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allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Sat Jul 18, 2015 8:17 am

thanks for the information, its really helpful to hear other stories and it may help my dads situation

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Sat Jul 18, 2015 8:25 am

rsk1974 wrote:
> Whipples is a big op, but if that's an option then that's surely a
> positive as so many people don't have this option. My dad had it, but I
> would have also understood if he didn't have it as it's a big operation.
> He then had a 6 month course if chemo after.

How is your dad now?

rsk1974
Posts: 80
Joined: Thu Jul 31, 2014 1:21 pm

Re: My Dads diagnosis

Postby rsk1974 » Sat Jul 18, 2015 8:56 am

I'm.afraid my dad passed away a year after his op, he was one of the unlucky ones, but he wanted to do everything he could to beat the cancer, However the difference was that even.when they started the op they where going to close him.back up as they couldn't find a tumour then.found one deeply buried. We hadn't had a diagnosis of pc until a year after first symptoms and 4 weeks after whipple, so my dad was a bit strange medically. We are still glad he had the op though and was by a brilliant surgeon.

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: My Dads diagnosis

Postby jay » Sun Jul 19, 2015 8:19 am

My husband who was 48 had a whipples nov13 but by jan 14 a 4 mm lesion appeared on the liver, he had 6 months of chemo which kept it at bay and he had a good summer but died sept 2014 with an infection he caught following a stent being fitted, Take care, love Jayne x

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Sun Jul 19, 2015 9:44 am

Sorry to hear that Jayne, its so difficult isnt it, my dad hears from the Drs the week after next to see what the next step is? Thay are going to recommend Radiotherapy i think, as he has had about 5 Chemos. My dad is so worried about the Whipples if it becomes an option. as it really is a major op and you have to be fighting fit which he doesnt seem to be at the moment. We will have ti wait and see what the specialists suggest.
Thanks Alison

rsk1974
Posts: 80
Joined: Thu Jul 31, 2014 1:21 pm

Re: My Dads diagnosis

Postby rsk1974 » Sun Jul 19, 2015 9:50 am

Hi Alison, you do have to be fit for the op, but if it's any help my dad had it and he only had 1 kidney and a damaged heart from a heart attack.All you can do is support your dad and sometimes go somewhere and scream! X

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Sun Jul 19, 2015 9:52 am

I know what you mean, i feel like screaming plenty. I have to be strong all the time when im with him, then when i get home all you do is worry. You hope for a miracle cure too. x

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: My Dads diagnosis

Postby kittycat » Mon Jul 20, 2015 2:02 am

I think a miracle is what we're all hoping for, but they do happen sometimes so try to stay strong.

Sue

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Mon Jul 20, 2015 8:07 am

Can anyone tell me what the protein markers indicate? I know my dads have come down but not really sure what they mean?

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Sun Jul 26, 2015 9:36 pm

I just wanted to know about the nanoknife? My dad has cancer on the head of the pancreas which is on the artery'it has responded to check and he is going to be starting radiotherapy in a couple of weeks. Just wondered if nanoknife would be an option? Does anyone know the criteria?

WilliamS
Posts: 70
Joined: Sun Apr 05, 2015 9:00 am

Re: My Dads diagnosis

Postby WilliamS » Mon Jul 27, 2015 10:18 am

My Dad asked his Consultant about Nanoknife and was told that he needed to be stable on chemotherapy and for the tumour not to have spread outside the pancreas.

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Mon Jul 27, 2015 2:42 pm

Did your dad have the op?

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: My Dads diagnosis

Postby kittycat » Mon Jul 27, 2015 6:05 pm

My husband is booked for Nanoknife in August. Our Oncologist sent his scans to the *** ****, we had a consultation in London and the procedure was fixed for the 1st July but unfortunately Roger was taken into hospital and we had to postpone. We have since sent off his latest scan and he is still suitable and everything is fixed for a fortnights time. I understand that it is now available at one hospital in London on the NHS but we haven't pursued this as we have everything fixed up. We just feel that it is a chance to give us a bit longer together and hopefully that's what will happen, its just unfortunate that its not more widely available because I think it may be the thing of the future.

Sue

WilliamS
Posts: 70
Joined: Sun Apr 05, 2015 9:00 am

Re: My Dads diagnosis

Postby WilliamS » Mon Jul 27, 2015 6:37 pm

My Dad hasn't had Nanoknife. He's only had one chemo session so far so not eligible. It is available on the NHS at our nearest specialist centre (in the north of England) and I understand they accept referrals from other parts of the country.

Steve Lewis on this forum has had the op - details on his "So far so good" thread -
http://forum.pancreaticcancer.org.uk/vi ... &start=630

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Tue Jul 28, 2015 8:03 am

William thank you for the info we will look into this, as we actually live in the North so hopefully an option. Kitty cat please keep us updated on your husband and hope all goes well x