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Posted

Hi all, I'm new to this forum. I read some posts, and now decided to write one. I'm confused about my mom diagnosis, so I'd like to ask for some help.

Last autumn my mom had severe stomach pain, vomiting, and soon after that jaundice, so she was admitted to hospital where they put a stent into her bile duct, and made some tests. The CT showed a lesion on her pancreas, to which they said it's malignant, and after the next examination we were told it's inoperable as it's surrounding a blood vessel. Meanwhile they did a fine-needle biopsy, and it came back negative. The doctor said that false negative result often happens. They repeated it two more times, each gave negative result. Then in January they performed a biopsy during EUS, taking samples from several places of that area, and "adenoma; benign tumor of the pancreas" was written on the report. We were extremely happy about it, of course, and the oncologist didn't even send her for further tests, just said to come back in May. My mom had cholangitis some weeks ago, because there was a biliary blockage due to the tumor. She then had liver abscesses, and was getting antibiotics in hospital. Now she is at home, still taking antibiotics pills. On her reports pancreatic cancer is still mentioned, along with that sentence that malignany is not proved. Fortunately she hasn't been feeling pain since the stent was placed in last year. She is slowly getting better now after her long hospital stay. She's weak, but she's not in pain. She's going to a scan soon, and I'm just wondering that can it be a benign tumor indeed, or even the EUS can give false negative biopsy? What do you think? And if it's benign, what are the chances of it becoming malignant? And what are treatment options, if they can't surgically remove it? Maybe Nanoknife?

I'm going to ask the doctors too, but I believe you can tell me what to expect. Thanks in advance.

Posted

Hi Bubble, welcome to the forum but sorry that you have a reason to be here. I have nothing to offer in the way of answers but the PCUK nurses offer an excellent helpline if you call freephone 0808 801 0707 during office hours.

I wish you and your mum all the very best. W&M x

PCUK Nurse Dianne
Posted

Hi bubble,


Welcome to the forum and thank you for posing some interesting questions. I am sorry to hear this is a difficult time with some conflicting results. It might be helpful if I respond to you in person as it may help to ask some questions and have further information. I will email you in person Bubble.


Thanks W & M for signposting to us.


Kind regards,


Dianne

Pancreatic Cancer Specialist Nurse

Pancreatic Cancer UK Support Service

Free phone: 0808 801 0707

Support@pancreaticcancer.org.uk

Posted

Hi Bubble,


Just wanted to say welcome and hope that the nurses have been able to help. Hope you post again and let us know how things are going M x

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