A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

Joint pain?

Postby Sones » Sat Nov 24, 2012 9:45 pm

Hi I had whipples surgery just over a year ago followed by six months of chemo which finished at the end of May this year. Over the last two/three months I have been experiencing pain in my elbow and wrist joints - my consultant doesn't think it's anything to do with the PC but arranged for another CT scan which I had yesterday. My question is has anyone else experienced any similar joint pain having had similar treatment?

Sue

suef
Posts: 103
Joined: Fri Jun 25, 2010 1:58 pm

Re: Joint pain?

Postby suef » Sun Nov 25, 2012 10:33 am

Dear Sue,

Congratulations of getting through your Whipple. I had a Whipple a couple of years ago, did not have any joint pain and have not heard of it affecting anyone else in this way.

Hope you make good progress with your recovery!

All the best from another Sue,

SueF

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: Joint pain?

Postby susikus » Sun Nov 25, 2012 12:27 pm

Oh I just have to make this a triple Sue thread!

Have you been to see your GP Sue? Because this is far more likely to be coincidental rather than causal I would have thought...

hth
Sue

Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

Re: Joint pain?

Postby Sones » Sun Nov 25, 2012 5:56 pm

Hi Sue and Sue thank you so much for taking the time to reply. Yes I ave seen G.P and consultant and have been referred to a rheumatologist ( consultant thinks I may have arthritis), worrying myself silly at moment but had a scan on Friday so will know more on Thursday when I go for the results.
Thanks again. Sue.

dabber66
Posts: 36
Joined: Tue Nov 20, 2012 9:39 am

Re: Joint pain?

Postby dabber66 » Mon Nov 26, 2012 8:46 am

Hello Sue, I cannot offer any advice about joint pain being anything to do with your op. only offer some support - we all worry about the unknown, and it is certainly all unknown to us all who have had such major surgery. You have had a scan, so, hopefully this will put your mind at rest, and I will be thinking about you. Carole xx

Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

Re: Joint pain?

Postby Sones » Mon Nov 26, 2012 9:43 am

Thanks Carol, I've looked and not been able to find anything on the Internet either.x

dabber66
Posts: 36
Joined: Tue Nov 20, 2012 9:39 am

Re: Joint pain?

Postby dabber66 » Mon Nov 26, 2012 10:46 am

Sometimes we see too much on the internet Sue!!!! (experience!) Thursday is not long, know it will seem it, and your journey back to the hospital will be fraught when you go to hear the results - will never forget my journey, for the results of my very first scan - you seem very strong, you have come this far, anyway, I need you now!! take care. Carole.

Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

Re: Joint pain?

Postby Sones » Mon Nov 26, 2012 8:41 pm

Hi Carole, agree with you about the Internet and I know I should leave well alone but just get drawn into it. In one way I want Thursday to come and in another I wish It weeks away. During chemo I developed a stiffness in my ankles/feet and was told this could be due to nerve damage? I have had a scan in June which was ok and was due to have another one in Dec/ Jan but has now been brought forward. Anyway thanks for your support, really appreciate it. Hope all is well with you.
Take care. Sue.x

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: Joint pain?

Postby laura » Tue Nov 27, 2012 12:12 am

hi there sue, re you worrying bout thursday, your not alone, honest, we too go to see oncologist for result of 3monthly scan, done last friday, this ongoing at 3monthly since aug 2010, it doesnt get any easier, but it will come and go, for you and us!! be thinking of you and hoping for good results, they do tend to bring scans forward if you have any concerns, this is i believe, to alleviate worries waiting for your timed scan[lol] doesnt work tho does it?
take care chin up, be strong and positive, love laura xxx

Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

Re: Joint pain?

Postby Sones » Tue Nov 27, 2012 8:15 am

Thank you Laura.x

Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

Re: Joint pain?

Postby Sones » Thu Nov 29, 2012 5:34 pm

Well good news!!! Scan is clear and tumour marker blood test remains at 10.6 sooooo pleased. Consultant seems to think the joint pain is arthritis and totally unconnected to the cancer. Now waiting for appointment to come through to see rheumatologist.
Will sleep a lot better tonight.
Sue.x

suef
Posts: 103
Joined: Fri Jun 25, 2010 1:58 pm

Re: Joint pain?

Postby suef » Thu Nov 29, 2012 8:55 pm

Dear Sue,

That is great news! Well done!

Best wishes,

Sue F

dabber66
Posts: 36
Joined: Tue Nov 20, 2012 9:39 am

Re: Joint pain?

Postby dabber66 » Thu Nov 29, 2012 10:18 pm

Wonderful Sue, so pleased for you, have a good nights sleep!! Carole x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: Joint pain?

Postby yorkypaul » Thu Nov 29, 2012 10:38 pm

That's brilliant news Sue!! Sleep well.

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: Joint pain?

Postby laura » Thu Nov 29, 2012 11:42 pm

so pleased for you sue, not that having arthritus is a walk in the park !! biut really good news love laura xx