PCUK Nurse Dianne Posted November 24, 2014 Share Posted November 24, 2014 Dear Susanna,On behalf of Jeni and myself please accept our heartfelt condolences at this time. You have been so amazingly strong supporting your husband through this difficult time, and so honest in sharing your story, and also in supporting other members of the forum family at this time.We know such difficult days ahead, and I know this wonderful 'forum family' will gather around you to support you here too. Thinking of you and the boys and the long days ahead, and please be in contact if you wish to.With our deepest sympathies,Dianne & Jeni,Specialist nursesSupport team. Link to comment Share on other sites More sharing options...
Ant11 Posted November 25, 2014 Share Posted November 25, 2014 Dear SusannaSo sorry to hear about the loss of your wonderful husband. Thoughts are with you and your wonderful boys at this sad and difficult time. He will be there every step of the way watching over you. God bless you all. Annette x Link to comment Share on other sites More sharing options...
Cathy Posted November 25, 2014 Share Posted November 25, 2014 Hi SusannaI am sorry but this is the first time I have managed to come on here for a while but I hope you got my text the other day as Didge had let me know.There isn't really anything I can add to all the lovely messages you have had but just to say I have been thinking of you often and am here if ever you fancy meeting up again.With love to you, your boys and your familyCathy xxx Link to comment Share on other sites More sharing options...
Bowie Posted November 25, 2014 Share Posted November 25, 2014 Dear Susanna, as others have said there are no words, I am just so very sorry for you and your boys that your beautiful husband has gone. Taken from you all much, much too soon by this evil cruel disease. You are amazing and I can't imagine how you've coped with two small boys throughout all this suffering and emotional distress. My thoughs are with you all and sending you loads of love, Fiona X Link to comment Share on other sites More sharing options...
jules 2015 Posted November 25, 2014 Share Posted November 25, 2014 Hi SusannaSo sorry to hear that you have lost you're beloved husband to this terrible disease and at such a young age. I lost my dad to pc last Nov, I don't post very often but still follow everyone's journeys and hope that a miracle cure will be found.Sending you strength for the days and weeks ahead, just take one day at a time and accept all the help from friends and family. try to look after yourself and your boys and give yourself time to grieve.Try to take comfort from being with him till the end.Thinking off youJulie x Link to comment Share on other sites More sharing options...
SusannaUK Posted December 24, 2014 Author Share Posted December 24, 2014 Dear All,Thank you very much for all of you for the nice and supportive comments! I haven't been here since I posted that my husband passed away.It's been a very hard time, I am coping but crying a lot and to be honest I still cannot believe that he is not with us any more.My father is still here to help me, which is great because I don't think I could cope alone. I have very good friends around me and a beautiful community. They help a lot!The funeral was beautiful, it was a very sunny day, he loved sunshine. I cried all along the funeral, but I managed to say a prayer as well in front of everybody. A lot of people came, even the doctor from the hospice and a few more hospice staff. My husband was such a special man, everybody loved him. He was funny, handsome, with good heart and he cared of people so much. It was 1 month on Sunday since he died. I went to the hospice last week to say thank you to everybody and everyone I met cried. They still talk about us every day.Boys are doing fine, but they don't really understand where their Daddy is exactly. They ask about him, and say nice things to me. One of my little one told me when I was crying. "Don't cry Mama, smile, because we are here to make you happy!" I couldn't believe it. He is just 4 years old and he said this to me. I was crying even more...I try to keep strong and I will come back to the forum to read your threads and give support to everyone.I wish you all a peaceful Christmas!Love,Susanna xxx Link to comment Share on other sites More sharing options...
RLF Posted December 24, 2014 Share Posted December 24, 2014 What a lovely message, your son sounds like a very compassionate man even at 4! Glad you found your way back here and that you're getting so much support at home too. Hope you're Xmas is also peaceful, that's the perfect word for what I'm hoping for. RobX Link to comment Share on other sites More sharing options...
Didge Posted December 24, 2014 Share Posted December 24, 2014 What a lovely comment from your little one. I remember when my eldest was nearly six, shortly after his father had died, I found him mending his bike which he had never attempted before (and he managed it!) saying 'I'm the man of the house now'. Children want to look after their parents just as we want to look after them and I am sure your twins will bring you much happiness in the times ahead. I hope you have a good Christmas with your family and look forward to meeting up soon. xxx Link to comment Share on other sites More sharing options...
Cathy Posted December 24, 2014 Share Posted December 24, 2014 Hi SusannaI am so glad that you seem to have good support around you and that your Dad is there to help with the boys.I wish I could wave a wand and make things better but I'm afraid I can't. All I can say is to take any help or support offered you and to ignore people who tell you what you should or shouldn't be doing if you want to.It is a tough time of year as well but I hope you, your boys and your Dad have the best Christmas possible.Cathy xxx Link to comment Share on other sites More sharing options...
Guest Posted December 24, 2014 Share Posted December 24, 2014 Thank you for posting Susanna. Your little boy sounds amazing, what a beautiful thing to say. I know it is easier said then done, but I hope you can spend tomorrow the way your husband would have wanted. I hope you find some peace and raise a glass to him. He fought an amazing fight, he truly never gave up. Some things you posted in his final weeks was breath taking. The things he managed to do was truly inspirational. I am proud of his fight and I am sure you are too. Leila xx Link to comment Share on other sites More sharing options...
Sueoliver Posted December 24, 2014 Share Posted December 24, 2014 I hope you find some peace at Christmas and enjoy your boys. Thinking of you. Sue xxx Link to comment Share on other sites More sharing options...
sandraW Posted December 25, 2014 Share Posted December 25, 2014 Yes Susanna thank you so much for posting, I was thinking of you so much during the last few weeks, wondering how you were. I too wish the best of everything for you and your wonderful boys this Christmas, I know how hard it will be for you, sandrax xx Link to comment Share on other sites More sharing options...
peidg Posted January 5, 2015 Share Posted January 5, 2015 Dear SusannaThank you so much for posting I have been thinking of you often too. Im glad that your father is with you and that you have such wonderful support, you are a brave woman. Your little boy sounds like a special child and indeed children are angels. My heart and thoughts are with you. Take care of yourself. Idalina xxx Link to comment Share on other sites More sharing options...
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