A forum for any other issues around pancreatic cancer

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Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Mon Jul 27, 2020 6:07 pm

Here I am again. 3 years of dealing with my ‘IBS’ I now have new symptoms and having to go through the same process 3 years ago starting with bloods.

Started with bloating 4 weeks ago appetite was good thought nothing of it but now I have a real pressure in my back behind my rib cage pains which I can only describe as a feeling of something inside my body pushing on my back and stomach (making me bloated) often laying down is better but sometimes I get pain left rib cage through to the back.

Totally have no appetite now every day is a spiral of worry. First it was diarrhea now pale stools for 3 days and I’m going 3/4 times a day. Totally lost. I’m 33 and I’m trying to hard that my drs take me seriously. I’ve been given omeprazole which is not doing anything. I feel so weak, I feel so tight and uncomfortable and I’m so frightened.

As you can gather I suffer from anxiety but this is a new level. I’m so low

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Mon Jul 27, 2020 6:16 pm

I mean could 3 years ago been an early warning? I dunno I’ve felt pretty well just dealt with the ibs.

Last few weeks never felt so gassy from both ends. So weird

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Tue Jul 28, 2020 5:06 pm

All blood tests come back normal. FBC, LFT, Calcium, Amylase, blood sugar etc no inflammatory markers. Booked an ultrasound and referral to gastroenterology. Here we go again...

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Wed Jul 29, 2020 6:11 pm

Booked a private ultrasound managed to get one for tomorrow. Fingers crossed.

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Thu Jul 30, 2020 2:38 pm

Had the ultrasound pancreas body was fine however head and tail was obstructed by gas.

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Fri Aug 07, 2020 10:26 am

Spoke with my GP hoping to get a referral however he wants to do one more test - H.Pylori.

I am a bit disappointed as i spoke with another GP previously and stated my blood tests were 'ok' but i have been told today i have low vitamin D and high hemoglobin. :?

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Mon Aug 17, 2020 3:47 pm

atm I have high hemoglobin and hematocrit and currently waiting to see a specialist.

Still have these pains mostly in my back with loose stools and general discomfort. Today I had green watery diarrhea, anyone know what that could mean?

laci06
Posts: 9
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Thu Aug 27, 2020 12:48 pm

How are you doing nowadays? I think we in a bit similar shoes, age, everything matches more or less.
I also never had anxiety related problems before, but it started 2 years ago and since then it is a bit difficult. Is it possible to reach out to you privately?

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Thu Aug 27, 2020 12:55 pm

Hi,

Still have some issues although it could be anything right now. I was tested positive to h pylori and was given medication. I still have the pains although less frequent and diarrhea. My bloods I have been referred to a specialist so I am currently waiting for that. Have you had a diagnosis?

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Thu Aug 27, 2020 1:19 pm

I would say stay clear of the internet. I have scared myself into oblivion diagnosing myself and finding little bits to fit my symptoms when actually my weight has steadied and I have gained some appetite back. You have got to trust the GP’s

laci06
Posts: 9
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Thu Aug 27, 2020 1:50 pm

Well, my story is I think quite similar to yours. Now I am 31, male. 2 years ago I started to have loose stools that were yellowish which scared the hell out of me. Then I started to have weird back pains and then my anxiety thanks to the internet started.

I have had problems with my stomach before, but 2 years ago in the summer it got worse with the yellow color and stuff so I started to go to the doctor. I convinced him to at least offer an US to check the pancreas to reassure me.

I even took the ultrasound pictures for a second opinion about my pancreas and it was told that it is a textbook quality picture of the pancreas as in 1 picture they could perfectly see all 3 parts. However, they found 2 spots on my liver (likely hemangiomas) so I was referred to an MRI. Of course this fired my anxiety up through the roof as I was also loosing some weight.

Anyhow, I had the MRI, but I was not standing still enough because the instructions that I got were not perfect. Never mind, it still showed that the 2 spots are hemangiomas. I also took the MRI pictures for 2nd opinion, that said the same.

After this I still did not calm down, so I went for an MRCP and a CT with contrast. These helped and I started to gain weight back. Later I also had colonoscopy and gastroscopy (they found 2 small benign polyps). I calmed down a bit and then 3 months later I had a watery diarrhea so I went for an MRI with contrast again plus did a fecal elastase test. This time everything was perfect and everything said the same as before. After these results I got quite good, started to gain weight, so I convinced myself that I am good.

This lasted until this July (for 1.5 years) when suddenly I started to have watery diarrhea. They did not see any bacteria in my stool, but the doctor said it was likely a stomach bug. It went away with a rifaximin course, but my anxiety is through the roof again.

So, here I am. Tomorrow I will have a blood test with CA19-9 and also an abdominal MRI with contrast. Hopefully it helps and my stomach issues will be sorted out. I also lost like 2 kgs I think in the last 2-3 months including the effect of the probably stomach bug, but I have a lot of stress recently, so I think loosing 2 kgs is something that can be easily explained.

I am also going to speak with the psychiatrist tomorrow, as I know that I could be wrong and if my body is healthy, then my mind is not.

I remember that when I first started to have problems I even read your posts (here and also on another forum) and it helped me to calm down as I saw that I am not the only one who is keep pushing and pushing and everything turns out to be negative, yet keeps pushing and pushing. Also I saw many other people with PC anxiety and they had 1 thing in common: no one was diagnosed with it.

laci06
Posts: 9
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Thu Aug 27, 2020 1:51 pm

I am also trying to calm myself by the fact that my appetite is perfect, I can eat a lot, so the stomach issues are probably related to something else, not pancreas, IBS is way more likely.

Also I have zero back pain, I am not tired, I can easily do 20 push ups, had an US recently and everything seemed perfect, liver and pancreas enzymes in the blood are perfect and even in the middle of the watery diarrhea my blood test was quite good all around.

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Thu Aug 27, 2020 2:17 pm

There you go then. You have had a lot of detailed tests and were lucky to have an mri for the blood cysts I only had an ultrasound with contrast after a ct scan which spotted the 2 cysts. Crazy how we are very similar with symptoms. The longer this goes on begin to think it’s most likely not PC however I have convinced myself I have it or something else that is horrible.

I have a second ultrasound coming up and then whatever tests the hematologist decides because of my blood abnormalities.

I think you should not worry much, we are not well oiled machines our bodies are not perfect it’s most likely a blip with a combination of ibs and worry. That’s what I’m telling myself.

Seek help mentally it’s nothing to be ashamed of. My wife family and friends are still here and I admit I have anxiety and depression.

Cdcmoon
Posts: 44
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Thu Aug 27, 2020 2:24 pm

8 weeks ago I felt sick eating and hardly ate. Last few weeks I’ve eaten more and my weight has increased slightly most. I will always remember what the consultant said 3 years ago. Your gut is your second brain and is very powerful and can make you feel ill.

laci06
Posts: 9
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Thu Aug 27, 2020 4:34 pm

Indeed the gut is the second brain and with your brain you can really f?ck it up.

Did you started to investigate by the way your safe foods and what you can easily digest? Or you are not paying too much attention to it?