A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

Moderator: volmod

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: So far so good!

Postby belgrade » Sat Feb 08, 2014 5:20 pm

Hi Catherine,
Sorry to hear about your Dad's diagnosis but I'm sure you will get plenty of advice and support from this forum.

Emma,
Interesting to see you are from Mid-Glamorcan, as I live near Aberdare. Perhaps we could have a coffee some time.

Steve,
I shan't comment on Wales's performance today!!!

Regards to all,

Hilary x

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: So far so good!

Postby laura » Sat Feb 08, 2014 11:44 pm

hi mike, just a quick note as i shouldn't be on the "patients" forum.

we/bri were never given any ca-19 results though we both knew about them, { me going on 73 and bri 65 next week] but our oncologist and team still always want to know how bri is feeling and always ask if there have been any changes in what he achieves, they too assure us that how he feels and looks is such a good indicator of how he is.
we are now 4 years from diagnosis [ wowee ] and seen every 6 mths, with open app if needed.

so dont think its to do wth your age!!!! lol
keep on keepin on, love laura xxx

cestrian
Posts: 220
Joined: Mon Jun 03, 2013 12:20 pm

Re: So far so good!

Postby cestrian » Sun Feb 09, 2014 8:13 am

Thanks Laura

I think I post all over the place on here so don't think you need to worry too much which forum you're on as it's surely all about mutual support. Apologies to mods if this is against the rules!

It is great to hear of stories like Brian's and I will ask specialist about markers on Wednesday. Whether I'll get an answer is another matter!

Love and Peace

Mike xx

cbrooks
Posts: 14
Joined: Tue Jan 28, 2014 11:53 pm

Re: So far so good!

Postby cbrooks » Sun Feb 09, 2014 12:38 pm

Thanks Steve, (and Emma, cathy and mike)for the kind comments, steve hope you enjoyed yourself at the grand last night
will suggest to my parents about maggies, or maybe when im down in singleton when dad goes in for biopsy I will take mum up there for a cuppa and just introduce it to her and yes It would be great to meet up for a cuppa up there aswell. will stay in touch. will keep coming on this forum as I know It will help myself. even if my parents heads are in the clouds about the whole thing. Knowledge is power!! thanks so much again everyone and good luck for tests this week Steve, positive thinking only way to go. you have inspired me! Catherine :-)

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: So far so good!

Postby Bee » Mon Feb 10, 2014 7:48 am

Hi,
Steve, keeping everything crossed it's just a blip and nothing more. Good luck and keep us posted .

Bee xx

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: So far so good!

Postby EmmaR » Mon Feb 17, 2014 10:37 pm

Hilary ,
I think I am a little too far from you for meeting for coffee but Cardiff maybe be a mutual meeting place if you want my email address to know my location could you contact the forum team it would be good to email each other .

Hope everyone else is ok and keeping strong and fighting the fight !!

EmmaR x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Mon Feb 17, 2014 11:11 pm

Thanks Emma, a meet would be good. I spend a lot of time in Newport (my real home) so meeting somewhere in the middle would work for me.

Steve
X

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: So far so good!

Postby EmmaR » Mon Feb 17, 2014 11:53 pm

Steve,
Thanks a meeting in Cardiff would be good will wait to hear from Hilary , if you want my email address please contact the forum and maybe we three can meet up .

Emma x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Tue Feb 18, 2014 12:08 am

Jeni / Di, could you help with the email address please?

Steve

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: So far so good!

Postby belgrade » Tue Feb 18, 2014 6:40 pm

Hi Both,
Have emailed the team today to exchange email addresses. Would be lovely if we could meet up for a chat and to put faces to names.
Take care,
Hilary

PCUK Nurse Jeni
Posts: 1099
Joined: Mon Jun 14, 2010 1:30 pm

Re: So far so good!

Postby PCUK Nurse Jeni » Wed Feb 19, 2014 10:02 am

No problem Steve/Emma - can sort an "e-meet" for you both!

Jeni.

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Wed Feb 19, 2014 12:08 pm

Just a quick update to say my CT scan is Wednesday (26th) with a review the next day with my Oncologist. Still feeling fine, so hoping it will indeed turn out to be something and nothing (if such a thing exists in the world of PC!).

Steve
x

PCUK Nurse Jeni
Posts: 1099
Joined: Mon Jun 14, 2010 1:30 pm

Re: So far so good!

Postby PCUK Nurse Jeni » Wed Feb 19, 2014 4:44 pm

Well we should all be where you are Steve (geographically I mean! ) CT one day and a review the next day?? Impressed! Well, I am assuming the review will include the CT results, or maybe not??

Whatever Steve, hope it all goes really well, and good luck Friday night against Les Blues!

Jeni.

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Wed Feb 19, 2014 5:25 pm

Good point about the dates Jeni, but we were so concerned initially that we put pressure on them to speed things up if possible. The scan date could not be bettered, so they suggested a quick review and expect (not guaranteed) the result of the scan will be available. It may backfire, but if the results are not available, I have no doubt another consultation will be scheculed pretty quickish! The really do try to help in any way they can.

Looking forward to beating France on Friday evening. We don't really mind losing to the Irish (just as well).

We have a full day as we are going to an Eastenders charity lunch at the Marriott in Swansea on Friday. Janine will be there, along with 'Dirty Den' cocktails and Pat Butcher earring competition (ladies only I believe). All in aid of Maggies.

Steve
X

PCUK Nurse Jeni
Posts: 1099
Joined: Mon Jun 14, 2010 1:30 pm

Re: So far so good!

Postby PCUK Nurse Jeni » Thu Feb 20, 2014 11:09 am

Oh that sounds exciting Steve! (The Eastenders evening!) Quite a few fun things there! I am sure you will have a great evening. Don't forget your earrings, just in case!

Well, Steve, its not impossible to have scan results the day later. I remember a time when the hospital where I worked used to report the scans on the day, and release the report to typists, so even if it was not on the system, the result could be obtained. Sometimes too, they do a verbal initial report, which they can pass onto the consultant. It all depends. You might find that they will have "some" result for you Steve. Its not impossible - just depends on who is available at the time to carry out the scan and report it. I know many consultants do meet with the radiologists to go over scans as well, and get measurements, especially if the person is on a clinical trial of any sort. No doubt each hospital have their own routines and ways of working.

Yes, do beat France please! Then, pressure on us for the England game! Oops! It will be a battle, as ever, but more at stake this time!

Take care Steve.

Jeni.