Week20 Posted January 4, 2019 Posted January 4, 2019 Hi all I was diagnosed with inoperable adenocarcinoma. stage 3 tumour as it involves the vessels locally at the begin of dec. I have had a stent fitted and hopefully starting chemo in the next 2weeks. My head is all over the place and my mind running a million miles an hour. Any experience, advice or knowledge good or bad is neededThanks x
PCUK Nurse Rachel R Posted January 4, 2019 Posted January 4, 2019 Hi Week20,A big welcome to the forum on behalf of the Nurses, I do hope you'll find valuable support here. I am sorry to hear of your recent diagnosis. Yes I can only imagine how many different things are going through your head as you contemplate the road ahead, I'm sure lots of the forum family can relate to that.I know that you will be interested in hearing first hand from folks that have been through, or are currently undergoing treatment, however please do consider giving us Nurses a call on the support line or sending us an email - details are in the signature below. We are here to support you Week20. Kind wishes,RachelRachel RichardsonPancreatic Cancer Specialist NurseSupport TeamPancreatic Cancer UKemail: nurse@pancreaticcancer.org.uksupport line: 0808 801 0707
Week20 Posted January 7, 2019 Author Posted January 7, 2019 Has anyone got a good remedy for constipation ?
PCUK Nurse Jeni Posted January 9, 2019 Posted January 9, 2019 Hi Week 20,A few things might be helpful here.- Increase fluid intake - water in particular. This will hydrate the bowel and hopefully, help the movement of the bowel. - Increase natural fibre - fruit, vegetables, wholegrain. A small handful of all bran on your cereal is a really good help to regulate the bowels. Still keep the fluids up though. - Have you tried any laxatives? Laxido or movicol are good as they add bulk to the stool. Avoid things like Lactulose, as this causes a lot of wind (flatulence). - Exercise is also good for helping the bowels - a short walk might help, and is not too strenuous. I hope some of these might be helpful. Jeni JonesPancreatic Cancer Specialist NurseSupport TeamPancreatic Cancer UKemail: nurse@pancreaticcancer.org.uksupport line: 0808 801 0707
Lynn Posted January 11, 2019 Posted January 11, 2019 Hi Week20, your post could have been written by me. I too have Stage 3 locally involved adenocarcinoma and was diagnosed at the end of November. Due to start chemo before Christmas, but delayed as I needed a stent and am having first folfirinox session next week. My head has been all over the place too, it was such a shock and so much information to take in. It was so surreal talking about it relating to me, but not really believing it or wanting to. I think it's sinking in now and chemo pre assessment today has been helpful as I was worrying about the picc line, unnecessarily as it turned out as it's quite straightforward. I hope your issues with constipation have resolved, I have the opposite problem and struggle with creon.Good luck with it all x
toodotty Posted January 24, 2019 Posted January 24, 2019 Hi Week 20,I think that there may be a clinical trial available at the XX Hospital in XX for Stage III patients using Nanoknife to peel the tumour away from the vessel. May be worth a follow up?Erika
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