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Re: My Dads diagnosis

Posted: Sat Jul 18, 2015 8:17 am
by allyc1
thanks for the information, its really helpful to hear other stories and it may help my dads situation

Re: My Dads diagnosis

Posted: Sat Jul 18, 2015 8:25 am
by allyc1
rsk1974 wrote:
> Whipples is a big op, but if that's an option then that's surely a
> positive as so many people don't have this option. My dad had it, but I
> would have also understood if he didn't have it as it's a big operation.
> He then had a 6 month course if chemo after.

How is your dad now?

Re: My Dads diagnosis

Posted: Sat Jul 18, 2015 8:56 am
by rsk1974
I'm.afraid my dad passed away a year after his op, he was one of the unlucky ones, but he wanted to do everything he could to beat the cancer, However the difference was that even.when they started the op they where going to close him.back up as they couldn't find a tumour then.found one deeply buried. We hadn't had a diagnosis of pc until a year after first symptoms and 4 weeks after whipple, so my dad was a bit strange medically. We are still glad he had the op though and was by a brilliant surgeon.

Re: My Dads diagnosis

Posted: Sun Jul 19, 2015 8:19 am
by jay
My husband who was 48 had a whipples nov13 but by jan 14 a 4 mm lesion appeared on the liver, he had 6 months of chemo which kept it at bay and he had a good summer but died sept 2014 with an infection he caught following a stent being fitted, Take care, love Jayne x

Re: My Dads diagnosis

Posted: Sun Jul 19, 2015 9:44 am
by allyc1
Sorry to hear that Jayne, its so difficult isnt it, my dad hears from the Drs the week after next to see what the next step is? Thay are going to recommend Radiotherapy i think, as he has had about 5 Chemos. My dad is so worried about the Whipples if it becomes an option. as it really is a major op and you have to be fighting fit which he doesnt seem to be at the moment. We will have ti wait and see what the specialists suggest.
Thanks Alison

Re: My Dads diagnosis

Posted: Sun Jul 19, 2015 9:50 am
by rsk1974
Hi Alison, you do have to be fit for the op, but if it's any help my dad had it and he only had 1 kidney and a damaged heart from a heart attack.All you can do is support your dad and sometimes go somewhere and scream! X

Re: My Dads diagnosis

Posted: Sun Jul 19, 2015 9:52 am
by allyc1
I know what you mean, i feel like screaming plenty. I have to be strong all the time when im with him, then when i get home all you do is worry. You hope for a miracle cure too. x

Re: My Dads diagnosis

Posted: Mon Jul 20, 2015 2:02 am
by kittycat
I think a miracle is what we're all hoping for, but they do happen sometimes so try to stay strong.

Sue

Re: My Dads diagnosis

Posted: Mon Jul 20, 2015 8:07 am
by allyc1
Can anyone tell me what the protein markers indicate? I know my dads have come down but not really sure what they mean?

Re: My Dads diagnosis

Posted: Sun Jul 26, 2015 9:36 pm
by allyc1
I just wanted to know about the nanoknife? My dad has cancer on the head of the pancreas which is on the artery'it has responded to check and he is going to be starting radiotherapy in a couple of weeks. Just wondered if nanoknife would be an option? Does anyone know the criteria?

Re: My Dads diagnosis

Posted: Mon Jul 27, 2015 10:18 am
by WilliamS
My Dad asked his Consultant about Nanoknife and was told that he needed to be stable on chemotherapy and for the tumour not to have spread outside the pancreas.

Re: My Dads diagnosis

Posted: Mon Jul 27, 2015 2:42 pm
by allyc1
Did your dad have the op?

Re: My Dads diagnosis

Posted: Mon Jul 27, 2015 6:05 pm
by kittycat
My husband is booked for Nanoknife in August. Our Oncologist sent his scans to the *** ****, we had a consultation in London and the procedure was fixed for the 1st July but unfortunately Roger was taken into hospital and we had to postpone. We have since sent off his latest scan and he is still suitable and everything is fixed for a fortnights time. I understand that it is now available at one hospital in London on the NHS but we haven't pursued this as we have everything fixed up. We just feel that it is a chance to give us a bit longer together and hopefully that's what will happen, its just unfortunate that its not more widely available because I think it may be the thing of the future.

Sue

Re: My Dads diagnosis

Posted: Mon Jul 27, 2015 6:37 pm
by WilliamS
My Dad hasn't had Nanoknife. He's only had one chemo session so far so not eligible. It is available on the NHS at our nearest specialist centre (in the north of England) and I understand they accept referrals from other parts of the country.

Steve Lewis on this forum has had the op - details on his "So far so good" thread -
http://forum.pancreaticcancer.org.uk/vi ... &start=630

Re: My Dads diagnosis

Posted: Tue Jul 28, 2015 8:03 am
by allyc1
William thank you for the info we will look into this, as we actually live in the North so hopefully an option. Kitty cat please keep us updated on your husband and hope all goes well x