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laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

bri's progress

Postby laura » Thu Feb 23, 2012 4:04 pm

hi everyone, just to say that our visit to the specialist today was very positive, there has been NO changes shown on his scan of last week, so we have an appointment for three months time, preceded by a further scan , this is. of course the absolute best we could of hoped for and i am so relieved, but feel sort of strange, cant explain it.!!
have sat reading on here for an hour,wanting to post, not quite knowing what to say, cos i feel so bad about all the sadness of others on here, please remember my thoughts are with each and every one of you.
love laura xxx

dmc236
Posts: 44
Joined: Tue Jan 10, 2012 1:47 pm

Re: bri's progress

Postby dmc236 » Thu Feb 23, 2012 4:10 pm

so pleased for you both laura :D

Nardobd
Posts: 479
Joined: Sat Feb 14, 2009 6:25 pm

Re: bri's progress

Postby Nardobd » Thu Feb 23, 2012 6:28 pm

I'm so pleased for you both Laura....but I know where you are coming from, there have been times where I've almost felt guilty about having positive news when so many are facing heartache. Remember, though, that this board reflects life - both positive and negative news is important and when we can be positive it helps to give hope to others, particularly new patients and their carers/loved ones. So, keep posting those results. We waxnt to help you celebrate them.

Nicki

CFF
Posts: 56
Joined: Fri Apr 22, 2011 9:38 am

Re: bri's progress

Postby CFF » Fri Feb 24, 2012 8:22 am

I agree, I think we absolutely need to hear the good stuff - made my day.

xx

Sam77
Posts: 6
Joined: Wed Feb 08, 2012 4:12 pm

Re: bri's progress

Postby Sam77 » Fri Feb 24, 2012 10:20 am

I agree it is so good to hear some good news and gives others like me the hope that good things can happen and it's not all doom and gloom.

So pleased for you both And make the most of this good news and enjoy life.

Sam xxx

rachelqt
Posts: 175
Joined: Tue Sep 20, 2011 9:18 am

Re: bri's progress

Postby rachelqt » Fri Feb 24, 2012 12:34 pm

Ah Laura that is just brillant, im so happy for you both!! I think it is so important to hear the positive stories too, I remember searching the internet about PC when dad was just diagnosed, and it was these positive stories that gave me, mum and dad the hope and strength to deal with it. Although unfortunalty as I type this, my dad is on his way to hospital. He has taken a cold but this past two nights has taken a bout of shivers lasting 30-45min, developed a cough, not eating and low temp. So they want to check him over. It seems like an infection and may need an antibotic. So hopefully we get him sorted and back on his feet soon. Will know more in a while.
Rachel xx

rachelqt
Posts: 175
Joined: Tue Sep 20, 2011 9:18 am

Re: bri's progress

Postby rachelqt » Fri Feb 24, 2012 2:52 pm

He has a infection so they are keeping him in for approx 5 days. He is not too happy but he is in the right place and getting good care! If he had his way he would have suffered all weekend and god knows what situation he would be in. We just had to over rule him this time.
Laura hope you and Bri have a great weekend and enjoy that nice mild weather (thats if its anything like here in N.Ireland)
Chat soon..Rachel xx

PCUK Nurse Jeni
Posts: 1101
Joined: Mon Jun 14, 2010 1:30 pm

Re: bri's progress

Postby PCUK Nurse Jeni » Fri Feb 24, 2012 3:53 pm

Laura,

Absolutely brilliant news!!! Just brill!

From a clinical point of view, I know the significance of these kind of consultations, so I am really delighted with the news!! I am very pleased for both of you. Brian must be over the moon!

Well done to both of you for your positive attitude, and for supporting others as you do. Always be ready to share good news Laura! There may be very little good news at times, so very welcome.

Enjoy your weekend, and celebrate together!

Jeni.

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: bri's progress

Postby laura » Fri Feb 24, 2012 7:26 pm

hi everyone, and thankyou for all your good wishes to us , i really do appreciate them,

rachel, sorry to hear about dad, tis a nuisance when infections get hold, under normal circumstances he would probably been ok, the chemo can lower resistance to things like this, so as you say, hes in the best place.
one thing i will share with you, when bri was in for similar problem, his tablets were given at "round time" this included creon which he needed at mealtimes, not two hours after,! they seemed unable to co-ordinate this, [he was in acute assesment, where they deal with all admittances,] as they didnt understand the way creon worked? so if dads taking creon you might need to see whats happeneing,
other than that he was cared for very well. bri also suffered a lot with bouts of shivering, then he really had bad sweats after, next morning seemed as right as rain!
so hope he goes on well thru this "blip"

thanks once again for all your good wishes. and mine go out to all of you on here.
love laura xx

louiepc
Posts: 238
Joined: Wed Aug 10, 2011 10:38 pm

Re: bri's progress

Postby louiepc » Fri Feb 24, 2012 7:51 pm

Oh Laura I am so happy for you both. Don't feel bad for posting positive news, as rachel said when mum was first diagnosed I looked for positive stories. Have a fab weekend, celebrate yr good news. xxx

Rachel, hope yr dad gets over his infection soon. Xxxx


Louie xxxx

PCUK Nurse Jeni
Posts: 1101
Joined: Mon Jun 14, 2010 1:30 pm

Re: bri's progress

Postby PCUK Nurse Jeni » Mon Feb 27, 2012 4:20 pm

Very good point about the creon Laura, and you are not the first person to communicate this news to us.

One way to counteract this is to self - medicate when in hospital, especially for things such as creon. It is not great that something as basic as this can't be coordinated. It does enhance the persons quality of life when Creon is given properly.

Jeni.

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: bri's progress

Postby laura » Thu May 24, 2012 11:54 pm

hello everyone, old and new friends, well we had our 12 week consultation today,and i am so relieved to tell you all that it was another good meeting. our specialist said " brian you are doing so well, we can hardly see the tumour, the chemo obviously did its job"!
So for us another sigh of relief, to all of you wherever you are on this rollercoaster of a journey, i wish you well, stay positive. laugh and love each other whenever possibly. my thoughts are truly with each and every one,
love laura xx

rachelqt
Posts: 175
Joined: Tue Sep 20, 2011 9:18 am

Re: bri's progress

Postby rachelqt » Fri May 25, 2012 7:58 am

Hi Laura, oh my goodness that is just the best news!! So happy for you both. Bri is such a positive story...Hope you both enjoy the lovely sunshine..
Chat soon...Rachel xx

PCUK Nurse Jeni
Posts: 1101
Joined: Mon Jun 14, 2010 1:30 pm

Re: bri's progress

Postby PCUK Nurse Jeni » Fri May 25, 2012 3:23 pm

Dear Laura and Brian,

So very pleased to hear your good news, again! Very well done and long may it last.

This is really just the best news you could ask for. What a great weekend ahead! Enjoy the sunshine and do something special!

Kind regards,

Jeni.

louiepc
Posts: 238
Joined: Wed Aug 10, 2011 10:38 pm

Re: bri's progress

Postby louiepc » Fri May 25, 2012 7:41 pm

Laura and bri,

I am so very happy for both of you on your wonderful news. Enjoy the lovely weather and celebrate.

Love louie x