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Jool2504
Posts: 42
Joined: Wed Sep 19, 2012 12:28 pm

Re: Help - Husband just being diagnosed with advanced cancer!

Postby Jool2504 » Sat Sep 29, 2012 8:14 pm

Hi everyone,
Susi you seem to be the same as us, medication is a nightmare!
Had a terrible night Bill was hallucinating not sure if it was temp or meds, he was singing, dancing in the bed, shouting for people to be quiet, asking for a knife sat bolt upright, I rang the District Nurses who got Dr to call back, we decided to move his lorazepam to lunchtime as maybe clashing with zopyclone. My friend said when she was on zopyclone one night she was found in the garden trying to cut the lawn with scissors in her pj's.
Shakes & tremors get worse the more tired he is I can feel him vibrating through the sofa.
The best part of the day seems between about 1pm & 6pm.
Off to check his temp as says he's cold & shaky.
Good night all.

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: Help - Husband just being diagnosed with advanced cancer!

Postby susikus » Mon Oct 01, 2012 8:53 am

How was the rest of the weekend Jools? I have a feeling we are just learning the pattern and then it changes! Do you have chemo again on Wednesday? I wonder if the pattern of the last week will be repeated or whether it will be different again...

Jool2504
Posts: 42
Joined: Wed Sep 19, 2012 12:28 pm

Re: Help - Husband just being diagnosed with advanced cancer!

Postby Jool2504 » Mon Oct 01, 2012 7:33 pm

Just done a post and its not worked.
Bills still hot & cold not eating much really keep pushing the fortisip.
How did your hubby's chemo go, any reactions?
Were at my parents for the night, hope he sleeps ok he seems quite settled, he's been asleep most of the time we've been here.

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: Help - Husband just being diagnosed with advanced cancer!

Postby susikus » Mon Oct 01, 2012 9:35 pm

Pete's reaction to the chemo was increased nausea and pain. We saw our MacMillan nurse this afternoon and she was careful in getting him to describe what happens and thinks it is the nausea that sets in first and then that causes movement, retching, increased pain, which in turn induces more nausea, a vicious spiral. So she thinks he should have more MST, continue the regular anti-nausea meds that he has all week and then on chemo day add in a powerful anti-nausea drug that is also sedating. She said last weekend's symptoms were not acceptable and that made me feel better about it. Today has been a better day, he has had a bit more energy (not much!) and I have done a fair bit. So now we make the most of the next few days and start all over again on Friday. Have a good day tomorrow Jools and good luck for Wed, presumably you are having chemo again that day?

Jool2504
Posts: 42
Joined: Wed Sep 19, 2012 12:28 pm

Re: Help - Husband just being diagnosed with advanced cancer!

Postby Jool2504 » Thu Oct 04, 2012 6:18 am

Bill had his chemo yesterday, whilst he was there I found his specialist nurse to tell her about his condition, she went & had a look at him especially his left toes which are now turning black. Said she would speak to oncology consultant. When we got home the GP who came out last week rang to see how he was getting on with anti depressants, told him Bill still wasn't sleeping & worried about his toes. He came straight out. Looked at his foot & called specialist nurse who told him she would speak to oncologist next day. GP was still not happy so rang vascular team at hospital, Bill was admitted to SAU in the afternoon. He has no pulse in his left wrist & right femoral down his leg. He also has a rash on his right side of stomach. From 1pm till 9pm he had no meds so started feeling sick, in the end I had to give him his meds as he was in so much pain. He eventually was given a sandwich before I tucked him up & he drifted off to sleep around 10pm. Macmillan nurse rang during afternoon she'd had a call from specialist nurse. She's coming to visit this morning either to home or hospital. Bill could have come home but would have gone on vascular outpatients list, because he stayed in he will see one next day. It's 6am Thursday morning & wished I was with him, will go back to bed & ring ward at 8am, the nurse said he maybe moved during night if beds available on vascular ward, personally think he should be on oncology ward so they can watch for side effects from yesterday's chemo! Lets hope today brings better results, the GP thought he has start on gangrene in his toes.

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: Help - Husband just being diagnosed with advanced cancer!

Postby susikus » Thu Oct 04, 2012 7:18 am

Oh Jools, hugs for you, what a long, exhausting and unhappy day for you. No wonder you are up early and worrying. I hope today brings better news and that they can do something for Bill's foot and rash, keep us posted. Lots of love, Sue

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: Help - Husband just being diagnosed with advanced cancer!

Postby DRAD3 » Thu Oct 04, 2012 8:06 pm

Hi Jools
So sorry to hear about Bill's difficult time. Good to know that he is in hospital and hopefully will have seen doctors today who will have acted on the possible gangrene. It is obviously very important that his vascular system is working and my feeling is that this is the priority at the moment so he is in the right place (today anyway) - do let us know how it has gone. As always, we continue to think of you and Bill and sent lots of love and strength.
Deb
X

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: Help - Husband just being diagnosed with advanced cancer!

Postby laura » Fri Oct 05, 2012 12:01 am

oh jools, what a bad time you are both having! it seems nothing but bad news after bad news, for everyone on here, i know this isnt a walk in the park, but there really seems no let up for anyone, sincerly hope bill soon feels brighter, and you feel happier.

my love and best wishes to you and bill, and to all my friends on here i wish you peace and strength love laura xxxx

ps i had a much looked forward to, massage today at home, ahhh me time!!! hmmmph, my daughter called in to leave her dog with us for the night, accompanied by her son of 17,
[me laying face down with very little on, not a pretty site!!!] they had conversation with bri, kissed me goodbye,, the fone went, was the dr about my friend wendy she not good today, i talked to him whilst being massaged! then my other neighbours husband came in to ask me what was happening about wendy, cos he thought she was not looking good!!!
jess the massauer said "best if we stop now cos you wont get much benefit from this!!!"
oh well such is life, ive booked one for nxt wk and not telling anyone lol nite nite all xxxx

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: Help - Husband just being diagnosed with advanced cancer!

Postby susikus » Fri Oct 05, 2012 6:45 am

How is Bill today? I hope you had some better news and help yesterday Jools. Let us know when you can. We're going for second chemo today - right behind you!
lots of love, Sue

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: Help - Husband just being diagnosed with advanced cancer!

Postby yorkypaul » Fri Oct 05, 2012 7:55 am

Hi Jools. I hope that the hospital get to grips with the extra problems Bill is having at the moment. Do let us know how today goes for you both. You are in my thoughts and prayers.
Hugs, Paul

Jool2504
Posts: 42
Joined: Wed Sep 19, 2012 12:28 pm

Re: Help - Husband just being diagnosed with advanced cancer!

Postby Jool2504 » Fri Oct 05, 2012 4:40 pm

Hi, thanks for your posts it's much appreciated.
Side effects from Wednesday chemo have started he feels very sick so got him more anti sick meds prescribed.
He seems better in himself said the Drs mentioned having toe amputated but its nowhere in his notes. Being taken off anti depressants as making him too sleepy in the day & reacting with sleeping pills.
His toes look better apart from one with black end. Specialist nurse thinks they should leave it & it'll probably drop off. Exactly what happened to his wife.
My friend came yesterday but has gone now, great to see her she's looking after things at my home, which is great.

susikus
Posts: 188
Joined: Wed Sep 05, 2012 11:01 am

Re: Help - Husband just being diagnosed with advanced cancer!

Postby susikus » Fri Oct 05, 2012 7:46 pm

I hope he is feeling better soon Jools - has it been the same pattern as the first time? Or maybe it's too soon to see a pattern. Pete had his second chemo this afternoon and so far is OK, but it's far too soon to say really. We have used much stronger anti-emetics this time and he had to have a reduced dose as he has jaundice now. Seeing the consultant again on wednesday. It feels that this horrid disease has always got something else to shock you with! Hugs to you and Bill, love Sue x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: Help - Husband just being diagnosed with advanced cancer!

Postby yorkypaul » Fri Oct 05, 2012 9:49 pm

I hope the anti sickness meds kick in soon. Apart from the horrible feeling, nausea and vomiting do make you very tired. Glad things are being looked after back home. At least that's one less thing to worry about.
Hope you both have a good night's sleep.
Hugs, Paul

Jool2504
Posts: 42
Joined: Wed Sep 19, 2012 12:28 pm

Re: Help - Husband just being diagnosed with advanced cancer!

Postby Jool2504 » Mon Oct 08, 2012 6:47 pm

Hi everyone,
Bills still in hospital, changing him from heprin to worfrin over next few days. The end of his toe is being left to drop off. Chemist been cancelled this week to let meds settle in. Has a blockage in his right leg. Oncology again next Monday. I'm at hospital usually 12 hours a day. Don't want to miss a minute with him

Hope everyone else & their lived ones are doing ok?

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: Help - Husband just being diagnosed with advanced cancer!

Postby DRAD3 » Mon Oct 08, 2012 7:00 pm

Hi Jool - so sorry to hear how things are with Bill. This must be so worrying for you and exhausting with not wanting to leave the hospital. Sending you love and hoping that things improve soon.
Deb
x