SusannaUK Posted March 26, 2015 Share Posted March 26, 2015 Great news Steve! So glad to read this! You are a true fighter!Keep it going!Susanna x Link to comment Share on other sites More sharing options...
Go green sue Posted March 28, 2015 Share Posted March 28, 2015 Great news Steve, keep us informed.Sue xx Link to comment Share on other sites More sharing options...
laura Posted March 29, 2015 Share Posted March 29, 2015 Hi Steve, just been catching up on your posts. Absolutely brilliant eh!. Have also posted on "bri's progress". Love to you and your family. Well done again. Did I ever say that BRI was born in Barry Island, then lived and worked in Cardiff. Xx Link to comment Share on other sites More sharing options...
Slewis7313 Posted April 10, 2015 Author Share Posted April 10, 2015 Apologies all for not having posted much over the last week, especially with so much going on. I have been reading the many updates and whilst catchup is impossible, I have been thinking about you all. Whilst not as bad as many here, I have had an unusually difficult week with a fair bit of ongoing sickness which now seems to have settled down.There have been very positive developments on the Nanoknife front, with a good Liver MRI report which indicates the 12 spots seen last May are either no longer visible or less than 1/2cm, all down to Folfirinox. Armed with this information, I now have the green light for Nanoknife on 6th May. Everything is in place including payment through my insurance company. I have one more chemo session on 22nd April. We were concerned that my Tumour Marker was rising, albeit relatively slowly and I should have the latest numbers for that today (it was 325 on 9th March).I will keep you all posted and as ever wish you well with your own personal fight with this thing.Take careSteveX Link to comment Share on other sites More sharing options...
Slewis7313 Posted April 10, 2015 Author Share Posted April 10, 2015 Just received my tumour marker results whch have jumped from 325 to 609 in 4 weeks. My Oncologist therefore wants me to revert from the 3 week cycle back to a 2 weekly cycle. I see this happening after my Nanoknife.Has anybody useful information regarding the effect of Nanoknife on tumour marker levels?SteveX Link to comment Share on other sites More sharing options...
MSH Posted April 10, 2015 Share Posted April 10, 2015 I didn't have my markers checked from Dec to May when having the Nanoknife in January, so I can't say for sure. I would have expected them to go down after perhaps a post treatment flare, as the tumour shrinks. Maybe whatever was causing the vomiting has increased the marker for a while. My best wishes for May 6th.Mark Link to comment Share on other sites More sharing options...
EmmaR Posted April 10, 2015 Share Posted April 10, 2015 All Best Steve for May 6th I'm sure Marks post will keep you feeling positive .Emma x Link to comment Share on other sites More sharing options...
Slewis7313 Posted April 10, 2015 Author Share Posted April 10, 2015 Thanks Emma and yes.... Thanks Mark!SteveX Link to comment Share on other sites More sharing options...
J_T Posted April 10, 2015 Share Posted April 10, 2015 Sorry to hear youve been feeling poorly Steve but good news on Nanoknife. Good luck for May!Love Julia x Link to comment Share on other sites More sharing options...
Sueoliver Posted April 10, 2015 Share Posted April 10, 2015 Good luck for May 6th Steve I hope it all goes really well for you. Will be thinking of you and your family.Love Sue x Link to comment Share on other sites More sharing options...
kittycat Posted April 11, 2015 Share Posted April 11, 2015 Good luck for the 6th - not too far away. I've read really positive things about this treatment and it looks like you're in good hands!Sue Link to comment Share on other sites More sharing options...
jay Posted April 11, 2015 Share Posted April 11, 2015 loads of luck for the 6 th Steve,love Jaynex Link to comment Share on other sites More sharing options...
sandraW Posted April 11, 2015 Share Posted April 11, 2015 Steve,Hope you are feeling a bit better now, good luck for the 6th, will be thinking of you take care sandrax Link to comment Share on other sites More sharing options...
RLF Posted April 11, 2015 Share Posted April 11, 2015 Shorty to hear you're being sick, but good luck for he Nanoknife. In regards to markers carls dropped from 200 and something to 70, 2 weeks after ablation the first time then to 31 2 weeks after that and then down to 13 for 7 months. This time they dropped from 645 to 240 in 2 weeks and they've not done them in the last month for some reason. But yes they have dropped nicely each time it's been done so hopefully yours will too!Rob Link to comment Share on other sites More sharing options...
Slewis7313 Posted April 22, 2015 Author Share Posted April 22, 2015 Thanks all for the comments. I started cycle 20 today and all went reasonably quickly (09:15 to 15:30). A bit of good news today was that the rapid marker increase seems to have slowed down. My last reading was 609 two weeks ago (a doubling from the previous result), but today's has only risen to 635.... a big smile on my face and puts me in a really good frame of mind for my Nanoknife on 6th May. Hoping for a good Summer!SteveX Link to comment Share on other sites More sharing options...
Didge Posted April 22, 2015 Share Posted April 22, 2015 I hope so too, Steve. x Link to comment Share on other sites More sharing options...
J_T Posted April 22, 2015 Share Posted April 22, 2015 Excellent news Steve! Keep it coming Good luck with the Nanoknife.Love Julia x Link to comment Share on other sites More sharing options...
PCUK Nurse Jeni Posted April 23, 2015 Share Posted April 23, 2015 Hi Steve,Excellent news all around! On the 6th May - we will be all keeping our fingers crossed that the nanoknife will send a few big hitting messages to these tumours! Like, "get outta here"!! Hope that things go really positively - you sure deserve it.Jeni. Link to comment Share on other sites More sharing options...
Sueoliver Posted April 24, 2015 Share Posted April 24, 2015 Hi Steve it is lovely to read some good news! I will be thinking of you and hoping it all goes well you certainly deserve it!Good luck with it all,Sue x Link to comment Share on other sites More sharing options...
jay Posted April 24, 2015 Share Posted April 24, 2015 great news Stevelove Jaynex Link to comment Share on other sites More sharing options...
Slewis7313 Posted May 4, 2015 Author Share Posted May 4, 2015 Well.....it is finally about to happen. I am travelling to London tomorrow to undergo Nanoknife on Wednesday with Professor. Failing any last minute hitches, I will be admitted at 10:00 on Wednesday, to be zapped at 14:30 and released at 11:00 on Thursday. I will try and document the experience to be able to share it with your good selves. At this time, I am unsure how long it will take to assess the effect of the procedure, but again, I'll keep you posted.PS Rob, they offered us a discounted rate for the Z bed of only £150 per night! They do however have a wide selection of quality wines!SteveX Link to comment Share on other sites More sharing options...
Didge Posted May 4, 2015 Share Posted May 4, 2015 Ah Steve that's wonderful news. I work quite near the hospital so will be especially sending positive thoughts your way! Hope it all goes well. Didge x Link to comment Share on other sites More sharing options...
J_T Posted May 4, 2015 Share Posted May 4, 2015 Safe journey and hope the procedure goes well. £150 for zed bed? Bargain! not ha ha!Good luck Julia x Link to comment Share on other sites More sharing options...
kittycat Posted May 4, 2015 Share Posted May 4, 2015 Good luck Steve, will be thinking of you and look forward to your updates.All the best.Suex Link to comment Share on other sites More sharing options...
belgrade Posted May 4, 2015 Share Posted May 4, 2015 Hi Steve,Hope all goes well for you.Take care,Hilary Link to comment Share on other sites More sharing options...
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