A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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taoofpooh
Posts: 3
Joined: Tue Mar 05, 2019 11:12 am

Some general advice please.

Postby taoofpooh » Thu Mar 07, 2019 10:15 am

Hello. My name is Paul. 52 years old. Like many on here I was diagnosed with PC after a few GP visits for tummy problems, then suddenly a a few weeks ago developed jaundice and was taken into hospital where they did a CT scan and bloods which showed an inoperable mass on the pancreatic head and nearby large blood vessels. Following a MDT, I was called to say I would get an appointment to have an ERCP and bile stent put in to relieve the jaundice and then I would receive a letter for a meeting with the oncologist.
My questions are what is the typical timescales people have waited for the ECPR/Stent and then meetings and treatment? Was the bile stent plastic or metal? Did it relieve the jaundice? Were enzyme supplements given and if so at what point?
I also live on my own with little practical support when/ if the time comes I need some.
Any information/advice would be really welcome.
Thank you.
Paul.

PCUK Nurse Jeni
Posts: 1088
Joined: Mon Jun 14, 2010 1:30 pm

Re: Some general advice please.

Postby PCUK Nurse Jeni » Thu Mar 07, 2019 3:28 pm

Hello Paul,

Many thanks for your post and welcome to the forums, no doubt not a place you thought you would find yourself.

Paul, I will email you directly with some information.

Kind regards,

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707