A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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cbrooks
Posts: 14
Joined: Tue Jan 28, 2014 11:53 pm

Re: So far so good!

Postby cbrooks » Sun May 18, 2014 9:01 pm

Hi steve, been thinking of you and glad to hear you had a lovely holiday, and have just been reading how your treatment is going as I remembered that you started it last week. Hope you can sort the nausea out, must be horrible. Havent been on the forum for a while things have been really hectic this end! poor old dad has spent last few weeks in and out of hospital, chest infection then heart attack so no more chemo for us I don't think! Hope you are feeling good and that the next week goes smoothly. Cath x

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Sun May 18, 2014 9:49 pm

We used to have the district nurses come and unplug the 5FU bottle and I know Cathy used to do Jonathans. We had a lovely big yellow bucket at home for the purpose!
Last edited by J_T on Mon May 19, 2014 12:28 pm, edited 1 time in total.

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: So far so good!

Postby RLF » Mon May 19, 2014 1:04 am

Hi Steve, sorry to hear about the liver troubles, hope the chemo can kick it back into line!

If the sickness is continuing to be a problem get a sickness driver or lots of people recomend Emend and I think I'll get Carl to ask for that next time.

You shouldnt have to go back into hospital to get the 5FU removed, like J_T says a district nurse should come over and unplug it for you. Save you the journey! If not get them to show your missus how to?

Hope you're feeling better!
Rob

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Mon May 19, 2014 6:58 am

Thanks yet again all for the advice. Just to clarify one thing, having the pump removed at the Chemo Centre actually suits us as we are less than a 10 minute drive away. It also offers up the opportunity of a cup of tea at Maggies. Had we lived further away, I am sure they would have given us other options.

The sickness is getting better and I am confident we will be able to manage it well going forward.

Steve
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Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Mon May 19, 2014 5:25 pm

Got a call from my Specialist Nurse and have collected Metoclopramide from the Hospital Pharmacy. One of the drugs recommended by the lovely people here. Lets give it a shot!

Steve
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Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Mon May 26, 2014 1:05 pm

Currently having my Folfirinox. WiFi in the chemo unit is a bit of a novelty, but it is easier to keep my girls updated on progress. Last week's bloods show my CA19-9 has now risen to just over 2000, but I am confident 'The Fox' will bring that down in time. I have also now been given a supply of Emend for the sickness, so all looks to be falling into place. No ill effects yet and I hope/expect the sickness to be more manageable this time round.

It is sunny outside, so I hope you lot are having a more fun Public Holiday than me, though mine can certainly be classed as productive. I have however entered into the spirit of the holiday, with shorts and sandals (no socks though!).

Steve
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Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

Re: So far so good!

Postby Sones » Mon May 26, 2014 4:50 pm

Hi Steve, so pleased to hear no socks with sandals lol and by the way weather is absolutely terrible in my neck of the woods...

Really hope all goes well with chemo and any side effects are minimal.

Take care

Sue.x

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: So far so good!

Postby Cathy » Mon May 26, 2014 4:50 pm

All sounds good Steve,

Yes, I think if you can get to grips with the sickness it will be much easier.

Can't believe the weather though... It's been grey and drizzly down here in London.

Cathy xxx

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: So far so good!

Postby nikkis » Mon May 26, 2014 10:16 pm

Hi Steve,
I haven't been here much recently, am sorry to hear you have had a set back, but great that you are tackling it head on. Chemo on a bank holiday, that's impressive!
Hope you feel ok after this session.
Best wishes,
Nikki

LMD
Posts: 120
Joined: Tue Apr 15, 2014 10:06 pm

Re: So far so good!

Postby LMD » Mon May 26, 2014 10:37 pm

Hi Steve
Hope you feel ok after your chemo session today...
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Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Tue May 27, 2014 6:35 pm

I won't publish every day regarding my Folfirinox experience, but the last 24 hours have seen a big change from the first cycle. Nothing to report during the chemo yesterday, but the tablets seem to be making a difference. I have had no sickness (not even just feeling sick). The onset Neutropia was almost immediate and the tingling comes and goes, though not painful. The diarrhoea has even backed off for now which is a real bonus.

All in all, a massive improvement on cycle 1, so hopefully a sign of things to come.

Steve
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EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: So far so good!

Postby EmmaR » Tue May 27, 2014 8:27 pm

So glad to hear that Steve hope it continues that way and that you can enjoy the summer on the Gower ...
Take care Emma x

InfoForMum
Posts: 332
Joined: Mon Aug 19, 2013 12:01 pm

Re: So far so good!

Postby InfoForMum » Tue May 27, 2014 9:50 pm

Hi Mr,

Been away for a bit, but wanted to see how you all are. New googlies i note (careful not to typo that one)! On-going determination to kick the wee (insert preferred expletive)'s ass still in place - good stuff.

Emend - totally the ticket and hope it does the job. Usually given as a loading dose of tablet 1 immediately pre-chemo then tablets on days 2 and 3. It isn't a great follow on if you're already nauseous, unless they've created a "take it when you need it" version. There wasn't such a thing when I researched it to help Mum's on-going low level nausea post CRT.

Sending warrior vibes and hugs

Sarah

Bowie
Posts: 115
Joined: Sat May 03, 2014 10:35 pm

Re: So far so good!

Postby Bowie » Wed May 28, 2014 7:43 am

Dear Steve, glad your chemo seems to be going OK. You are our inspiration and we look every day to see if you've posted. James' diarrhoea was getting worse and he is now so skinny, Creon OK, but a bit hit or miss. Anyway he now has a banana, your tip, before every meal and mostly this seems to help. Plus I'm sure the extra calories are helping. Does anyone have an opinion as to whether it's worth going for a really healthy diet, possibly vegan ? Before all this started he was pretty healthy, liked wine with a meal, OK probably most of a bottle and a pint or two each night at our local. However when it came to food he ate mostly fish and chicken and lots of sald and fruit and veg, with an occasional curry and Sunday roast. It would be good to get others' opinions in should he now avoid alcohol and just stick to the really healthy stuff or should he have a bit of what he wants. Also he was an ex- smoker, but I'm sure he has started again, although he won't admit this to me. Do you think I should persuade him to stop or is it better to let him enjoy this if it help? Sorry to appear selfish and obsessed with James, but I am and still thinking of everyone else with this most awful and evil of diseases. Fiona X

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: So far so good!

Postby jay » Wed May 28, 2014 8:57 am

Hi Steve,
Hope the chemo is going ok.


Fiona- my husband was told just an odd drink by his surgeon so he has a glass of wine once a week. I don't know if the surgeon meant he could only have this amount for ever, thought about e mailing him.I have tried adding shitake mushrooms and turmeric to everything. Hes been eating what ever he fancies including cakes and chocolate !

Take care
Jayne
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