A forum for family, friends and carers of pancreatic cancer patients

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Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thoughts from the PC frontline

Postby Wife&Mum » Thu Aug 04, 2016 10:35 am

I prefer to stay informed and then make adjustments as new information comes out. But that's just me, I've always been an information junky.

Also I believe that when it comes to taking supplements, one is just tinkering around the edges, that they won't make a huge difference for the good or bad unless you take large quantities. So hubby will continue with the bitter melon pills as the evidence is still quite persuasive (they have other benefits in addition to the anti-oxidation) and he's only taking a small dose. Everything in moderation!

xx

Dandygal76
Posts: 762
Joined: Sat Mar 12, 2016 9:49 am

Re: Thoughts from the PC frontline

Postby Dandygal76 » Thu Aug 04, 2016 8:36 pm

I am the same W&M... however much I would like to stay ignorant to the facts sometimes - I would never be able to do it. You know in reality I believe that knowledge is power. I think you are probably right on the supplements tinkering around the edges as well... there is no comparable really to lab conditions and petri dishes or high dose pure product trials.

I did read though that bitter melon is good for blood sugar as well as fighting PC. It tastes bloody awful though and if you get the burps and digestion issues as with some treatments it is difficult to take them.

dad is not taking anything stupidly excessive and he will only take so much so we hopefully not doing anything that would be ultimately detrimental to the path that he is on. xx

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thoughts from the PC frontline

Postby Wife&Mum » Fri Aug 05, 2016 1:17 am

Hi all,
Have decided to have a few weeks off to recharge my poster batteries.
I wish everyone the very best in the meantime
W&M xx

Dandygal76
Posts: 762
Joined: Sat Mar 12, 2016 9:49 am

Re: Thoughts from the PC frontline

Postby Dandygal76 » Fri Aug 05, 2016 7:55 am

Hi W&M

I hope you are okay and I hope to speak again soon. I find it a good idea to sometimes step away and see things in a fresh light, it can all become a little intense sometimes that we forget the times before blasted PC. The summer is here and hopefully it will be a lovely hot one to enjoy. I value your input very much to this forum and find, because your hubby has a much better prognosis than most on here, that you can take a step back a little more sometimes and see the wood through the trees that perhaps some of us in a different place on the journey cannot always see. Strength to deal with that whilst still helping the likes of me who want that open debate is a special talent and one you must rest for and from at times! Pease come back soon. x

Marmalade

Re: Thoughts from the PC frontline

Postby Marmalade » Fri Aug 05, 2016 8:40 am

I will miss you but completely understand that sometimes we all need a little space xx

Proud Wife
Posts: 740
Joined: Sun Jan 17, 2016 9:28 am

Re: Thoughts from the PC frontline

Postby Proud Wife » Fri Aug 05, 2016 11:53 am

Dear W&M

I'm terribly sorry if it was my comment yesterday that made you come to this decision. I'd never want to hurt or upset anyone on here and I very rarely speak out, so I sincerely hope I've not come across as confrontational. That was not the intention at all, just simply a difference of opinion but let's turn the page! Hubby always used to say what happened yesterday was yesterday's news.

I wish you some calm and enjoyable weeks recharging those batteries. I too look forward to seeing you back on here when you are ready.

Much love x

Dandygal76
Posts: 762
Joined: Sat Mar 12, 2016 9:49 am

Re: Thoughts from the PC frontline

Postby Dandygal76 » Tue Aug 09, 2016 3:25 pm

Come back soon lovely lady... we need every perspective in this fight! x

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thoughts from the PC frontline

Postby Wife&Mum » Fri Aug 12, 2016 4:08 pm

Hi all

I'm back, but with a caveat. I'm going to stick with doing what I do best: sharing what I've learnt from my experience of and research into PC. I've decided to leave the emotional support to the others here - you are all so much better at it than I am, so I'm sure it's no loss. In fact I seem to have a knack of putting my foot in it :-(

To explain what's behind this decision...
While I was on my "posters holiday" I realised that I've already been on this roller coaster for 18 months yet at the moment (not that I'm complaining...quite the opposite) there's no end in sight. I'd like to feel I can continue to contribute my knowledge to the forum for a very long while to come, but contributing that AND emotional support is just too daunting. I hope everyone will understand that it's so important for me, my hubby and children that I stay as upbeat and positive as possible. For that I need to be mentally robust and I find the emotional support-giving aspect of the forum very draining.

So I don't know how this is going to work - it may end up as a failed experiment - but I'm going to concentrate mainly on information sharing in future, leaving the provision of a shoulder to cry on to those with broader shoulders than mine. I hope you don't construe from this that I don't care, as that's really not the case at all.

My best wishes to everyone
W&M

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thoughts from the PC frontline

Postby Wife&Mum » Fri Aug 12, 2016 4:49 pm

PW, you're absolutely right, it's already last week's news. No hard feelings. My love back. W&M xx

Marmalade

Re: Thoughts from the PC frontline

Postby Marmalade » Fri Aug 12, 2016 6:55 pm

Hi W&M,

I've missed you! I also think you are being hard on yourself if you think you put your foot in it. We all like to think we are robust but actually we are all subject to stresses and strains and bouts of thin skin. The written word has no inflection so can easily be misunderstood or taken awry. I am known among my friends (and less friendly people) as being very direct, some would say blunt.

I was rather pleased that you started to speak about your journey and allow us to travel with you but we must all do what is best for us and respect that we all cope in different ways. I thank you for the support you have given me and I look forward to your comments. If you want to be in touch privately then just ask support for my email, you would be most welcome.

Much love M xx

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thoughts from the PC frontline

Postby Wife&Mum » Sat Aug 13, 2016 9:10 am

M, I hope you all had a peaceful night. I would love to keep in touch off forum so will drop a line to the nurses next week.
W&M xx

Proud Wife
Posts: 740
Joined: Sun Jan 17, 2016 9:28 am

Re: Thoughts from the PC frontline

Postby Proud Wife » Sat Aug 13, 2016 10:56 am

A warm welcome back W&M.

Hope all's well your end x

Dandygal76
Posts: 762
Joined: Sat Mar 12, 2016 9:49 am

Re: Thoughts from the PC frontline

Postby Dandygal76 » Mon Aug 15, 2016 11:24 am

W&M, this is the place where you should be able to speak from your mind and your heart. You didn't do anything to offend and I think it was a convergence of circumstances at the time that made you feel like that, and that was absolutely not the result of anything you wrote but other circumstances. I have already said to you that I value your input and there is nothing wrong with stark reality and truth in these matters... sometimes it is what is needed most. You also need that emotional support... we all speak from the heart and sometimes in the PC world we can read double meanings into the written word that was not intended. Welcome back... so glad you are here with us. x

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thoughts from the PC frontline

Postby Wife&Mum » Tue Aug 16, 2016 12:25 pm

Thanks PW & DG, happy to be back. xx

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thoughts from the PC frontline

Postby Wife&Mum » Thu Aug 25, 2016 3:30 pm

Just found this on the Cancer Research UK website, under the heading Patient Experience:

87% of Pancreatic cancer patients rate their care very good or excellent, 2014, England

Read more at http://www.cancerresearchuk.org/health- ... uLDLjBH.99

I FIND THIS VERY HARD TO BELIEVE!

W&M