A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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Sparklyrebecca
Posts: 1
Joined: Sun Dec 02, 2018 11:03 am

CBD oil - experience

Postby Sparklyrebecca » Tue Dec 04, 2018 12:04 pm

Hi all

My dad has just been diagnosed. I read and heard good things about the CBD oil. I spoke to Nikki, one of the nurse specialist and she recommended posting on here to ask about patients experience with it and where they sourced it from. Can anyone advise? any help will be greatly received. Many thanks

PCUK Nurse Dianne
Posts: 287
Joined: Tue Aug 14, 2012 3:29 pm

Re: CBD oil - experience

Postby PCUK Nurse Dianne » Thu Dec 06, 2018 2:04 pm

HI Sparklyrebecca,

I am sorry to hear that you are hear due to Dad's diagnosis, and I am sure this must be an overwhelming time for you all. From a perspective of CBD oil (this does not contain the THC component you would find in Cannabis) this is available in local high street stores, ie Holland & Barrett and possibly other health food chains. You are also able to purchase this from online providers, such as Amazon and others, however we suggest if buying this from an online store, do ensure that this is from a reputable supplier.

I am aware that some people may be reluctant to share experiences due to the nature of this being a 'cannabinoid' and some of the recent media and legalisation issues with this. Hopefully people will not be put off by sharing some of their experiences with you, and of course please do feel free to have another chat with us if you wish Sparklyrebecca.

Kind regards,

Dianne
Pancreatic Cancer Specialist Nurse
Pancreatic Cancer UK
Support Line: 0808 801 0707
Email: nurse@pancreaticcancer.org.uk

Week20
Posts: 5
Joined: Wed Dec 19, 2018 4:54 am

Re: CBD oil - experience

Postby Week20 » Thu Jan 03, 2019 11:28 pm

Hi sparklyrebecca
I have heard this helps and would also like to know about it if anyone has more information
On using it.
Thanks
Love to you and your dad

drtzzr1100
Posts: 7
Joined: Fri Dec 07, 2018 6:20 pm

Re: CBD oil - experience

Postby drtzzr1100 » Fri Jan 04, 2019 12:20 pm

Hello my husband purchased the high in THC oil also known as Rick Simpson oil which is illegal in this country and had to be bought via a third party and is very expensive . For 3 months it significantly helped his symptom control in relation to pain nausea sickness etc.., and he didn’t take any prescribed medications at all. Now unfortunately he is on end of life care and has had to stop taking this and is now on morphine syringe driver plus other medications to manage his symptoms. As there is not enough medical information to know what the actual effects of it it’s hard to know what it did in real terms but I do know it gave him 3 months of feeling relatively well and allowed him to have a good quality of life even if only for that short time.
I was anxious at first as it’s not regulated etc..,but our experience was positive not sure if others will admit to trying this but in our opinion he was terminal at 58 years old so nothing was off the cards legal or otherwise.
Hope this helps in some way x

Week20
Posts: 5
Joined: Wed Dec 19, 2018 4:54 am

Re: CBD oil - experience

Postby Week20 » Tue Jan 08, 2019 6:42 pm

I have just bought CBD and THC oil yes it is expensive but if it helps then all good. I am I bit anxious about taking it. I still haven’t started any treatment, which is worrying me, but I don’t want to make things worse by taking these oils. Does anyone know if they interact with other medications or chemo ?

PCUK Nurse Jeni
Posts: 1088
Joined: Mon Jun 14, 2010 1:30 pm

Re: CBD oil - experience

Postby PCUK Nurse Jeni » Wed Jan 09, 2019 3:42 pm

Hi There week 20,

Thanks for your post.

Sometimes, things like this can interact with chemotherapy.

The best thing to do is to discuss this with your oncologist in order to be sure there is no adverse harm in taking them. They will be best placed to let you know if its OK to continue it with the chemo.

Its a simple case of checking so please don't be anxious to discuss it with them.

Kind regards,

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

patrigib
Posts: 48
Joined: Sat Mar 05, 2016 7:53 pm

Re: CBD oil - experience

Postby patrigib » Wed Jan 09, 2019 10:57 pm

I bought some cbd, very high concentration ( 18 %). My husband tried it once and said it doesn't help, but I think he only relies on chemical medication. I use it for my headache. It works but not for a long tie. Hope this can help.
Patricia