Luke1971 Posted June 21, 2024 Posted June 21, 2024 I finished six months of FOLFIRINOX at the end of February, 17 weeks ago. Since then I've been experiencing lingering peripheral neuropathy in my fingers and toes. It's really hard to quantify, but I think it's (very) slowly improving. I've been taking mushroom extracts and also re-started acupuncture, which might be helping. I saw my oncologist this week and was advised that it's only permanent in about 10% of patients, but it can hang around for up to two years. Does anyone else have any experiences with this that they'd like to share?
Luke1971 Posted May 2 Author Posted May 2 In the absence of any replies, I'll share my experience in case it's of any use to anyone. The neuropathy and fatigue took a long time to go completely - about nine months - but go they did, and now (14 months post-end of treatment) I'm fit, working and happy. There can be light at the end of that tunnel, in case anyone's reading.
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