A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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Progress Report, Treatment #9

Postby washingtonmike » Mon Sep 16, 2013 10:02 pm

Greetings All:

I've just finished up treatment #4 on Gemcitabine/Tarceva, this after 5 treatments of Folfirinol/ox. Diagnosed May 24th.

CA19-9 levels now at 67 and continuing to drop from 6,830 on 6 June. WBC count at 2.2L, Platelets at 185, Neutrophils 0.8L.

I'm to start receiving Neupogen injections (weekly) tomorrow.

Appetite is good and eating regularly. Pain is minimal and usually one to two Vicodin daily controls it.

Energy level is a bit on the low side, especially after treatment, and I can't yet have a go-at-it all day long but I'm up and active for most of the day and evening now.

Experienced an upper-body rash a couple of weeks ago which is now clearing and the docs tell me that's a good indicator. So, here's an about-to-be 72 year-old fella with a face full of zits :P I wonder what this crazy disease is going to throw at me next 8)

Cheers, Mike

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Joined: Fri May 03, 2013 9:39 pm

Re: Progress Report, Treatment #9

Postby Bee » Mon Sep 16, 2013 10:16 pm

Mike, sounds like things are going well, excellent.
Who knows what is next, but whatever it is , keep on hitting it head on!!

Bee xx

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Joined: Sun Mar 24, 2013 8:15 am

Re: Progress Report, Treatment #9

Postby J_T » Mon Sep 16, 2013 11:35 pm

Yeah, what Bee said!

Excellent news Mike, keep on keeping on, you're doing great!!!

Julia x

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Re: Progress Report, Treatment #9

Postby Slewis7313 » Tue Sep 17, 2013 8:52 am

Thanks for the update Mike. Your contributions are always really positive and contain some really useful information / facts. This one is particularly good as things seem to be going relatively well for you at the moment. Good luck with the zits!

Take care


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Joined: Sun Jun 30, 2013 10:38 pm

Re: Progress Report, Treatment #9

Postby washingtonmike » Tue Sep 17, 2013 1:48 pm

Thanks all. I'm preparing for an out-of-town trip, leaving on Thursday, returning on Saturday, this for a convention. I may have to leave the room occasionally and rest a bit (the sessions tend to run long) but I'm really looking forward to this "grand excursion".

My best to all. Cheers, Mike

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Re: Progress Report, Treatment #9

Postby LindaH » Tue Sep 17, 2013 6:30 pm

72-year-old with zits....young at heart Mike. Good Luck with everything. Linda x

PCUK Nurse Jeni
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Re: Progress Report, Treatment #9

Postby PCUK Nurse Jeni » Thu Sep 19, 2013 12:05 pm

Hi Mike,

Good to hear from you. Great to hear that things are going well for you - and thanks for the positive postings about your treatment.

Yes, the rash is a common side effect of Tarceva (Erlotinib) - often an acne type rash, and yes, it is a good sign! It indicates a response to the drug. The rash can be treated though if it gets too bad, so make sure if it looks infected (especially around the hair follicle areas), or itches badly, that you let your oncologist know, and they can order some treatment for you.

Hope the convention went well.

Kind regards,


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Joined: Sun Jun 30, 2013 10:38 pm

Re: Progress Report, Treatment #9

Postby washingtonmike » Sun Sep 22, 2013 1:35 am

Hi Jeni: The convention went extremely well, no forced breaks or rest periods. Thankfully the sessions were over by about 4:00 p.m. so there was time to kick off one's shoes and relax a bit before the dinner hour. I must admit I did pretty well for an old guy :P Cheers, Mike