A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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MSH
Posts: 228
Joined: Tue Apr 30, 2013 11:03 pm

Re: So far so good!

Postby MSH » Wed Jul 09, 2014 4:50 pm

Must be responding to the treatment, if it keeps dropping at that rate it'll be normal next week.

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: So far so good!

Postby jay » Wed Jul 09, 2014 7:16 pm

wonderful news Steve xxx

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: So far so good!

Postby EmmaR » Wed Jul 09, 2014 8:05 pm

Steve so pleased for you .
Emma x

LMD
Posts: 120
Joined: Tue Apr 15, 2014 10:06 pm

Re: So far so good!

Postby LMD » Wed Jul 09, 2014 10:11 pm

Great news!
Thank you for sharing...
Thinking of you and wishing you well...
X

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: So far so good!

Postby belgrade » Wed Jul 09, 2014 11:34 pm

Brilliant!!!!

Long may it last.

Hilary

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Sat Jul 12, 2014 10:43 am

What they all said!!great stuff!

Julia x

Fifi

Re: So far so good!

Postby Fifi » Sat Jul 12, 2014 12:25 pm

Great to hear your number is coming down. My dads number was 2653 in March and is now 779. You are doing really well Steve. You should book yourself another holiday to celebrate.

Leila xx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Sun Jul 13, 2014 5:37 am

Thanks all. Funnily enough Leila, we have agreed a break in treatment of just one cycle and will be flying to Jersey for 5 nights on 27th August. As I am in the middle of treatment, we are not venturing too far away, but seriously looking forward to it especially in light of the great CA19-9 results.
I am at day 5 of my fifth Folfirinox cycle and it has settled down really well. No sickness at all, just manageable Neuropathy which improves daily, a little thrush and a great appetite. I certainly hope this is a sign of things to come.

Enjoy the rest of your weekends!

Steve
X

wackywacky
Posts: 99
Joined: Thu May 01, 2014 10:25 am

Re: So far so good!

Postby wackywacky » Sun Jul 13, 2014 10:45 am

A holiday, thats more good news, plus chemo settled more good news from you, keep this good news coming x

cbrooks
Posts: 14
Joined: Tue Jan 28, 2014 11:53 pm

Re: So far so good!

Postby cbrooks » Mon Jul 14, 2014 8:51 pm

haven't been on here for a while steve but have been wondering how you were doing, fantastic news, chuffed for you, everything seems to be going in the right direction. sending heaps of positive vibes your way! Catherine x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Thu Jul 17, 2014 4:08 pm

So, I met the Oncologist today and we jointly celebrated the amazing news regarding the massive drop in my Tumour Marker from 2,100 to 766! We also discussed my break in treatment (missing 1 cycle) to allow us to have a little Holiday and all good news here as well.

I then asked if the good news regarding the marker was a general indication that there is a light at the end of the tunnel for my current treatment. However, as the disease has now become secondary, it apparently reacts in a different manner to locally advanced and we should therefore not let it 'get away from us again', as bringing a secondary back under control becomes more difficult with time. The bottom line is that I would now appear to be on chemo permanently to stay on top of the thing for as long as possible! The feeling is that longer breaks might put me at risk and we simply need to keep the pressure up. Not the response I was expecting and I do understand what she is telling me, but it sort of feels like bad news.

How does this align with your collective experiences out there?


Steve
X

wackywacky
Posts: 99
Joined: Thu May 01, 2014 10:25 am

Re: So far so good!

Postby wackywacky » Thu Jul 17, 2014 5:23 pm

Hi Steve sorry about the so so news, the week before we started the chemo oncologist basically said to us 3 weeks on 1 week off (Gemcitabine and Abraxane ) till clock out, or until scans show chemo not doing anything bit of a bummer but like you we are going for it. X

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Thu Jul 17, 2014 6:38 pm

Steve keep on keeping on. You seemed to have settled into the Fox very well so if you need more treatments than first thought you should be okay for handling more if necessary. You continue to be an inspiration to all.

Best wishes
Julia x

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: So far so good!

Postby Bee » Thu Jul 17, 2014 10:43 pm

Hi,
Can't really help with our experience, Chris never really got going on the folfox as things changed so suddenly , and I don't really know what his markers were doing, so many things happened in quick succession, they weren't the priority.
All I can say is continue to enjoy the good news that you have , we know that this sneaky disease likes to throw bad news our way. as Julia says, keep on keeping on and have a lovely break away.

Bee xx

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: So far so good!

Postby sandraW » Thu Jul 17, 2014 11:27 pm

Sorry to hear your bit of bad news Steve, Trevor's tumour markers are going up again, and the Professor said he would be going back on treatment if they did, so we will wait to see what he tells us. I suppose we just have to be thankful that both of you feel well at the moment, take care sandrax