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Postby Sharlene » Thu Mar 23, 2017 1:58 pm

Hello, I lost my dad on November 20th 2015 to PC, he was just 72 years old and died 3weeks after diagnosis. He was the 10th member of my family to die from this awful disease and the doctor at the Macmillan unit urged us to push for some form of genetic testing, she helped to refer us to Southampton genetics and then onto EUROPAC, My brother has been accepted by EUROPAC and started his screening in January this year, he has been told that he has pancreatitis (doesn't smoke or drink) and is naturally very worried about developing PC, he told me to contact EUROPAC to get myself on the register and I duly contacted them over the weekend, they replied telling me that I am eligible to join the study and that they would be sending me registration forms to sign and return. We feel "in the dark" as no real information can be given to us, all we have been told is that we are a "pedigree" family, I am 43 and my brother is 47, would we be screened indefinitely or not? If anything were found genetically would we be told? My brother was told in Liverpool that they have found links with breast cancer also and as my grandmother and great grandmother both died of this it can make for a stronger link?? All relatives affected are on my fathers side. Any help or advice is appreciated. Sharlene

PCUK Nurse Jeni
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Joined: Mon Jun 14, 2010 1:30 pm

Re: Screening

Postby PCUK Nurse Jeni » Thu Mar 23, 2017 2:48 pm

Hi Sharlene,

Thank you for your post.

I will reply to you via email.

Kind regards,


Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
support line: 0808 801 0707

raun cesar
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Joined: Thu Mar 02, 2017 9:22 am

Re: Screening

Postby raun cesar » Thu Mar 30, 2017 1:40 pm

Hi Sharlene,

Sorry to hear about Dad, The autosomal dominant inheritance is rare in which a gene mutation may pass along a copy of their normal gene or parent may pass along a copy of the gene with the mutation. EUROPAC is good but you have to push them a little...