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Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby Cathy » Wed Oct 22, 2014 8:22 pm

Hi Susanna,

I am crossing my fingers very hard and hoping the hospice will sort things out for you. They are generally great places and will give you a little bit of a break too (in and around your little boys of course!).

Thinking of you

Cathy xx

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby SusannaUK » Thu Oct 23, 2014 12:24 am

Thank you Cathy!
My husband had his 10th cycle of Folfirinox today at last! His blood test result was good.
His tumour marker dropped again!!! In September was 26,340, today was 16,000. It is a huge improvement comparing to the time when he was diagnosed. At that time it was 187,749. I don't really understand how it could drop, as he hadn't had chemo for 6 weeks, but it is just such a great news, we are happy!
Now the oncologist said that it is down to my husband if he wants the next one in two weeks or three weeks. He is very weak now, sleeping and tomorrow morning he will move in to the hospice. I have big hope for them to sort his pain out. Fingers crossed.

Take care all of you,
Susanna x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby Slewis7313 » Thu Oct 23, 2014 6:46 am

Hi Susanna, good to see the Hospice is sorted out and in conjunctuon with the bloods/marker results can hopefully lead to more improvements. Keep us posted!

Take care.

Steve
X

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby SusannaUK » Fri Oct 24, 2014 11:31 pm

Thank you Steve!
So, my husband moved in to the hospice yesterday. He spent 2 months there in Summer, so we knew how it would be, although the hospice has been refurbished recently and it is even better now. He is feeling very unwell now because of the chemo he got on Wednesday. I miss him so much from home, I am alone with the boys and the flat is a bit empty without him. The boys miss him too and keep asking me where their Papa is. I told them that he had to move in to the hospital to be examined by doctors.
I know that he is in good hands and I really hope that they can help him with this awful pain.

Take care everyone.

Susanna x

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: My 41 years old husband has inoperable pancreatic cancer

Postby nikkis » Sat Oct 25, 2014 8:02 am

Hi Susanna,
I am sure the hospice will get on top of that pain,well doNe for getting him in. Thinking of you and your boys,
Nikki

Bowie
Posts: 115
Joined: Sat May 03, 2014 10:35 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby Bowie » Sun Oct 26, 2014 11:33 pm

Susanna, hope your husband is more comfortable now and they are sorting out his pain. Love to you and the boys. Fiona X

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby jay » Tue Oct 28, 2014 7:18 am

Hi Susanne,
hope your husband is in less pain . Sending a massive hug to you all
love Jayne
x

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby SusannaUK » Wed Oct 29, 2014 11:32 pm

Thank you Nikki, Fiona, Jayne!
Sadly it's not going well at all. I am very scared now. It will be 1 week tomorrow morning in the hospice and pain is still there, even stronger than before. Nobody understand why he's got pain, they increased the morphine, Pregabalin and Amitriptyline but no change. He doesn't eat (almost nothing). I am very worried about him, he has lost a lots of weight in the last two weeks. It is heartbreaking to see him like this. It is like this awful PC eating him up... He is very very weak, hardly can stand on his feet, crying a lot and very thin. I am so scared that not long left! Sometimes he looks like he is dying. I just remember my Grandmother's face towards the end and my husband often looks like her. My Grandmother died of pancreatic cancer spread to liver in 2007, 3 months from diagnosis.
I am just so scared of the future. I am just so worried about him, about the boys, about myself, I cannot find words to describe this. Unfortunately you all know this terrible feeling. I will update you if anything changes.

Take care everyone,
Susanna x

sandraW
Posts: 1044
Joined: Thu Oct 31, 2013 5:38 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby sandraW » Thu Oct 30, 2014 12:28 am

Dear Susanna, sending big cyber (((hugs))) to you, your husband, and those precious boys. stay strong you have done so well, thinking of you, please take care sandrax.

Bowie
Posts: 115
Joined: Sat May 03, 2014 10:35 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby Bowie » Thu Oct 30, 2014 10:17 pm

Dear Susanna, so sorry to hear about your husband's continued pain and weight loss. It's so hard watching loved ones hurting and suffering from this awful disease. I'm thinking of you and your family and hoping they get his pain sorted out soon and that you are all able to have some peaceful time. Fiona X

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby jay » Fri Oct 31, 2014 7:12 am

ah susanna im sorry to hear your husband is still in pain. I was told my husband was one of the few people who didn't respond to morphine, they gave him pethadine and buscapan intravaneously which helped. I hope they get the pain sorted soon,
love Jayne
x

The Isle of Skye
Posts: 4
Joined: Thu Oct 09, 2014 6:34 am

Re: My 41 years old husband has inoperable pancreatic cancer

Postby The Isle of Skye » Sat Nov 01, 2014 11:00 am

Hello Susanna


So sorry to hear your husband is still suffering such intense pain and is so ill. I can hear the distress you are feeling and can only imagine the reality of your situation. It is beyond heartbreaking what you and your husband are going through and hope you both keep finding the strength, courage and support you need to get through this.

Far from wishing to give yourself, your husband or anyone else on this forum false hope, I recently found some information that I hope may be of some use to you and have included some links that might be of interest to you further down. It isn't the promise of a cure, although there seem to be testimonies that it has cured some, but could hopefully at least bring some relief and support for the immune system to help regain some strength and perhaps relieve some of your husbands pain.

It has long been known by the medical profession that an acidic pH predisposes the body to disease. Having studied nutrition I have recently done some research looking at the causes of cancer. Underlying that research there is strong evidence to suggest that cancer needs both an acidic environment low in oxygen to thrive and grow and a source of sugar to feed on. That by changing the pH levels within the body to a highly alkaline pH of around 8 to 8.5 and holding it there for a period of 5 days can possibly cause the destruction of cancer cells and in some cases the cancer can go into remission for as long as the blood pH levels remain within an alkaline range of around 7.4, the optimum pH for a healthy body.

At this stage you would maintain an optimum pH of 7.4 through eating a healthy alkaline diet by eating a wide range of green leafy vegetables, broccoli, spinach and kale for instance whilst removing all sugar including fruit until cancer clear in order to starve the cancer of its food source. All processed foods not only lack nutrients but contain harmful chemical preservatives that are stored in our fat cells within our organs and would be omitted from the diet along with animal products, meats and dairy, replacing them with wholegrain rice, beans, pulses nuts and seeds etc. As bland as it may seem these foods are extremely nutritious and nourishing and cleanse the body as much as heal it leaving you with a sense of increased vitality and well being that surpasses previous levels of health.

Alkalising the body to treat cancer can be done in various ways such as through the diet as well as supplements and includes eating raw vegetables in salads as well as smoothies containing lots of green leafy vegetables such as kale and spinach. If your husband is unable to eat at the moment due in part because of the pain and loss of appetite his digestive system would perhaps find it difficult to digest solid meals where liquid meals such as green vegetable smoothies are easily digestible. I watched someone making a green smoothie from a huge amount of vegetables and then picked up a tub of green powder and said when he was busy he would use the powdered form in water to make a green drink that was as equally alkalising. So not to worry about buying equipment to blend drinks if you don't have it but still wanted to try this.

I also remember years ago my neighbours husband had throat cancer and couldn't eat. He was given cartons of high calorie drinks from the hospital that contained a huge amount of sugars and was completely incompatible with treating cancer. To treat cancer all sugars including fruit is removed from the diet in order to starve the cancer. Toxins are also eliminated from the body using such things as herbal or coffee enemas to cleanse and detox the liver. I should also add that chemotherapy is in it's self not only toxic to the cancer but also toxic to your husband and that if he chose to do any of these therapies he could expect to perhaps feel worse initially as the body detoxes the chemicals from his treatments as well as detoxing and flushing out the dead cancer cells and to be prepared for that for a short period of time.

I read the remarkable testimony of a gentleman called Vernon Johnson who was diagnosed with terminal stage 4 prostate and bone cancer. His son told him about the benefits of alkalising the body and through his own research came across a book with a prescribed method of alkalising the body using bicarbonate of Soda and maple syrup. The bicarbonate was mixed in water with the maple syrup ( a sugar source) and warmed to dissolve then drunk. The sugar source acted as a Trojan horse feeding the cancer cells whilst also absorbing the alkalising bicarbonate of soda. When he went for his scan 11 days following the start of this protocol he was cancer clear. That is not to say that it is a cure for everyone, there are many factors that may need to be present in order for a complete cure, however it would seem that by alkalising the body you are going to bring at the very least some relief to the immune system, vital for fighting cancer.



Vernon Johnson has his own website, phkillscancer.com. On his website he has a link to what he calls the protocol he used as well as testimonies of other people who have tried it, he also has a youtube video making the bicarb solution. There is another very useful website you may like to look at called Cancer Compass Alternate Route. There is an interesting case of an English gentleman called Allan Taylor you'll find there and can be contacted at the bottom of his page for more information, help and advice. Also under the heading of Cancer at the top of the home page is a link for Pain Relief. Part way down the list is a pain relief remedy for cancer pain using lemons and bicarbonate of soda to release the body of lactic acid that builds up with cancer causing severe pain. Athletes and sportsmen often use bicarb to release a build of lactic acid to relieve pain in their muscles and I have used bicarbonate of soda for years as a cure all to relieve stomach pain or to stop migraines in their track or to relieve the symptoms of flu or stop colds etc as it boosts the immune system.

To note Bicarbonate of soda, not to be confused with baking powder or baking soda, is inexpensive and easily available. I bought some recently in Asda that was in their own brand range in a round cardboard container with nothing else added. Some have additives and some contain aluminium that should be avoided. I would also buy a good quality maple syrup for the protocol. I would start your husband off with ½ teaspoon Bicarbonate of soda stirred into a small cup of room temperature water 3 x day on the first day then increase to 1 teaspoon 3 times a day on the second day. On the 3rd day I would start the Bicarbonate of soda and maple syrup or molasses protocol. If you wanted to try the cancer pain relief recipe using lemon juice I would commence that on the 2nd day then after a few days I would start the bicarbonate of soda protocol with the molasses. You will also need to purchase some pH indicator strips, the best I have found are sold on amazon, link below. If you have problems finding these I would be happy to post some onto you.

I know you have so much to do with your time but I watched a film you may find interesting also on a Hungarian Pioneering Dr Stanislaw Burzynski's who has been successfully treating patients with brain tumours in spite of a campaign to discredit him and put him out of practice that has gone on for decades. Sadly because there is no money in natural cures for cancer such as using for instance nutritional and naturopathic medicine which causes no harm to the body, cases of people curing themselves in such a way are also discredited and not widely reported on as you would hope and imagine they should be, at least in order that people felt they had another choice. Politics rather than common sense take over and so sadly no money is invested in research in this area.

Again I stress I don't wish to give you false hope and don't mean to cause any offensive to yourself or anyone else on the forum, I just feel under the circumstances when your husband is suffering so much pain that it would feel wrong not to share this information if there is even a remote possibility that he might find some relief. I know this is a lot of information and mostly a ramble but there is some very good information within those links below that will far better explain all of this to you.
I sincerely hope your husband finds some relief from his pain.

If I can help in any way please feel free to contact me also by email or phone if you would like to talk further about any of this or just to chat.
Wishing you both all the best Susanna

Fiona xx

http://cancercompassalternateroute.com/

https://www.facebook.com/pages/Cancer-C ... 0856902927

http://cancercompassalternateroute.com/ ... pplements/



http://cancercompassalternateroute.com/ ... line-diet/

http://phkillscancer.com/

http://phkillscancer.com/protocol

http://cancercompassalternateroute.com/ ... ncer-pain/

http://drsircus.com/medicine/sodium-bic ... cer-tumors

http://cancercompassalternateroute.com/ ... treatment/

The Isle of Skye
Posts: 4
Joined: Thu Oct 09, 2014 6:34 am

Re: My 41 years old husband has inoperable pancreatic cancer

Postby The Isle of Skye » Sat Nov 01, 2014 11:50 am

Hello Susanna

This is the link for the pH indicator strips sold on Amazon. These are the best I have found for accuracy and give a wide range indicator, necessary for the Bicarbonate of Soda Protocol. There are cheaper available but have found them to be a waste of money and will not give the accuracy of reading required. I would be happy to post some to you if you wanted to try Vernon Johnson's Protocol but have difficulty acquiring this particular product.

If you did do the Protocol it would be good to record your husbands pH balance and may be worth you writing the date and time on the sticks as he used them. I think Vernon Johnson goes into some detail about how he recorded his results within his protocol link. Keeping a diary to note any improvement can be useful also for your husband to refer back to. Don't worry if you don't record it, it's only for your own record as an indication of a starting point and your husbands progress, but may be useful to share with others on the forum later if he does experience pain relief etc.

In order to see how alkaline Bicarbonate of Soda is dip an indicator strip in a glass of water with ½ teaspoon of Bicarb stirred in. Is off the scale!

All the best, Fiona x

http://www.amazon.co.uk/Test-Strips-Uri ... lex+Health

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby SusannaUK » Sun Nov 02, 2014 10:50 pm

Thank you Jayne and Fiona. I have forwarded all your posts to my husband and of course I've read them too. Thank you Fiona for the detailed explanation of alkalising and all the links you shared with us. They are really useful.

I am very very nervous now! So frightened. At around midday my husband called me from the hospice that he was experiencing a new pain in his stomach and he cannot go to the toilet (no urine either) and it was a very strange pain. After that I tried to call him all afternoon but his mobile was switched off. Then one of the nurses from the hospice called me at 5 pm that he had just put my husband to the ambulance because he'd had this unusual pain since the morning and his abdominal started to be swollen. So the hospice found the best option if they send him to the hospital for investigation by the surgical team. I called him immediately, but he just said one sentence, that he would call me later. Since then I cannot get in touch with him, his mobile is switched off. I am very very scared if something serious happened with him. I think I will call the hospice, they might know something about him...

Take care all of you.
Susanna
x

sandraW
Posts: 1044
Joined: Thu Oct 31, 2013 5:38 pm

Re: My 41 years old husband has inoperable pancreatic cancer

Postby sandraW » Sun Nov 02, 2014 11:34 pm

Susanna, can you not ring the hospital, direct and find out how is feeling as I am sure you will not settle to sleep tonight unless you do. Don't feel that you are bothering them, because you are not, they will tell you husband that you have been on the phone too, and that will help him too. I will be thinking of you, and lets hope they can get him sorted out, please take care love sandrax x