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rachelqt
Posts: 175
Joined: Tue Sep 20, 2011 9:18 am

Re: First meeting with an Oncologist

Postby rachelqt » Sat Oct 22, 2011 7:29 pm

Hello Laura,
Im very thankful for your babble! To be honest I really dont know what I would do without this Forum. I feel i have been on here a lifetime yet its only 6/7 wks.
We are at the very beginning of our Chemotherapy journey, I just keep telling myself that this is our lifeline, its our bit of hope! That keeps us going. I know I will have so many questions and its wonderful to know that people like yourself are going through or have went through the same experience. I have read in so many posts about Creon but have no idea what its for?? Do most pc patients take it? As far as I know my dad is just on 2 types of anti sickness, which work well. He had a metal stent put in 2wks ago and also seems to be working well so far. Like your Bri the jaundice is taking its time to clear. From what I read, Bri's Chemo seems to have worked well so far for him?

The macmillan nurses are just fantastic! They really lifted dads spirts from the minute he was diagnosed. Sad thing about my dad, this cancer seems to have taken part of his soul at the minute. He just seems to be thinking all time and not opening up. I know everyone deals with this differently but I am so grateful that they are there to support him. We now have a lovely macmillam nurse who called to the house to last Thursay and is going to pop in now and again!

Thanks for your support..take care...Rachel

louiepc
Posts: 238
Joined: Wed Aug 10, 2011 10:38 pm

Re: First meeting with an Oncologist

Postby louiepc » Sat Oct 22, 2011 8:54 pm

Hi Rachael

Creon is used to help the food pass through the body better - I think it is meant to take the place of what the pancreas does. Mum has it with every meal, and depending on the amount of food that she eats - either a snack or a main meal, she has different doses. It helps making things more solid and not so runny.

I know my mum, who is normally a very private person, has found it very hard to open up, in fact it is only this last week or so, since we had the bad news that she has opened up more, and told us things that we needed to know. Normally we have just chatted and carried on.

One thing I did notice with mum when she was on the chemo, was how incredibly tired she got, and also the mood swings, she would snap at a moments notice and say things that she normally wouldn't even dream of saying out loud.

I know what you mean about this forum being a life line - I honestly don't think I could have coped these last few months, without the lovely people who are on here. Everyone is either going through or sadly have gone through what we are going through now, yet they are always upbeat and positive and it really is great having cyber friends who know exactly what you going through. Whether to have a rant, cry or laugh everyone on here is absolutely brilliant.

louie xxx

AnneD
Posts: 58
Joined: Wed Feb 09, 2011 10:45 pm

Re: First meeting with an Oncologist

Postby AnneD » Sat Oct 22, 2011 10:30 pm

Hello Rachel and Laura,
Just a little note about Creon.
The pancreas produces enzymes which pass into the intestine to digest your food.
Creon is a mixture of enzymes which can be taken to increase the levels of enzymes in the gut when the pancreas isn't working properly.
Your food can then be digested and pass into the blood.
Creon must be taken with meals so that it mixes with the food in the intestine.
It should help prevent steatorrhoea and malnutrition.
Anne

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: First meeting with an Oncologist

Postby laura » Sat Oct 22, 2011 11:39 pm

hi rachael,, bri takes creon 25000, 300mg, his dosage is 2 with breakfast, which is cereal and fresh fruit, u can eat fresh fruit on its own without creon, he takes one capsule after 2 or 3 mouthfuls and 2nd one before he finishes, the idea is that the tiny granuals spread over the food to aid digestion otherwise, i understand, the food goes through the system without any goodness being absorbed, one or two with sandwich etc one with cake or biscuit, two or three with main meal, beef is one of the hardest to digest so would always take three you will find your own level.
Bri was 18st before diagnosis, dropped 4 stone in as many weeks, is now stable at 16stone, he went throu a stage of fancying cheese and pickles and trifle [ not preggers either!!] off that now, had spag bol tonight but at lunch time had an ensure plus, luckily he doesn't mind them, i try to do whatever he fancies,sometimes he leaves it to me as he can't always make a decision?? chemo brain they say at the hosp, but he also has m.c.i. [ mild cognitive impairment] this is pre chemo,so he /we do struggle sometimes, but with my memory not so sharp we laugh with/at each other!
Yes rachael we have had good results from chemo, had a shrinkage after 12 wks, 2nd smaller one after next 12 wks, now static with no spread, i realize how very lucky we are.Although still inoperable, life is good for us on the whole, we just have a new "norm" hope this may help, and that soon you will reach a steadier level, regards to u both laura xx

PCUK Nurse Jeni
Posts: 1082
Joined: Mon Jun 14, 2010 1:30 pm

Re: First meeting with an Oncologist

Postby PCUK Nurse Jeni » Mon Oct 24, 2011 9:51 am

Hi Rachel

Laura, Louie and Anne have already given you lots of good information about Creon. But I thought it might be helpful for you to know that we have some information about the use of pancreatic enzyme supplements (such as creon) on our website http://www.pancreaticcancer.org.uk/info ... ancer/diet, and some specific information about the use of creon http://www.pancreaticcancer.org.uk/info ... t-is-creon

You may like to ask your Dad's specialist nurse about pancreatic enzyme supplements and whehter your Dad might benefit from taking them.

Best wishes,

Anna

rachelqt
Posts: 175
Joined: Tue Sep 20, 2011 9:18 am

Re: First meeting with an Oncologist

Postby rachelqt » Tue Oct 25, 2011 8:08 am

Thanks so much everyone for the advise, im going to look into the Creon. Im sure at some stage it will be needed. So far dads weight seems stable.

Laura im glad Bri is doing well and long may it continue.

Rachel x