a pic in his very fetching hospital gown, white stockings and green mop cap... which of course went straight on Facebook! We're now just playing the waiting game, my mum, sister and I are expecting a phone call hopefully sometime early afternoon (we've been told if the op goes well he could be done as quick as 3 to 4 hours!). As soon as I know how it went I will let everyone know on here. Fingers crossed it'll all be fine.

Although I haven't posted on here much myself, I have been following a lot of the posts and I just want to say thank you so much for all the support and kindness you have shown my dad. I know that the people on this forum have helped greatly to give him the strength to fight this horrible disease and get him here today.

Take care,

Holly xx

cestrian
Posts: 220
Joined: Mon Jun 03, 2013 12:20 pm

Re: Heidelberg University Hospital

Postby cestrian » Wed Oct 30, 2013 8:59 am

Hi Holly

Heathens on here with everything crossed for your Dad and those with a deity praying with all their might for a successful outcome.

Waiting with bated breath for news later today

Love and Peace

Mike

InfoForMum
Posts: 332
Joined: Mon Aug 19, 2013 12:01 pm

Re: Heidelberg University Hospital

Postby InfoForMum » Wed Oct 30, 2013 10:12 am

Hi Holly,

Thank you for doing this for us. You've probably grasped we all feel very invested in your Dad's story and well being. He's helped so many other's keep their chin up and find the right info, so glad he's found it a support too.

Just like Mike I'll be keeping an eye out for updates, but please don't worry about keeping us waiting, your Dad is obviously the priority.

Hugs for you as I know waiting can be brutally hard when something like this is happening.

Sarah
XXX

PCUK Nurse Jeni
Posts: 1082
Joined: Mon Jun 14, 2010 1:30 pm

Re: Heidelberg University Hospital

Postby PCUK Nurse Jeni » Wed Oct 30, 2013 2:51 pm

Hi Holly,

Thanks for posting. Please send Steve our best wishes.

We hope that everything went smoothly, and that he is his usual cheerful self very soon again.

Love from Jeni, Dianne and the Support Team.

Holly13
Posts: 5
Joined: Wed Jan 02, 2013 3:57 pm

Re: Heidelberg University Hospital

Postby Holly13 » Wed Oct 30, 2013 4:46 pm

Thank you for all your kind wishes. We've just gotten back from seeing my Dad at the hospital where he is doing well and reports that he feels absolutely no pain! Unfortunately, I'm really sad to have to say that the operation was unsuccessful. Once they got to the tumour they found that it had infiltrated the artery instead of just contacting it as originally thought from the scans. This meant that they were unable to remove the tumour and so had no choice but to close my Dad back up. He was in the operating theatre about 3 hours in total. To say it was a shock is an understatement and we are all so disappointed especially as all the staff had seemed so positive and confident about the operation. We got the impression that they are not often wrong about these things.

My Dad is however doing well and although is understandably disappointed he is glad they at least tried and is keen to look at the next option. The doctors at Heidelberg have said they are looking at other options possibly involving starting him on aggressive chemo in the next few weeks. Also on the plus side my Dad will hopefully be out of hospital in less than a week as he should recover fairly quickly.

I'm sorry if this has been hard to read as I know we all hoped for a much more positive outcome. But as my Dad's doctor told us today "We may have lost this battle, but the war is not over" , and I can assure you that my Dad is as keen as ever to give this horrid disease his best fight.

Take care,

Holly xx