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Help !!!

Posted: Wed Apr 04, 2018 11:47 pm
by rharrison1971
Hi I’m Robert aged 46. I’ve been suffering a lot for the past 5 months and finally got a results back from MRCP with 1 cm cystic lesion on the head of my pancreas. Given the constant abdominal pain and back ache I’ve been suffering and terrible wind I’m convinced this is malignant. I’m hoping that it might be operable given the size. If anyone is out there who can spare a few minutes to chat about life that would be really appreciated... I’m feeling lonely and scared atm :(

Re: Help !!!

Posted: Thu Apr 05, 2018 12:57 pm
by PCUK Nurse Jeni
Hi Robert,

Thank you for your post, and welcome to the forum - although I am sure that you would rather not be here.

I am sure that its a worrying time for you right now - I hope its OK, but I will e mail you directly.

Kind regards,

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Re: Help !!!

Posted: Fri Apr 06, 2018 3:51 pm
by rharrison1971
Thank you for your kind and comprehensive email.

I will be undergoing an endoscopic examination next Tuesday to have a look at the duodenum to see if there is any ulceration there and then I will hopefully be referred for an endoscopic ultrasound of the pancreas and the cysts within it for a better evaluation of what’s going on. I have been reassured that I will be transferred to the care of the HPB team at one of the NHS specialist centres should that be necessary. This is obviously a very anxious time and thank you for your support both in the email and over the phone.

Re: Help !!!

Posted: Fri Apr 06, 2018 4:47 pm
by PCUK Nurse Jeni
Hi Robert,

This is great news - this is all very positive.

You know where we are should you need us.

Have a lovely weekend.

Kind regards,

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707