What can I say.....came home feeling rotten and in pain not because of the chemo but still because of still feeling 10 months pregnant. With every movement/jar/bump, break at lights etc etc in the car on way home I felt was a personal attack on my stomach just for me....the things you think to yourself huh!?
Had to go Drs on way home who did a little search and feel if you get me
who thinks the constipation is higher up and an enema wouldn't really do the trick, however sent district nurse round an hour or so later just to try, it helped a bit, but because I'd done a home one the day before too, gave me bad cramps.....geez this is such a whiny moan 
. Dr says I have to take the nasty medicine that made me sick before as that is the only thing that it is going to work! He felt around tummy and does not think it is fluid build up which is good right??Proceeded then to have row with new wife about nothing other than a build up I think of the unknown and trying to be there for each other but actually just being snappy. Jane not happy I wouldn't get more help and ring Mcmillian nurse, me probably trying to be braver, and hoping magic hot water bottle would do its stuff! Up shot we slept in seperate beds!
However, we have now sorted all of that out, and have booked to go away for a couple of days to Bakewell for some time for us....Jane did want to do the whole Theartre London thing, but in the end I kind of admitted even though I would love to do that I was scared I may be not well and spoil her time away and that would just make me feel anxious, so a nice peaceful retreat where there are places to visit seems a good choice. What do you think?
As for the first folrinox session, nurses were great, explained everything more than once, made you feel welcome, introduced staff, made us feel as relaxed as we could, felt mostly hot and sweaty which I still am, but that could also due to the fact I had both my ovaries removed a couple of years back due to endometriosis and am therefore on HRT for going through the change. Towards the end I felt a bit light headed and tired, but quite capable to just plod on out after it was all done. Like I say it was just then the travelling back when the swollen tummy kicked in and I started to feel sorry for myself....had few tears at Gp surgery.
Ok night sleep after enema woke up at 4 a.m, just took a paracetamol thinking if I can try and cope with that and not if i not take the morphine maybe I could eventually clear the constipation, or whatever it is!? That didn't work so well morphine at 5 a.m. Woke again around 10, forced water, then tea, then small bowl of cornflakes whilst feeling sickie, but knew I had to try! Think today I've managed about 3 ltrs of fluid to try like you all say to push the chemo through. Apart from that guys I do not seem to have any other side effects! Do they come later?
Question you may be able to help with, my tummy actually goes massive after I've eaten, like 5 to 10 mins after, the most I eat is a tin of soup and bread roll or cornflakes or rice krispies at the moment. I take 40,000 creon if I have soup or cereal, and maybe 10,000 for a packet of ringo crisps, or a half packet of fruit polo's....am I taking too much, not enough....is my actual tummy swollen problem not constipation but something happening to my tummy when I eat to make it so swollen?
I have baffled on I believe......mostly I think because I took my steroids too late,and now a sleeping pill is fighting against it. Thanks for reading this......i know it doesn't seem a pleasant read, but I think I just want to be honest.......and you know what.....it wasn't as bad as what I was expecting! Roll on tomorrow to release me from my bottle!
Night, and thanks again for listening.x