A forum for family, friends and carers of pancreatic cancer patients

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
PCUK Nurse Jeni
Posts: 1106
Joined: Mon Jun 14, 2010 1:30 pm

Re: Trevor's Story

Postby PCUK Nurse Jeni » Wed Feb 11, 2015 4:47 pm

Good to hear this Sandra!

It does sound as all is going OK right now.
Lets hope this trend continues.
Great to hear that T has been examined so thoroughly. And that everything coming back as clear.

Keep up the good work Trevor!

Jeni.

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: Trevor's Story

Postby SusannaUK » Wed Feb 11, 2015 4:54 pm

Dear Sandra,

I also think that stable is good. Also it's good to hear that the Neuropathy is not getting worse. You are both doing amazingly!

Thinking of you!
Love,
Susanna xxx

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Trevor's Story

Postby sandraW » Fri Feb 20, 2015 12:18 am

Hi all, thanks for the kind comments.
Trevor could only have the Oxaliplatin on Monday, as there was a problem with some of his bloods, not the usual chemo bloods though, so he didn't get the 5 Fu or the 5FU pump. He is still suffering with pain in his tummy, sometimes its in his left side, sometimes across his tummy button sometimes lower down. We have to see the Professor again before his next treatment, if its not one thing its another, at the moment for us all. Lets hope things improve and soon!! take care all sandrax xx

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Trevor's Story

Postby nikkis » Fri Feb 20, 2015 8:27 am

Sandra,
Sorry to hear things aren't going smoothly for you and Trevor at the moment. Hope things improve soon,

Love,
Nikki

Fifi

Re: Trevor's Story

Postby Fifi » Fri Feb 20, 2015 9:32 am

Sandra,

How is Trevor feeling in himself? When does he have his next appointment? Is he still eating ok? I so hate all of this.

Leila xx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Trevor's Story

Postby Slewis7313 » Fri Feb 20, 2015 11:23 am

Hi Sandra, sorry to hear Trevor is struggling at the moment. I hope they get to the bottom of the pain soon.

Take care both

Steve
X

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: Trevor's Story

Postby RLF » Fri Feb 20, 2015 4:49 pm

Sorry to hear Trevor is having tummy pains, that's something Carl gets fairly often too but we've never been sure why.
Fingers crossed his bloods improve asap
Rob
x

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: Trevor's Story

Postby SusannaUK » Sat Feb 21, 2015 11:00 am

Dear Sandra,

I'm sorry to read that Trevor is having pain and struggling. I really hope that they will find the cause of the pain and ease it. When is his next CT scan?
Thinking of you!

Love,
Susanna xxx

Ant11
Posts: 125
Joined: Sun Dec 01, 2013 8:43 pm

Re: Trevor's Story

Postby Ant11 » Thu Feb 26, 2015 2:51 pm

Hi Sandra

Just checking to see how you and Trevor are doing. The battle with this relentless disease certainly takes everything from you. Love Annette x

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Trevor's Story

Postby sandraW » Thu Feb 26, 2015 9:28 pm

Aww thanks for asking Annette, the tummy pains seemed to have disappeared, thank goodness, but now he has back ache, but he has been into work ( he and our elder son ran a transport business between them before Trevor had to retire) twice this week just to supervise!!!! Gives him an interest, I suppose but then he comes home absolutely shattered, and looks dreadful, but he finds it so hard to sit around doing nothing.
We found that the reason he couldn't have the 5FU part of the Chemo was because his liver count had risen again, we have to see the professor on Monday before we can have treatment, if they will let him have more of this treatment that is. We had a tumour marker taken on the 9th February, so I am praying that that hasn't risen, if it has I really don't know what we will do.
I hope Tracy is still doing well, love to you all sandrax

Ant11
Posts: 125
Joined: Sun Dec 01, 2013 8:43 pm

Re: Trevor's Story

Postby Ant11 » Thu Feb 26, 2015 9:34 pm

Hi Sandra

Thanks for taking the time to reply. Like so many on the forum you offer such support and help to others when fighting yourself. Fingers crossed for Monday. If you want to contact me please ask the support nurses for my email address I am happy to share ideas and things that we find really helpful. Just remember you are never alone, there is always someone to help. Love to you all Annette xxx

Fifi

Re: Trevor's Story

Postby Fifi » Wed Mar 04, 2015 5:47 pm

Hi Sandra,

What did the professor say? How is Trevor doing now? Hope he doing more resting, than working.

Leila xx

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Trevor's Story

Postby nikkis » Tue Mar 10, 2015 10:57 pm

Hi Sandra,
I see you have and Trevor have been having a tough time, really hope things are better. Thinking of you,
Love,
Nikki

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Trevor's Story

Postby sandraW » Tue Mar 10, 2015 11:23 pm

Well the tummy pains returned with a vengance we had been out for lunch on the Friday, Trevor had not eaten much of his lunch, and about 6 30pm, he started retching and had really bad pain across his tummy under his ribs, not sick as such as he had nothing in his stomach, but couldn't even keep water down. He couldn't sit or lay as he was in so much pain, and I was seriously thinking of ringing the unit. After the retching subsided about 10 30 pm I gave him a 10mg Oxynorm, and after about an hour the pain subsided, but he continued to have it nearly all the weekend. We saw the professor on the Monday, he examined Trevor and said although he could not feel anything in his liver, the liver count had risen yet again, so he was stopping treatment, and organising yet another scan. Also having a tumour markers done, he had requested one on the 9th February, but for some reason it wasn't done. He explained that tumours in the liver do not usually cause pain unless as Didge said the tumour is pressing on the membrane that encompasses the liver, which is what he thinks is causing Trevor's pain (snap Didge), so he put him on oxycontin, twice a day.
I rang up the C/T department at the hospital and the first "urgent" scan is 25th March, so we will have to wait until then, then hopefully see the professor the following Monday. Trevor is still in quite a bit of pain, and he is very tired, all the time, I think he is a bit down at the moment, our eldest son and his family came to stay over the weekend, and our youngest and his family the weekend before, and he was not too bad for the 24 hours they were here, but I don,t know wether he was just putting on a brave front for the grandkids. I am trying to get him out for part of the day, to buck him up a bit, but not too much to tire him out, so all we can do is wait and see and hopefully the break from treatment will help him regain his strength a bit. love to you all sandrax

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Trevor's Story

Postby Slewis7313 » Wed Mar 11, 2015 10:03 am

Hi Sandra, sorry to hear that Trevor is having a bad time at the moment. It does sound ridiculous that his condition warrants stopping treatment but you still have to wait until 25th for a CT Scan! His condition must surely justify an immediate scan?! It must be so frustrating for you both. I hope they can continue to manage the pain in the meantime and that the scan helps them deal with this issue.

Steve
X