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Re: Having a whipple op

Posted: Fri Aug 31, 2012 11:48 pm
by laura
hi im a bit confused???? is daver and davie one and the same, cos ive just replied to Maxine whos the wife of one of them, whos had an op? any answers please, laura

Re: Having a whipple op

Posted: Sat Sep 01, 2012 11:50 pm
by DRAD3
Hi Laura
I had assumed they are one and the same? Keeping fingers crossed for them in any case!
Deb
x

Re: Having a whipple op

Posted: Mon Sep 03, 2012 11:27 am
by PCUK Nurse Jeni
Hi all,

No, Davie and Daver are two different people.

Jeni.

Re: Having a whipple op

Posted: Mon Sep 03, 2012 10:01 pm
by laura
thanks jeni, have just looked back at posts and located "davie". Thought i had lost it!! lol.
oh well deb, thats both of us, haha
good luck to them both anyway eh love laura xxx

Re: Having a whipple op

Posted: Wed Sep 12, 2012 5:21 pm
by Daver68
Hello all thanks for all the supportive messages they are appreciated had the whipples procedure 2 weeks ago today have been home one week now and am doing ok some good days some bad had problem with feeling nauseous and vomiting no appetite but on check up back at the [Name removed -moderator]( who I have to say the care I received was first class top to bottom all the way from the tea lady to the surgeon )on Monday prescribed metoclopromide and these have helped a lot still finding it hard to actually feel like eating anything though guess the body is readjusting and just needs time,off to sleep again now .
Thanks David

Re: Having a whipple op

Posted: Wed Sep 12, 2012 8:12 pm
by DRAD3
Wonderful to hear from you, David, and to hear your op went well. I do hope things settle down soon and you are feeling more like your old self. Glad to see you are getting lots of sleep - the best medicine!
Keep us posted.
Deb

Re: Having a whipple op

Posted: Wed Sep 12, 2012 10:59 pm
by laura
hi there david, so pleased to hear yourover a big hurdle, your days will vary, rest and sleep have got to be good, brian was in hospital for two weeks district nurses visiting for 6 weeks or so, so you to be out of hosp is brill.
brians appetite was non existent everything tasted awful and tainted with mettallic taste!! he did get on very well with the small bottles of various youghurt flavoured replacement meals, he thrived on them for quite a while,
he also took metoclorpromide or domperidone 2 tabs 4 times daily, never really then suffered with nausea, are you taking enough, i used them as prevention rather than cure ?
all the very best david, take it slowly mind love laura xxx

Re: Having a whipple op

Posted: Mon Sep 24, 2012 9:58 pm
by Daver68
Hi everyone nearly a month now since my whipples operation , histology report has came back and the specialist nurse has told us that it was duodenal cancer and not PC as previously thought not sure what this means as this seems to be such a rare cancer and information is very limited, seeing the oncologist on friday to discuss my case anyone with any info would be appreciated . Also feeling much better now nearly month down the line after the whipples op nausea has gone appetite returning getting out and about everyday without fail , drove the car the weekend i am relatively pain free and have been for two and a half weeks now no painkillers required , can eat pretty much what I like lots of cakes biscuits chocolate sweets to try and put some weight back on 8st 11lbs these days down from 10st pre op . On a positive note to anyone having the whipples my personal experience is that although a major procedure there is life after whipples and the quicker you get moving around after the op the better physio made me get out of bed and sit in chair the day after op and a positive attitude aids recovery .
Thanks David

Re: Having a whipple op

Posted: Mon Sep 24, 2012 10:14 pm
by laura
hello dave, wonderful news, so glad things have gone well for you and will continue to do so, take care love laura xxx

Re: Having a whipple op

Posted: Tue Sep 25, 2012 7:57 pm
by DRAD3
Hi Dave - how wonderful to hear how well you have been doing since the op and what hope you have given to others with the prospect of it to come. Do keep us posted about what next. No info to give you with regards to this new diagnosis, I'm afraid, but have my fingers crossed for you that the meeting with the oncologist goes well and that they can help you further. Keep us posted won't you? Keep looking after yourself.
Deb
x

Re: Having a whipple op

Posted: Sun Sep 30, 2012 9:45 pm
by Daver68
Hello saw the oncoligist on Friday and she has recommended 6 months of chemotherapy will let eveyone know how I get on . Take care all
David

Re: Having a whipple op

Posted: Sun Sep 30, 2012 10:41 pm
by laura
hi david, glad you have a plan of action, at least you have something to work towards, your message "sounded quiet" you ok? perhaps not what you expected! things will settle down, always someone on here to chat to, you know that, chin up and onwards eh?
love laura x

Re: Having a whipple op

Posted: Mon Oct 22, 2012 5:24 pm
by Daver68
Hello all been a while since I posted had my first cycle of 5 Fu chemotherapy last Tuesday and came home with the baby bottle for another 2 days before returning to have it disconnected no side effects as of yet keeping fingers crossed feeling nearly back to normal nowadays after the whipple on 29/08/2012 got another 11cycles to go and I will keep everyone up to date on how it goes ,off to Cyprus next week for half term for one week but finding it costly and difficult to get travel insurance tempted to just take a chance and go without any one with any experience of this problem would be helpful.
Thanks David

Re: Having a whipple op

Posted: Mon Oct 22, 2012 5:59 pm
by susikus
I am delighted to hear how it has all gone so far David, well done you! Not the same situation I realise but about three years ago my father was ill with widespread metastatic prostate cancer. He was a great traveller and wanted one last trip. So my husband and I took him on the Hurtigruten - the ships that sail up and down the Norwegian coastline. We tried very hard to get travel insurance for him, and even the specialist cancer insurance company would not insure him, so eventually we decided to go without any insurance. The Hurtigruten required us to sign a document in which we essentially agreed to pay all medical costs incurred. We went, had a wonderful holiday, incurred no costs at all, came home and less than three months later he died. I know that many would say 'do not go without insurance' and I cannot recommend that you do, but I did want to let you know that we have done it, and faced with the same situation, I would do it again! Do let us know how you get on and have a lovely time, Sue, xxx

Re: Having a whipple op

Posted: Mon Oct 22, 2012 7:26 pm
by DRAD3
I absolutely hate, in principle, all insurances and only have ones that are required by law. They prey on our insecurities and our deep seated fears of "what if" and make a great deal of money out of it in the process. No-one can tell you what to do, Dave - I would just say trust your instinct and don't let "what if's" stop you doing what you want to do - we all know first hand that life is too short. xx