A forum for advanced pancreatic cancer issues

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NiaD
Posts: 8
Joined: Tue Apr 05, 2011 10:24 pm

My husband has just been diagnosed...

Postby NiaD » Wed Apr 06, 2011 9:05 pm

My husband was very recently diagnosed with Pancreatic Cancer, which has spread to his liver. He is quite jaundiced and we have been told that he cannot have chemotherapy because of this and because his liver is 3/4 tumour. From the time he was diagnosed two weeks ago to now, he has put on around a stone in weight (due to the ascites in his abdomen and feet) and is extremely tired. He has lost weight in his cheeks and neck and is very tired. We are still trying to get his medication right (was on Oxycodone 20mg mornings and 40mg evenings with Oxynorm 5mg for breakthrough pain). He is also on Omeprazole (antacid), Paracetamol for fever, Laxido for constipation and Questran Light for the pruritis. He has been started on patches tonight for pain instead and is currently sleeping. He's on a ripple mattress as he's been spending a lot of time in bed...too tired to do anything else.
Our world has come crashing down around our ears in a matter of days/a few weeks. He was a taxi-driver until recently and thought he had a bad back due to driving almost daily for 16 years. How wrong could we have been? Kevin is only 41.

lynbo
Posts: 269
Joined: Sat Aug 28, 2010 6:23 pm

Re: My husband has just been diagnosed...

Postby lynbo » Wed Apr 06, 2011 11:10 pm

Hi NiaD

Has your husband had appointments with an oncologist?
It's all a shock , I can imagine.
As he has only just been diagnosed, maybe they will tweak his meds so he is less tired.

Were all on here to help, don't feel alone
Xxxx
Lynne

Ellie
Posts: 302
Joined: Thu Sep 04, 2008 11:03 pm

Re: My husband has just been diagnosed...

Postby Ellie » Wed Apr 06, 2011 11:32 pm

Hi NiaD

So sorry to hear about your husband. What an awful shock for you all, just like for so many of us on here. You never think the worst will happen to your family, do you?

I hope the doctors can get your husband comfortable and pain free. Try to take one day at a time and don't forget to look after yourself, too.

You will find a lot of support on here.

Sending my best wishes

Ellie
x

NiaD
Posts: 8
Joined: Tue Apr 05, 2011 10:24 pm

Re: My husband has just been diagnosed...

Postby NiaD » Thu Apr 07, 2011 9:06 am

Thank you both. No Lynne, we didn't get as far as the oncologist, though he was admitted to the oncology ward for two nights, then discharged.
He's had a bad night and I can't believe how ill he looks this morning. It breaks my heart to see him like this, a man who doesn't go to his GP often, he doesn't even like taking paracetamol, let alone everything he's on now. His ascites is much worse this morning and I'm beginning to worry that we have less time than we thought. This man is my rock, what will I do without him?

PCUK Nurse Jeni
Posts: 1112
Joined: Mon Jun 14, 2010 1:30 pm

Re: My husband has just been diagnosed...

Postby PCUK Nurse Jeni » Thu Apr 07, 2011 9:48 am

Hi Nia,

My name is Jeni and I work for PCUK.

So sorry to hear about your husband.

Has your husband had his ascites drained yet? If not, then maybe he needs to be admitted for this to be done.

My contact details are at the top of every forum page, so if you need to contact me, feel free.

Kr,

Jeni.

Ellie
Posts: 302
Joined: Thu Sep 04, 2008 11:03 pm

Re: My husband has just been diagnosed...

Postby Ellie » Thu Apr 07, 2011 6:01 pm

Hi Nia

Sorry to hear your husband wasn't so good this morning. I hope you managed to get something done for him and he is feeling better by now. Hope you are also getting plenty of support from your GP, district nurse or hospital contacts.

I can imagine what you are going through. Keep your chin up and try to stay strong.

Thinking of you and sending my best wishes

Love
Ellie
x

lawalsh
Posts: 39
Joined: Sat Feb 26, 2011 12:21 pm

Re: My husband has just been diagnosed...

Postby lawalsh » Fri Apr 08, 2011 10:53 am

Hello there,

I read your post and felt so sad for you. Do try and stay strong and let us know how your husband is going on, this forum is very supportive, please keep in touch and we're here for you if you need to communicate, it will stop you from being and feeling alone. Jeni is very good too, from pcuk, and Anna, they have accurate medical info and nurse only with this condition, they are very good to contact. I spoke to Jeni right at the beginning of my dad's diagnosis and learnt a lot which made me feel a bit better equipped to cope.

Sending you a big hug, take care...

Love LA xxx

ladywood
Posts: 39
Joined: Mon Nov 29, 2010 11:31 pm

Re: My husband has just been diagnosed...

Postby ladywood » Fri Apr 08, 2011 6:48 pm

Dear Nia, just want to say I'm so sorry you are going through all this. It is so very, very hard and my heart goes out to you and your husband. Like everyone else has said you will get a lot of support from this forum. Will be thinking of you both. Love Marie x

Ellie
Posts: 302
Joined: Thu Sep 04, 2008 11:03 pm

Re: My husband has just been diagnosed...

Postby Ellie » Fri Apr 15, 2011 5:03 pm

Hi Nia

Just wondering how you and your husband are getting on? Has he been more settled with his patches? How are you coping?

It's exhausting and frightening to cope with something like this, so hope you are doing ok.

Thinking of you.

Ellie
x

NiaD
Posts: 8
Joined: Tue Apr 05, 2011 10:24 pm

Re: My husband has just been diagnosed...

Postby NiaD » Mon Apr 18, 2011 11:26 pm

My lovely husband died on the 15th April, just a few days ago. He was discharged from hospital on the 30th March and came home. I cared for him here, with the help of the GP, District Nurses, Beacon of Hope (local charity) nurses, Marie Curie nurse and of course, family. Kevin was incredibly brave and was busy making arrangements for the 'end'. He was also constantly on the phone to friends and relatives, trying to ensure that people patched up any differences they had and organising selling his beloved car to help pay for the funeral to come.
He became more and more ill with each day, often in pain because the GP's were unable to get the medication at the right level to keep him pain free. I'm not blaming anyone but it was frustrating when he was in pain or at the least, uncomfortable. He deteriorated rapidly in the last few days, and died peacefullyat home with me holding his hand. He was my shining star.
I knew Kev was a popular man, always smiling, always making people laugh, but I had no idea of the depth of feeling that his friends obviously have for him and am amazed at how kind they have been to me. I can't believe that this has happened so fast. A month from diagnosis to his death has left us all feeling totally stunned. What an awful disease this is.
Nia.

Ellie
Posts: 302
Joined: Thu Sep 04, 2008 11:03 pm

Re: My husband has just been diagnosed...

Postby Ellie » Tue Apr 19, 2011 7:44 am

Oh Nia,

My heart goes out to you so much. I am so very sorry to hear the news. You had so little time, but a small comfort must be that you were with your husband
at home at the end.

I sincerely hope that your family and friends will help see you through this awful time.

Sending love and hugs.

Ellie
x

PCUK Nurse Jeni
Posts: 1112
Joined: Mon Jun 14, 2010 1:30 pm

Re: My husband has just been diagnosed...

Postby PCUK Nurse Jeni » Tue Apr 19, 2011 11:09 am

Dear Nia,

I am very sorry to hear about your husband.

Please accept the condolences of the charity, as well as my own personally.

Jeni, PCUK.

lynbo
Posts: 269
Joined: Sat Aug 28, 2010 6:23 pm

Re: My husband has just been diagnosed...

Postby lynbo » Tue Apr 19, 2011 11:13 pm

Hi Nia

Just wanted to send you a big hug, I know how you feel, my Andy was 7 weeks from diagnosis.
I'm thinking of you, and hope your coping as best you can
Lots of love
Lynne
Xxxxxxx

ladywood
Posts: 39
Joined: Mon Nov 29, 2010 11:31 pm

Re: My husband has just been diagnosed...

Postby ladywood » Wed Apr 20, 2011 3:41 pm

Dear Nia, just wanted to say I am so sorry to hear about your husband, he sounded like a wonderful man. Will be thinking of you at this sad time. Love from Marie

NiaD
Posts: 8
Joined: Tue Apr 05, 2011 10:24 pm

Re: My husband has just been diagnosed...

Postby NiaD » Wed Apr 20, 2011 8:03 pm

Thank you for your comments, they do help. The funeral is next Tuesday, I'm absolutely dreading it.