The_petal Posted April 30, 2019 Posted April 30, 2019 I had the full Whipple last year with everything out (gall bladder/spleen and Pancreas) last year and have just finished a six month course of Folfirinox which wasn't as bad as I was expecting.My scans were Ok last week and go back in 3 months.The problem is that I now have a grossly inflated stomach which looks like I have a basket ball inside my dress and seems larger than when when I was pregnant ! Any recommendations on how to get it down ~ I have just started taking diuretics as my feet are very swollen.
PCUK Nurse Jeni Posted May 1, 2019 Posted May 1, 2019 Hello Petal,Great news that you have completed your post-op chemo - how fantastic to get through all of that!Did you discuss the bloating at the time of your appointment, or was it not evident then? The bloating could be from a lack of pancreatic enzymes - I presume you are on enzymes? If so, how many do you take?It could be that they need increasing. Mint is also good for tummy issues - any form (tea, cordial etc...). If these do not prove helpful, then you may be able to get some peppermint oil capsules form the gp - called Colpermin. Do email us if these issues don't resolve. Kind regards,Jeni. Jeni JonesPancreatic Cancer Specialist NurseSupport TeamPancreatic Cancer UKemail: nurse@pancreaticcancer.org.uksupport line: 0808 801 0707
The_petal Posted May 2, 2019 Author Posted May 2, 2019 It was discussed, and tapped, without comment. Now the 40k tablets have gone I typically ally take 7*25 tablets with a meal, it was 6*40k but I think that was a bit excessive.
PCUK Nurse Jeni Posted May 2, 2019 Posted May 2, 2019 Hi Petal,Certainly a high dose.Are you able to drop us an email to outline your daily routine please, or call us so we can go through any other suggestions we might have?Best wishes,Jeni. Pancreatic Cancer Specialist NurseSupport TeamPancreatic Cancer UKemail: nurse@pancreaticcancer.org.uksupport line: 0808 801 0707
The_petal Posted May 13, 2019 Author Posted May 13, 2019 Still suffering with incredible bloating, the only thing stopping my stomach getting any larger is that my ribs are in the way, also feet and legs look like they should be on an elephant! it's all bloody painful. So looking for a cause, I have been on daily tinzaparin injections for the last year could they cause it?
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now