Defractinib with VS-6766 trial experience

[Helenm]

Hello,

I realise this is a relatively new trial, but we wondered if there is anyone on here with experiences of being on the defractinib with VS-6766 for pancreatic cancer trial?

 

My Dad started it a couple of weeks ago but already one of the side effects is making him seriously question whether to continue. It would be good for us to talk to anyone who has experienced the trial and its side effects, if there is anyone! We understand there are only 3 hospitals/centres in the country offering the trial for pancreatic cancer and he is the first at the centre he attends.

 

[Lee W]

Hi Helen how is your Dad doing on this VS-6766 I have not heard of it.

[Helenm]

Sorry Lee I've just seen your reply, haven't been here for a while.  The trial was awful for dad, he said it was probably the worst decision he'd made throughout. The side effects were unbearable for him.