End stage and Ascites

[lynbo]

Dear Rosie & JST

Im so sorry for your loss, my love to you and your families xxxx

[goodsyard]

Sadly my son in law was diagnosed last summer at the age of 32. We can't help thinking that his young age slowed down his diagnosis, as doctors looked for all other gut cancers first before doing a scan - which enlightened them. He's still with us,and active,not at the end stage but beyond surgery, and maybe being young and fit has helped. The real issue is pain relief. There is a well voiced view from some of the medical profession that all pain can be treated - has anyone found this to be the case?

However, I continue to be amazed at how positive the whole family and their friends are, just getting on with making the most of every single day, and my daughter's employer has granted her 6 months leave, half paid, so they can have time together with their 18 month old baby.

So whilst the overall situation, as we all know, is totally awful, I'm sharing this because I've just spent a very wet weekend with them, and we managed to have a lot of laughs. I took a mini electric blanket heat pad which is doing a brilliant warm up job.

Pain? help please.

[laura]

hello, i would assume your son in law has a specialist nurse attached to his oncology team? she certainly would talk to them, but more likely she will advise them to use his macmillan nurse, they are able to negociate with the family dr and specialist, they are well versed in adjusting, adding to, etc, all types of pain control, certainly this has been our experience of them, and hope yours also will be positive.

dont know your son in laws story, my husband now 63,also has inoperable pc, whipple was attempted in april 2010, this was followed by 19 months of chemo, things are currently static, scan due this month,

stay positive, your daughter and family are so doing the correct things, we none of us know whats in store for us, and so should always try to get something pleasurable from each day.

regards and strength to you all, laura

[louiepc]

Hi,

Firstly, I want to say how sorry I am to hear of your son-in-law's illness, such a young age. It is tragic.

Secondly, yes, all pain should be able to be managed. The best management is to keep on top of it, so even if he is not in a massive amount of pain, keep the pain relief up, as the last thing you want is to get to the point where the pain becomes unbearable. There are different medications for different forms of pain, i.e. nerve pain, blockers, etc. Speak to your oncologist/consultant and/or macmillan or whoever have been assigned to him. There is no reason for anyone to be in pain.

I am glad that you are all having good quality times and making fantastic memories. That is very good of your daughter's work, especially having such a little one too.

Take care, keep positive, things with this disease are not always on a set route, it affects people in different ways, and some people have had a good quality of life and have been able to carry on doing the things they love.

louie xxx