Creons, Nurses, and Here. I'm at a loss.

[Slewis7313]

Really pleased for you and your Dad Leila.

Steve

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[Guest]

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Edited March 5, 2014 by Anonymous

[Guest]

Does anyone know please if my dad can take codeine and tramadol together? He has just started codeine yesterday ( to try and help with diarrhoea). He didn't take his tramadol last night and he had a lot of pain.

He has also just started getting jaw ache on the right side, is this a symptom of his cancer?

Leila x

[Cathy]

Hi Leila

I'm afraid I can't give any advice from my own experience but did a quick look on the Internet. Conflicting replies so I would say not to without getting advice from your GP.

As for jaw ache, I certainly haven't heard of this before. Has he had a dental check up recently? It is a good idea to do so for anyone undergoing or about to under go chemotherapy. It might be a referred pain from a tooth? Jonathan had receding gums after he started chemo which did make his mouth a little bit sensitive.

Sorry I can't be more helpful

Cathy xxx

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Edited March 5, 2014 by Anonymous

[Cathy]

Oh I'm sure it will be something very simple, just keep an eye on it and mention to GP if it doesn't get better. Might be an inner ear thing?

Cathy xxx

[Guest]

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Edited March 5, 2014 by Anonymous

[Cathy]

Hi Leila

It was bl**dy hard, I won't pretend it wasn't at times. I used this forum a lot for tips and advice and spoke to Jeni here too, again for advice. I held onto hope, there are some people who post on here who are still doing really well sometime after treatment.

Also, I lived with Jonathan so tried to remain upbeat and cheerful and positive around him as I believe that that helped him. There were moments, of course where I felt down when he was, or he was in pain so would get upset but those times I saved for when he wasn't around (I worked).

it's hard Leila. Don't beat yourself up if you feel down yourself at times but, for me, I tried to remain positive and focussed on the here and now.

Not sure if this helps.... Everyone copes differently I think. Are you getting any support yourself?

Cathy xxxx

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Edited March 5, 2014 by Anonymous

[Cathy]

Hi Leila

There is nothing silly about saying "we'll keep trying".. What else can we do?

I noticed on a different thread that your Dad is gong to start a clinical trial. Mike (cestrian on here) was part of a clinical trial and he had a really good experience being on it with the level of care etc so hopefully your Dad will have a similar experience. (Mike, hope you don't mind me saying this??). This could definitely help with his feeling down. Also the feeling that he is doing something proactive that could stop symptoms and hopefully stabilise and reduce the tumour should help with his moods. You now have a date for that starting (everything crossed) so you can remind your Dad of that when you talk to him. Your Dad agreeing to go onto the trial shows that he must have a positive feeling about doing so.

If you though it would be helpful to you you could ask your GP to refer you to psychological support and your Dads local community palliative care team (or Macmillans) are there to offer you support too.

Keep on keeping on!

Cathy xxx

[nikkis]

Leila,

Just reading your post and what you said about your boyfriend trying to take the reality of the situation. Men (I apologize for the generalisation here), always think if we are upset they need to give us a solution and fix things for us, I suspect that is what he is doing. Paul has done that in the past about things that have upset me, but once I explained I just needed him to listen, not give me solutions, we were both happier! Might be worth a try,

Nikki

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Edited March 5, 2014 by Anonymous

[Guest]

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[sandraW]

Oh Leila, what a terrible position to be in, is there no-one who can go and make sure your father is ok, it must be scary for him to have diarrhea for so long, as for wether or not -you should call an ambulance, if you are so worried and he has no-one else to help then perhaps you should, take care sandrax

[RLF]

If his diarrhea is that bad still you need him looked at asap. Yes either get him to the GP or to the A&E he shouldn't be having water go straight through him like that! He probably needs something stronger for the problem and now some rehydration drinks to help him keep his fluid levels up

[Cathy]

Hi Leila

Only just catching up on the forum now.

How is your Dad? Did you take him to A&E?

Cathy xx

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Edited March 5, 2014 by Anonymous

[jay]

Good luck with the oncologist tomorrow and hope your Dads diarrhea settles down. My husband gets an upset stomach, ie spends an hour on the loo the following morning if he eats something which is too fatty even with his creon, especially cheese effects him, (which I used to hide in his food to try and put weight on him)

Love Jayne

x

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Edited March 5, 2014 by Anonymous

[Slewis7313]

Leila, I do not think the creons alone will help with diaohrea. They will help the body extract energy from food, but not slow the flow of food through the digestive system. They also have no effect with liquids and should not be taken with hot drinks as the heat negates the effect. I adjust my anti-diaohrea tablets to slow the flow of food through the system and the creons to help with the weight. Please clarify with Jeni or Di, but I think your Dad needs to seriously up the anti-diaohrea tablets to slow things down and keep taking the creons to help absorb what is being consumed. If this is not working, the GP simply must look for another answer for you Dad.

I really hope this is some use Leila

Steve

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Edited March 3, 2014 by Slewis7313

[marie souter]

Hey Leila,

Just caught up on you and your dad .. the runs needs to be checked out asap,he will probably get to the stage where he won;t want to eat and drink he needs to be checked for dehydration quickly .. docs can do way more for him and I agree Creon isnt going to solve the problem if creon isnt the problem in the first place ...

hope you egt him sorted quickly

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Edited March 5, 2014 by Anonymous

[Cathy]

Hi Leila

Make sure he is taking in fluids as feeling dehyrdrated will make him feel worse. I know it is difficult if he is running to the loo all the time.. Maybe try diarlyte (sorry, spelling) as well.

I imagine that his oncologist will provide some good Insight and advice tomorrow. I do hope so so have fingers crossed!!!

Cathy xx

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Edited March 5, 2014 by Anonymous

[jules 2015]

Hi Leila

My dad also had terrible diarrhea which they never really managed to get to the bottom of, this was followed by really bad constipation after going on steroids and morphine.

My dad became really dehydrated due to the diarrhea so I would definitely make sure they get that checked out tomorrow.

Will be thinking of you tomorrow

Julie x