A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

Moderator: volmod

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: So far so good!

Postby EmmaR » Tue Jun 24, 2014 12:11 am

Better late than never Happy Birthday Steve your results were a nice extra little prezzie keep well and happy .

Emma x

InfoForMum
Posts: 332
Joined: Mon Aug 19, 2013 12:01 pm

Re: So far so good!

Postby InfoForMum » Tue Jun 24, 2014 2:39 am

Extra late addition to the birthday wishes. Hope some good laughs had with or without a drink or three.

Been thinking of you on your furry fox journey and hoping the little livery buggers get blasted.

Thank you for taking time out to post such lovely words on my thread.

Love & hugs

Sarah
Xxx

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: So far so good!

Postby Cathy » Tue Jun 24, 2014 12:47 pm

A belated happy birthday from me too Steve.

Treat yourself to some Palmers ;)

Cathy xx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Tue Jun 24, 2014 5:20 pm

Don't start me on the Palmers again Cathy!!

Steve
X

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: So far so good!

Postby Didge » Wed Jun 25, 2014 9:19 am

Belated birthday wishes from me too, Steve x

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: So far so good!

Postby Bee » Wed Jun 25, 2014 8:18 pm

Hi Steve,
I rarely post on here now but do lurk and follow progress. Had to log on and wish you a belated happy birthday. I am delighted you have reached a milestone birthday and have been able to celebrate with your family. I continue to follow your progress and wish you well. I know Chris would also have been pleased for you and echoed my wishes, although he never posted he knew about you as your treatment and condition was so similar to his in the early days.

Keep fighting

Bee xx

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: So far so good!

Postby nikkis » Wed Jun 25, 2014 9:34 pm

Sorry for hijacking Steve, but just wanted to say hi Bee,my fellow HV, I think of you all the time,
Love,
Nikki

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Thu Jun 26, 2014 4:24 am

Thanks Bee, good to know you are still watching over us. Hijacks are most welcome here Nikki!

I started my 4th Folfirinox cycle yesterday and as you can see from the time stamp, the body clock is again confused....otherwise feeling OK.

Steve
X

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: So far so good!

Postby Bee » Fri Jun 27, 2014 9:28 pm

You too Nikki!

Can you private message on here, anyone know? If not perhaps I will ask nurses to send you an email with my contact x

Sorry Steve! X

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: So far so good!

Postby nikkis » Fri Jun 27, 2014 9:57 pm

No you can't private message on here, but yes get them to give you my email Bee.
Thanks Steve, you night owl, Paul normally takes a sleeping tablet for a couple of nights post chemo, and that does the trick.

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Sat Jun 28, 2014 8:52 am

Need a little advice please. The chemo is going OK, though the neuropathy is worse (hands and feet) and I seem to now have thrush. Is there any thrush treatment available without prescription to tide me over until I can ask my specialist nurse for something on Monday?

Thanks in advance!

Steve
X

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: So far so good!

Postby Didge » Sat Jun 28, 2014 9:47 am

Probiotics are supposed to help. Get someone to ask at a health food shop for best option. I'm assuming it's oral thrush? You can get probiotic capsules which are stronger than the yoghurts people use.

MSH
Posts: 228
Joined: Tue Apr 30, 2013 11:03 pm

Re: So far so good!

Postby MSH » Sat Jun 28, 2014 10:35 am

Steve, most of the anti-thrush stuff doesn't need a prescription you should be able to buy nystatin oral suspension from most chemists. I never had it in my mouth, just some mouth ulcers but I did get some sort of fungal lesion on my cheek which cleared quickly enough with canesten.

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Sat Jun 28, 2014 12:11 pm

Thanks both, Margaret is heading into town to see what she can find.

Steve

SueH
Posts: 18
Joined: Fri Mar 21, 2014 9:33 pm

Re: So far so good!

Postby SueH » Sun Jun 29, 2014 5:08 pm

Hi Steve
Hope your wife has managed to get a remedy. Re your sleep patters my husband took levomepromazine also known as Nozinam for a few nights after chemo it is a relaxant and helps you sleep as well as an anti sickness med so it can be very useful.

Sue H