A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: So far so good!

Postby kittycat » Wed Jul 01, 2015 8:29 pm

Enjoy your holiday Steve, hope you feel a bit better soon.

Sue

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Wed Jul 01, 2015 10:24 pm

You are still doing well Steve. Good luck with the appointments and enjoy Paris ooh la la!

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: So far so good!

Postby sandraW » Wed Jul 01, 2015 11:53 pm

Hope you enjoy Paris Steve, and that the results are good enough to go back to your 3 weekly treatments, the fox is debilitating, I think its the cumulative effect, your body takes such a battering, take care sandrax

MSH
Posts: 228
Joined: Tue Apr 30, 2013 11:03 pm

Re: So far so good!

Postby MSH » Thu Jul 02, 2015 8:45 am

Good to hear things are going well, and enjoy your trip to Paris. I'm on a three weekly cycle myself and it's very useful having the extra week. Strictly speaking without oxaliplatin it's Folfiri. I'm sure we have much to learn about how best to use this regime.

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: So far so good!

Postby RLF » Fri Jul 03, 2015 3:08 pm

I hope you have a great time in Paris, I love it there. Good luck for the scan results and fingers crossed you can spread out the treatment to 3 weeks again.
Rob

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Tue Jul 14, 2015 4:07 pm

A couple of developments here in Wales. The CT scan showed the Liver to be clear and the original site to be the same size, though the mass could contain harmless scar tissue as the result of Nanoknife. Apparently, none of the scans can reliably show what is scar tissue. The scan also showed a constriction of some kind betweem the stomach and duodenum which would explain my occasional issues with sickness. I will be having a Barium meal test to better isolate the problem. I had this test a year ago, so they will be able to compare both sets of results. They may then consider a stent (by endoscopy) between the two organs to ease the passage of food. Chemo is still going ahead tomorrow.

I'll update you all later this week when I've got the Tumour Marker results.

Steve
X

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: So far so good!

Postby Didge » Tue Jul 14, 2015 9:26 pm

Good news, Steve. Keep us posted as always! X

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Tue Jul 14, 2015 9:34 pm

Good to hear liver is clear and status quo on pancreas :)

Hope you get this 'constriction' sorted so don't have to feel sick!

best wishes

Julia x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: So far so good!

Postby jay » Wed Jul 15, 2015 6:48 am

Great news about your liver Steve,
love Jayne
x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Thu Jul 16, 2015 11:04 pm

Well, the Tumour Marker was an unpleasant surprise. It has jumped from 1188 to 2314. I hope the Nanoknife is still the initial cause of this and that it will settle down again. I have emailed the good Prof. For his thoughts and will of course discuss with my Oncologist next week. I must not forget that both recent CT scans picked up nothing of immediate concern, so fingers crossed! If there are no answers, I think I'll be looking at a PET scan soonest!


Steve
X

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Fri Jul 17, 2015 12:55 pm

Hi Steve, sorry to hear that but didn't you have a high tumour marker once before that turned out to be a 'blip'? Hopefully same here.

Hope you continue to be well.

Regards
Julia x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: So far so good!

Postby sandraW » Fri Jul 17, 2015 2:15 pm

I think Carl's markers went up after his treatment didn't they? so lets keep those fingers crossed good and tight take care sandrax

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: So far so good!

Postby EmmaR » Sun Jul 19, 2015 10:38 am

Steve like I always tell you keep up that positivity !
Emma x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Wed Aug 05, 2015 6:36 pm

Several developments here, but not perhaps what we wanted. The sickness has not improved, so I am to have a Barium meal test with a view to fitting a Stomach/Duodenum stent to help.

Perhaps more worrying is that my Tumour Marker is up again at 3125. My Oncologist is now convinced that my Folfiri is no longer effective and I am to switch to Gemcitabine/Abraxane as soon as funding can be sorted out.

The optimism after the NanoKnife is waning somewhat and the future seems uncertain for me at the moment. But.......we are still hitting it and I had previously responded well to Gemcitabine, so fingers crossed as ever!


Steve
X

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: So far so good!

Postby sandraW » Wed Aug 05, 2015 7:18 pm

Hi Steve,
Sorry the news is not so good, but.. try not to let it get you down. I am sure after a few days that positivity will be back again, as you say you did well on the Gemcitabine last time and with the Abraxane added in hopefully you will knock its socks off again. Thinking of you and sending love to you and all your lovely family sandrax xx