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Re: So far so good!

Posted: Wed Jul 01, 2015 8:29 pm
by kittycat
Enjoy your holiday Steve, hope you feel a bit better soon.

Sue

Re: So far so good!

Posted: Wed Jul 01, 2015 10:24 pm
by J_T
You are still doing well Steve. Good luck with the appointments and enjoy Paris ooh la la!

Re: So far so good!

Posted: Wed Jul 01, 2015 11:53 pm
by sandraW
Hope you enjoy Paris Steve, and that the results are good enough to go back to your 3 weekly treatments, the fox is debilitating, I think its the cumulative effect, your body takes such a battering, take care sandrax

Re: So far so good!

Posted: Thu Jul 02, 2015 8:45 am
by MSH
Good to hear things are going well, and enjoy your trip to Paris. I'm on a three weekly cycle myself and it's very useful having the extra week. Strictly speaking without oxaliplatin it's Folfiri. I'm sure we have much to learn about how best to use this regime.

Re: So far so good!

Posted: Fri Jul 03, 2015 3:08 pm
by RLF
I hope you have a great time in Paris, I love it there. Good luck for the scan results and fingers crossed you can spread out the treatment to 3 weeks again.
Rob

Re: So far so good!

Posted: Tue Jul 14, 2015 4:07 pm
by Slewis7313
A couple of developments here in Wales. The CT scan showed the Liver to be clear and the original site to be the same size, though the mass could contain harmless scar tissue as the result of Nanoknife. Apparently, none of the scans can reliably show what is scar tissue. The scan also showed a constriction of some kind betweem the stomach and duodenum which would explain my occasional issues with sickness. I will be having a Barium meal test to better isolate the problem. I had this test a year ago, so they will be able to compare both sets of results. They may then consider a stent (by endoscopy) between the two organs to ease the passage of food. Chemo is still going ahead tomorrow.

I'll update you all later this week when I've got the Tumour Marker results.

Steve
X

Re: So far so good!

Posted: Tue Jul 14, 2015 9:26 pm
by Didge
Good news, Steve. Keep us posted as always! X

Re: So far so good!

Posted: Tue Jul 14, 2015 9:34 pm
by J_T
Good to hear liver is clear and status quo on pancreas :)

Hope you get this 'constriction' sorted so don't have to feel sick!

best wishes

Julia x

Re: So far so good!

Posted: Wed Jul 15, 2015 6:48 am
by jay
Great news about your liver Steve,
love Jayne
x

Re: So far so good!

Posted: Thu Jul 16, 2015 11:04 pm
by Slewis7313
Well, the Tumour Marker was an unpleasant surprise. It has jumped from 1188 to 2314. I hope the Nanoknife is still the initial cause of this and that it will settle down again. I have emailed the good Prof. For his thoughts and will of course discuss with my Oncologist next week. I must not forget that both recent CT scans picked up nothing of immediate concern, so fingers crossed! If there are no answers, I think I'll be looking at a PET scan soonest!


Steve
X

Re: So far so good!

Posted: Fri Jul 17, 2015 12:55 pm
by J_T
Hi Steve, sorry to hear that but didn't you have a high tumour marker once before that turned out to be a 'blip'? Hopefully same here.

Hope you continue to be well.

Regards
Julia x

Re: So far so good!

Posted: Fri Jul 17, 2015 2:15 pm
by sandraW
I think Carl's markers went up after his treatment didn't they? so lets keep those fingers crossed good and tight take care sandrax

Re: So far so good!

Posted: Sun Jul 19, 2015 10:38 am
by EmmaR
Steve like I always tell you keep up that positivity !
Emma x

Re: So far so good!

Posted: Wed Aug 05, 2015 6:36 pm
by Slewis7313
Several developments here, but not perhaps what we wanted. The sickness has not improved, so I am to have a Barium meal test with a view to fitting a Stomach/Duodenum stent to help.

Perhaps more worrying is that my Tumour Marker is up again at 3125. My Oncologist is now convinced that my Folfiri is no longer effective and I am to switch to Gemcitabine/Abraxane as soon as funding can be sorted out.

The optimism after the NanoKnife is waning somewhat and the future seems uncertain for me at the moment. But.......we are still hitting it and I had previously responded well to Gemcitabine, so fingers crossed as ever!


Steve
X

Re: So far so good!

Posted: Wed Aug 05, 2015 7:18 pm
by sandraW
Hi Steve,
Sorry the news is not so good, but.. try not to let it get you down. I am sure after a few days that positivity will be back again, as you say you did well on the Gemcitabine last time and with the Abraxane added in hopefully you will knock its socks off again. Thinking of you and sending love to you and all your lovely family sandrax xx