A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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josi1971
Posts: 19
Joined: Fri Feb 06, 2015 2:38 pm

Re: Symptoms

Postby josi1971 » Sat Feb 21, 2015 12:36 am

Still no answers and it been 10 days, so so frustrating husband in pain again today and tonight don't know what to do

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Symptoms

Postby Didge » Sat Feb 21, 2015 1:18 pm

Hi Josi. I would consider going to A and E. Severe abdominal pain should always be taken seriously and, from the stories on here, you will know that it often isn't. Mabye an A and E doc will be able to get the results. It is true that if anything bad was on the scan you should have heard by now, but on the other hand you don't know for sure what has been scanned and how clear it is. I think around half of PC sufferers are diagnosed after going to A and E and many cancer patients generally so you should not worry about doing that. We all hope that it will not be PC but whatever it is, if he is that much pain, it needs to be looked at urgently. good luck! x

MSH
Posts: 228
Joined: Tue Apr 30, 2013 11:03 pm

Re: Symptoms

Postby MSH » Sat Feb 21, 2015 1:36 pm

Josi, for what it's worth I think it unlikely that your husband has PC. It's not impossible but his age and the duration of his symptoms would be points against. That said we all tend to think the worst and you need the results of the scan as soon as possible. I would tend to think the long reporting time to be relatively reassuring. Firstly if the consultant had been worried the request form would have indicated some urgency. Secondly at least for plain x-rays and I assume for scans the radiographers often are able to flag up any anomalies for early reporting.

That said you should certainly have had the scan result by now and your husband should phone again later on Monday morning. If the pain becomes very severe you may need A&E again and if this is the same hospital group the scan should be on their computer system. Not everyone will be able to interpret it but someone might be able to spot something if there's anything obvious.

I hope it's good news on Monday.

Mark

josi1971
Posts: 19
Joined: Fri Feb 06, 2015 2:38 pm

Re: Symptoms

Postby josi1971 » Mon Feb 23, 2015 2:04 pm

Thanks Mark and Didge, I asked my husband to ring GP today and get an appointment with them as at least they may be able to make the necessary phone calls / chase up results for us, my husband was in pain again yesterday evening and last night, pain came on strong after eating and not only gave abdominal pain but also chest pain and breathlessness he was quite poorly so I said he needs to get more urgent about the whole situation, thankfully he has an appointment at the doctors this afternoon and will be pushing for more action/ results I have also said to get referred to a gastrointerologist as currently is being dealt with by a Urologist, I hope we get some news this week.

josi1971
Posts: 19
Joined: Fri Feb 06, 2015 2:38 pm

Re: Symptoms

Postby josi1971 » Wed Feb 25, 2015 3:38 pm

Hi All, today my husband called the hospital again and came up against a brick wall just put on hold and didnt manage to get to speak to anyone about his Ct scan results. After learning this I decided to take matters in to my own hands and rang the hospital and asked to speak to someone regarding making a complaint. Put through to a lady who deals with complaints and told her our story. She put me on hold and came back saying the reason we have not had any communications from anyone is because the consultant is on holiday and the results have been sent to him and awaiting his return, we have been given a date to see consultant on 17th March 2015 but obviously i said this not good enough as husband in pain on a daily basis and in particular every time he eats, the lady said the way we have been treated is not good enough and she suggested we contact the radiologists and ask that they send the report of the ct scan to my husbands gp so at least we can go and see him to get the results and talk about the next step into diagnosing what is wrong with him. My concern is that the results have been sat waiting for consultant to act and unfortunately because he not there that nothing has happened. We are hoping for good news tomorrow and that we are told ct scan completely normal, but we still have to get to the bottom of what is causing this abdominal pain that wont go away, I will post again once seen docs tomorrow.

Birchen
Posts: 77
Joined: Thu Sep 05, 2013 1:53 pm

Re: Symptoms

Postby Birchen » Wed Feb 25, 2015 5:15 pm

Good luck for tomorrow Josi. Really hope that the results are good but the wait is simply not good enough when your husband is in pain. Surely they could have emailed the details of the CT to your GP. You shouldn't have to complain to get anywhere as this only increases your worry. Lyn xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Symptoms

Postby Sueoliver » Wed Feb 25, 2015 7:39 pm

I hope you get good results tomorrow. You really shouldn't have had to wait this long! I also hope the pain is sorted out. Thinking of you. Sue x

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Symptoms

Postby Didge » Wed Feb 25, 2015 8:31 pm

And surely there must be someone else in his department! A registrar perhaps? Anyway, you need to get answers however they come so I hope you get some news tomorrow.

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Symptoms

Postby sandraW » Wed Feb 25, 2015 10:16 pm

I hope you get good results tomorrow and there is a simple remedy for your husbands pain, take care sandrax

josi1971
Posts: 19
Joined: Fri Feb 06, 2015 2:38 pm

Re: Symptoms

Postby josi1971 » Wed Feb 25, 2015 10:53 pm

Thank you all I will post update tomorrow x

josi1971
Posts: 19
Joined: Fri Feb 06, 2015 2:38 pm

Re: Symptoms

Postby josi1971 » Tue Sep 08, 2015 1:48 pm

Hello, all its been sometime since I posted, asking advice on symptoms as I was so desperately worried about my husbands symptoms, we have finally got to a stage where he has had a diagnosis and unfortunately it was bad news he has Prostate Cancer, he is only 43. I would like to thank everyone who gave such great support to me whilst I was searching for answers and support and think you all are amazing and brave people. I have joined the Prostate Uk Team where I will now be searching for all the help and advice I can get on dealing with his diagnosis, and the worry of how bad it is going to be as he has waited almost a year to get diagnosed. Thanks again and I wish you all well xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Symptoms

Postby Sueoliver » Tue Sep 08, 2015 8:51 pm

Thankyou for updating us. I hope your husband recovers from this and gets some good treatment. I am sure the prostate team will be supportive . I wish you and your husband well. Sue x