A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

Moderator: volmod

MSH
Posts: 228
Joined: Tue Apr 30, 2013 11:03 pm

Re: So far so good!

Postby MSH » Wed Aug 05, 2015 7:25 pm

Sorry to hear that Steve. Still if the stent stops the sickness that's got to help, also the Gem/Abraxane combination can I am told be very effective. Let's hope the funding issues are sorted quickly.

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: So far so good!

Postby Didge » Wed Aug 05, 2015 9:29 pm

Hope you get it back under control soon Steve and the sickness sorted out too x

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: So far so good!

Postby RLF » Thu Aug 06, 2015 10:35 am

Very sorry to hear that Steve, fingers crossed for the Abraxane, hear it's a good one and the side effects are a lot less than the fox so that should at least have you feeling a bit better.
Rob

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Sat Aug 15, 2015 8:53 pm

I met with my Oncologist on Thursday to review everything. The PET scan sows enlargement of the tumour plus 2 spots in the Liver. The Tumour Marker has also risen to 4600 which the Oncologist is concerned about. I shall therefore switch to GemCap on Monday, with. Gem/Abraxane the week after (when the insurance is finalised).
I am also to have a stent fitted in my Duodenum on Thursday as the Barium showed a serious constriction caused by the mass in the Pancreas area.

Not great news, but we have plans to address the issues, so still fighting.

My Oncologist confirmed that she is routinely using Abraxane as a first line treatment with promising results. First line is free on th NHS Wales. Hopefully the Welsh Assembly will continue to support the use of the drug.


Thanks for the messages of support.

Steve
X

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: So far so good!

Postby EmmaR » Sat Aug 15, 2015 11:45 pm

Well Steve they say 3 times for a Welsh Man! but my thinking is you are more a a cat with 9 lives all I can say and wish is that you keep fighting ... Hope the Welsh Assembly as you say keep supporting Abraxane if not they won't get any support off me !!! .as I always say to you keep up the positivity .
Take Care .
Emma x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: So far so good!

Postby Sueoliver » Sun Aug 16, 2015 8:44 am

Sorry to hear your news Steve I hope you get it all back under control soon. My Mum had the stent and it really helped. I hope the procedure goes well for you.
Keep fighting Steve and stay positive you are amazing.
Love Sue x

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: So far so good!

Postby kittycat » Sun Aug 16, 2015 10:06 am

Hi Steve, sorry to see you're having problems but good to see you're still fighting the blighter!

Sue

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Sun Aug 16, 2015 2:53 pm

Hi Steve, just catching up with your latest news.

I know you have every confidence in your oncologist and we have every confidence in you. You are going to confuse the blighter with your two pronged chemo attack this week and next.

All the very best to you and hope you get the sickness sorted pronto!

Julia x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: So far so good!

Postby jay » Mon Aug 17, 2015 8:03 am

hope everything goes well Steve,
Love Jayne
X

PCUK Nurse Jeni
Posts: 1087
Joined: Mon Jun 14, 2010 1:30 pm

Re: So far so good!

Postby PCUK Nurse Jeni » Tue Aug 18, 2015 4:35 pm

Hi Steve,

Sorry to hear all the latest news from your recent scan, and no wonder you have been feeling off with the duodenal stricture. I hope that the insertion of the stent relieves this and that you are feeling better soon.

Steve, you have responded very well to chemo previously, and lets cross fingers that the same applies again this time around. Lets hope that the abraxane has the desired effect, and yes, there are some really good results from it. We are hearing this from other parts of the world as well during conferences etc....

Fingers crossed for you Steve, and let us know if we can help in any way at all.

Kind regards,

Jeni.

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Sat Aug 22, 2015 6:21 pm

Thanks all for your continued and unstinting support. The Duodenum stent is in and the Radiologist reports that it was a 100% success from his point of view. The blockage was again worse than expected, with food still in the Duodenum after fasting for 12 hours. This lead to some minor sickness during the procedure, but I was so 'drugged up', I hardly noticed. The X-Ray showed it was fully expanded and should make a big difference immediately.

Abraxane has been delayed by a further week due to admin issues with funding, but we should be good to go a week on Monday. In the meantime I am on GemCap so we are at least hitting it with something.

I certainly seem to be having a fair selection of procedures / Chemo! We can hopefully fight it off for a while yet!


Steve
X

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Sat Aug 22, 2015 11:33 pm

Good to hear the procedure went well - apart from the sickness. Sounds like you would have been pretty uncomfortable with food stuck in your tubes!!!

Also good they have gemcap as a contingency, that with your doggedness combined I am sure you WILL fight it off for a loooooooooooong time yet!

All the best Steve.

Julia x

WilliamS
Posts: 70
Joined: Sun Apr 05, 2015 9:00 am

Re: So far so good!

Postby WilliamS » Sun Aug 23, 2015 9:25 am

As a newbie to this site, I've found your story inspirational. Good news that funding is available in your area. Hope you're feeling a bit better with the stent. Keep fighting!

Fifi

Re: So far so good!

Postby Fifi » Sun Aug 23, 2015 6:05 pm

Hi Steve,

Not used to reading bad things on your posts, so keep fighing, and keep winning. You are doing so good, you are truly a inspiration to patients and loved ones.

Good luck with the chemo.

Leila xxx

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: So far so good!

Postby SusannaUK » Sun Aug 30, 2015 9:27 am

Hi Steve,

I am just catching up and sorry to read the result of your latest scan, but glad to hear that the procedure went well. You are truly inspirational!
I hope you feel better since your last post.
Keep fighting, you are amazing!

Susanna x