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Posted

Hi All,


My wife was diagnosed nearly two years ago (December 2015) and is now starting her 3rd different chemo regime (FOLFIRINOX between December 205 and June 2016, then Gemcitabine & Abraxane between July 2016 and October 2017 and now starting yesterday Gemcitabine and Erlotinib) but her diarrhea seems to be getting a lot worse despite taking in excess of 25 plus Creon 40,000 per day, for the record she takes between 4 and 6 for breakfast, and again 4 and 6 with lunch, 2 or 3 with small snacks and between 6 and 9 with dinner.


I suppose the question is how much have you had to take to control the diarrhea as she is reluctant to take loperamide due to bloating issues she has had in the past mixed with the Ascites makes her very uncomfortable. It doesn't seem to matter what she eats, however it is worse with high fat meals which to be honest she does not have that often.


Mick

PCUK Nurse Jeni
Posted

Hi Mick,


I will email you


Jeni Jones

Pancreatic Cancer Specialist Nurse

Support Team

Pancreatic Cancer UK

email: nurse@pancreaticcancer.org.uk

support line: 0808 801 0707

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