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Posts: 1
Joined: Mon Jul 08, 2019 11:14 am

Main branch IPMN

Postby Pam35 » Mon Jul 08, 2019 11:50 am

My husband has been told that he has MB - IPMN but no signs of cancer, which of course we are very relieved about. He has been advised to have a total pancreatectomy.
Is this normal procedure when there is no sign of cancer?
What are the chances that this is a misdiagnosis?
Is it possible to monitor changes in the pancreas on a yearly basis ? Or is this too risky?
If he does not have the operation what are the chances that it will become cancerous?
Is it necessary to have his gallbladder and spleen removed?

Reading this forum has made me realize that we are in a very fortunate position.

Grateful for any advise

PCUK Nurse Rachel R
Posts: 75
Joined: Thu Jan 25, 2018 10:52 am

Re: Main branch IPMN

Postby PCUK Nurse Rachel R » Tue Jul 09, 2019 3:20 pm

Hi Pam35,

My name is Rachel, I'm one of the nurses that works at the charity.

I am sorry to hear that you've been going through a difficult time lately, I'm sure you have been incredibly worried about your Husband.

I wonder whether you may like to give us a call on the support line to discuss this or send an email to us - our details are in the contact strip below.

We do speak to quite a lot of folk about pancreatic cysts.

Hope to be in touch soon.


Rachel Richardson
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707