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Re: lurking on the fringes for 10 months

Posted: Thu Sep 11, 2014 1:50 pm
by SusannaUK
Ahhh Jayne, I am so sorry and sad to read your lines. It is an awful illness! It must be heartbreaking for you now. How is your daughter? How is she coping?
Please keep strong, I am thinking of you a lot!!!
Susanna xxx

Re: lurking on the fringes for 10 months

Posted: Thu Sep 11, 2014 1:54 pm
by nikkis
Dear Jayne,
I am so very sorry, I hope you are getting lots of support. You have been amazingly strong and wonderful, so don't worry about having to let it out.
You are always in my thoughts,
Nikki

Re: lurking on the fringes for 10 months

Posted: Thu Sep 11, 2014 2:04 pm
by wackywacky
You will keep strong love,thinking about you all, like the Garry Barlow bit x

Re: lurking on the fringes for 10 months

Posted: Thu Sep 11, 2014 7:05 pm
by rsk1974
As hard as it is at least he's home and you can be with him. Our saddest thoughts was dad was 4 days from being sent home and having palliative care but passed away in a London hospital at 1am, we couldn't get there in time to say goodbye and how much we loved him.big hugs to you, you are doing a fantastic job.

Re: lurking on the fringes for 10 months

Posted: Thu Sep 11, 2014 10:08 pm
by sandraW
Sending cyber (((hugs))) Jayne, you will get through, thinking of you, take care sandrax

Re: lurking on the fringes for 10 months

Posted: Thu Sep 11, 2014 11:06 pm
by Bowie
Jayne, I'm sorry to hear of your husband's struggle and really understand the need to be alone to cry. You sound so strong to be able to hold it together at all. My thoughts are with your, your husband and daughter. Fiona X

Re: lurking on the fringes for 10 months

Posted: Fri Sep 12, 2014 9:04 am
by SueH
Jayne I am so sorry you and your family are in this awful situation. We were in this situation in Feb this year. Bringing my husband home knowing that there was nothing more to be done was heartbreaking. We had wonderful support from our GP and district nurses. Stuart's wish was to be at home and I am so glad he was. If you need any aids for the home like a shower seat your district or MacMillan nurse will sort it out.

I used to go in the garage for a good cry. I think it is important to let it out. My thoughts are with you, best wishes Sue.

Re: lurking on the fringes for 10 months

Posted: Fri Sep 12, 2014 10:42 am
by belgrade
Hello Jayne,
Just wanted to say 'Hang on in there'. This is a terrible time for you all and nothing can take the pain away for you. We are all thinking of you and your family.
Hilary

Re: lurking on the fringes for 10 months

Posted: Fri Sep 12, 2014 1:30 pm
by RLF
You know my thoughts are always with the 3 of you cos I'm bothering you all day by text but I'm adding my extra support here and let those tears flow when you need to, nobody can be a rock 24/7 xxx

Re: lurking on the fringes for 10 months

Posted: Fri Sep 12, 2014 10:55 pm
by Cathy
Hi Jayne

I am so sorry, I know how tough this is. I hope you are getting al the support you need, whether from Macmillans or your DNs.

Thinking of you

Cathy xxx

Re: lurking on the fringes for 10 months

Posted: Sat Sep 13, 2014 5:27 pm
by jay
Im a lot stronger today, jem, I can write his name now as I was always frightened he would read my messages is a lot less confused,i have just asked him the football scores as hes watching the football channel, could tell me, hes an avid Newcastle fan,

I will ask about a shower seat, brill idea, he even managed rice, fahitas, which I cant spell and asked for salsa with his doritos last night, telling carer not to come tonight as we are planning in lying in our bed together,
thank you for all of your support, really appreciate my forum family,
love your texts rob
xx

Re: lurking on the fringes for 10 months

Posted: Sat Sep 13, 2014 7:29 pm
by nikkis
Hi Jayne,
I hope you and Jem are having a peaceful, special evening,
Love,
Nikki

Re: lurking on the fringes for 10 months

Posted: Sat Sep 13, 2014 8:24 pm
by SusannaUK
Hi Jayne,
Me too, I hope you have a peaceful evening together!
I am thinking of you a lot!
Susanna x

Re: lurking on the fringes for 10 months

Posted: Sat Sep 13, 2014 10:05 pm
by jay
thank you everyone, hes sleeping in our bed tonight, I am truly blessed, xxxx

Re: lurking on the fringes for 10 months

Posted: Sat Sep 13, 2014 10:09 pm
by sandraW
Have a lovely cuddly night together take care sandrax