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Proud Wife
Posts: 740
Joined: Sun Jan 17, 2016 9:28 am

Re: Mum of 42 recently diagnosed inoperable PC

Postby Proud Wife » Mon Oct 17, 2016 10:07 pm

You are doing brilliant Ruth. Amazing xx

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Tue Oct 18, 2016 11:36 am

Muchas gracias Mo! Usted es una persona fantastica haciendo su mejor esfuerzo para su marido.

Thanks all for the comments. I have just had a copy of the consultation letters through from the nanoknife prof and the Doctor on Harley Street. The doctor from Harley St commented that I had excellent performance status which was nice to read. I might be a demmick on the inside but atleast I look ok from the outside!

I have read about the mistletoe therapy DG. I am not sure what to make of it. I think I will continue as I am at the current time but it's always a consideration for the future.

One thing I didn't mention from my consultation with the Harley St doc was the issue of the recent immunotherapy trial which was done on a small scale in London and has shown promise. This was a Phase 1/2 trial. There are plans to replicate this on a much larger scale as a phase 3 trial next year I think and it was suggested to me by the Oncologist to mention this to our local treating cancer centre as they can express an interest to run the trial as the idea is it will be nationwide. Unfortunately I won't be eligible for this trial as I am taking Gemcap for metastatic disease but others on here maybe eligible so watch this space.

I enjoyed myself yesterday spending my £75 voucher from the NHS for 25 years service. I bought some comfy PJ's and a pair of boots. All my forms have now been sent off for ill health retirement. It feels very strange that I am applying for this at the age of 43. Hey ho!

I am due my final liver ablations next Wednesday but guess where I will be in between now and then,..of course Spain. I think I know all the air hostesses by now.

Love Ruth x

Proud Wife
Posts: 740
Joined: Sun Jan 17, 2016 9:28 am

Re: Mum of 42 recently diagnosed inoperable PC

Postby Proud Wife » Tue Oct 18, 2016 8:28 pm

HA! HA! good for you Ruth - do they upgrade you to business class? They should!!

The very best of luck to you for next week. Hope all goes well. Will keep checking in xx

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Sun Oct 30, 2016 10:58 am

Hello all
It's exactly one year ago today that I was sat infront of my G.P and he had an extremely worried look on his face as he told me my liver function tests were all over the place and I was quickly turning jaundice. He referred me for an urgent NHS ultrasound which he said would take 1-2 weeks. I recall going home terrified. I googled all my symptoms and knew then that this was serious and probably pancreatic cancer. I could not stand the wait for the ultrasound and admitted myself to A+E on the 31st of October.

Well as we know the past year has been far from easy but I have made it to a year! I had my second liver ablation on Wednesday this week. I am still feeling tender around my abdomen. Apparently one of the tumours was right on the edge of my liver near the capsule and my bowel. The six tumours have all been ablated over two sessions. I had gemcap chemo on Friday which is the start of cycle 3. I have slept alot the past two days which isn't surprising really after this week.

We are nearly in November, Pancreatic cancer awareness month. Myself and my husband have written a quiz called the Big Purple Quiz and anyone can put on this quiz during November if they wish. You will find all the details in the fundraising section on this site. We are planning on doing several throughout November.

Keep battling on everyone. You are all amazing and I can't thank this forum enough for all the support it's given me over the past year. I have met some fantastic people over email.

Lots of love Ruth x

Dandygal76
Posts: 762
Joined: Sat Mar 12, 2016 9:49 am

Re: Mum of 42 recently diagnosed inoperable PC

Postby Dandygal76 » Sun Oct 30, 2016 1:52 pm

That is brilliant Ruth. I am so please for you and I hope you go from strength to strength. I am setting up a quiz, I want to support everyone on here in everything they do. I am glad the liver ablations went well.. when is your next scan?

You are a very strong lady and you are amazing in your approach to this.

Much love to you and your family. x

Marmalade

Re: Mum of 42 recently diagnosed inoperable PC

Postby Marmalade » Sun Oct 30, 2016 3:00 pm

You have made it through another key procedure Ruth and I am not at all surprised you are exhausted and tender. You have done so well and given so much encouragement to others on your journey. Well done!

Now you are facing the chemo and although you are strong and doing incredibly well it is daunting and I am sure you have all the reservations that others have, so I am sending love and best wishes for a trouble free passage through this next stage of treatment. We will all be here hanging around, willing you on and soaking up the bad days with you.

Much love, M xx

Justamo
Posts: 468
Joined: Sun Sep 04, 2016 10:38 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Justamo » Sun Oct 30, 2016 9:01 pm

Congratulations on your 'birthday' Ruth. You must be sore and tired, but you have achieved so much and your story is inspiring to others who are faced with an 'inoperable' diagnosis.

There should be somebody like you on every single support group forum ! We are all rejoicing with you.

I hope you are soon tucked away comfortably in Spain and enjoying a better climate.
Best love
Mo

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Thu Nov 24, 2016 7:28 pm

Hello all

Thanks so much for your last message Justamo. I missed it somehow. Well I had the results of my CT/MRI scan today. I was dreading it! What I've learned is that there is no second guessing with this disease. Until the Consultant opens their mouth and tells you what the science says you have no control or idea of what those results will say.

I am very happy with what my Consultant told me. There is no evidence of spread to other areas of my body. The six mets in my liver which were ablated over two sessions in October have greatly reduced in size and are tiny with one being negligible. They have gone from approximately 1.4 cm to 0.4 cm. My CA-19's have reduced from their highest of 1000 to 100. The combination of Gemcap chemo and ablations is working.

Of course I know this will not be a permenant position but just for now it's the reprieve we needed. It's allowed us to breath a little. The plan is to continue with further three cycles of Gemcap and rescan in three months. If there are changes I am hopeful I can have ablations again in the future.

The good thing is that with this treatment regime I can function well, I have energy and good quality of life. I did get painful mouth ulcers this time during the final week of chemo. They were very sore and made eating difficult. I've been on a week off over the past week and the ulcers have gone. I start cycle 4 tomorrow so am hoping the ulcers don't return too quickly.

We are doing well with the fundraising and this culminates in the concert we have arranged for Dec the 3rd. I'm hoping we will raise a good amount.

I will catch up with the other threads later this evening.
Ruth x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby sandraW » Fri Nov 25, 2016 1:01 am

Ruth, That's really great news, and its also good to hear that you can cope with the treatment well and don't feel too tired, and can enjoy life to the full.
Good luck, and thanks for, the fundraising, take care love sandrax xx

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Wife&Mum » Fri Nov 25, 2016 9:53 am

Wonderful news Ruth, so pleased for you and your family!
xx

Sandiemac
Posts: 69
Joined: Tue May 10, 2016 11:27 am

Re: Mum of 42 recently diagnosed inoperable PC

Postby Sandiemac » Fri Nov 25, 2016 3:13 pm

How lovely to have some good news for a change. Now have a lovely Christmas.

Love, Sandie

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby jay » Fri Nov 25, 2016 6:31 pm

Wonderful news Ruth
massive hugs Jayne
xx

Dandygal76
Posts: 762
Joined: Sat Mar 12, 2016 9:49 am

Re: Mum of 42 recently diagnosed inoperable PC

Postby Dandygal76 » Fri Nov 25, 2016 9:21 pm

That is such fab news Ruth. That post scan result feeling is great isn't it - more so I would think for the patients than us! And really good news about the liver mets and CA markers. Seems as though you may all be gearing up to have a splendid Christmas.

I am so pleased the treatment is going so well and that you are still active and have good energy levels. It is nice to have positives in this fight and to see people can do and feel well.

Hopefully the ulcers may settle down over time as your body adjusts more, I do hope so because it must be pretty horrible.

I am glad the fundraising is also going well.. we have had to defer until February to do a quiz but I think, because of the type of pub it is, we will set our own questions and base it mainly on music. I am not sure a normal quiz would work and neither does the landlord. However, add it to your totals because I would not have set off on the idea if it was not for you guys.

Much love to you and your family. xxx

Justamo
Posts: 468
Joined: Sun Sep 04, 2016 10:38 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Justamo » Fri Nov 25, 2016 10:39 pm

Totally brilliant Ruth.
It's wonderful to have success stories on here, it gives everyone hope.

Much love
Mo

Marmalade

Re: Mum of 42 recently diagnosed inoperable PC

Postby Marmalade » Fri Nov 25, 2016 11:37 pm

Fantastic Ruth, really brilliant. Much love M xx