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belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: Abraxane -our experiences so far

Postby belgrade » Thu Feb 26, 2015 3:19 pm

Dear Nikki,
It was a shock to read your post today and I am so sorry that Paul has lost his fight. I've followed your journey from the start and know how hard he fought this. My thoughts are with you and your girls.
Take care,

Hilary

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Abraxane -our experiences so far

Postby J_T » Thu Feb 26, 2015 5:43 pm

Nikki, so saddened to hear that Paul has succumbed to this awful disease.

as others have said you have been selfless if offering others support and encouragement since you started posting on the forum, you and Paul sound like special people and I know you will miss him greatly.

My sincere condolences.

Julia x

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Abraxane -our experiences so far

Postby Cathy » Thu Feb 26, 2015 8:10 pm

Dearest Nikki

I am so sorry tomhearbthat Paul has finally lost his fight. He did so well even though it sounds like he had some tough times to deal with.

You were one of the people who started posting on here around the time that I did (and a few others did) and so, even after my Jnathan died, I have been following your and Paul's story and looking out for your posts and always constantly amazed how you both coped , remained upbeat, and fought.

There will be sad times ahead but take comfort from the fact (as I am sure you will do) that you both did all you could and you clearly both adored each other. These are thoughts that helped me.

If ever you are headed towards London and fancy a coffee or something stronger (!!) and a chat the give me a shout

Take care.

Loads of love to you and the girls

Cathy xxx

wackywacky
Posts: 99
Joined: Thu May 01, 2014 10:25 am

Re: Abraxane -our experiences so far

Postby wackywacky » Thu Feb 26, 2015 10:17 pm

Nikki I am so so sorry to read this thinking of you and your girls take care love wacky x x x

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Abraxane -our experiences so far

Postby nikkis » Fri Feb 27, 2015 7:57 am

Thank you all, so, so much,
I read your posts out to my youngest daughter, it was so special to share them with her, and tell her a little bit of your stories,and some of you she was pleased to recall she has heard me mentioning before.

Funnily enough it was a lovely day yesterday. As many of you know Paul and I renewed our vows last year. I rung the vicar who performed the ceremony and she came straight over. We renewed our vows in a small,very old church by the beautiful woods were Paul loved to walk the dog. It was just the four of us. It is managed by the church conservation trust, and only 6 services a year can be held at it. So I was absolutely delighted to be told that we are allowed to have Paul's service there. We also had a visit from our district nurse, bearing flowers, who had heard about Paul. She had 15 visits on her list, but decided that coming to see me first was more important, how special was that?

I know the really hard times will be after the funeral, when everything returns to "normal", but at least we will have wonderful memories to treasure. Leila, I have asked Jeni to forward you on my details, that is very lovely of you, to want to send something. Cathy, we will have that drink sometime, and it will be a strong one!

Love to all,
Nikki

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Abraxane -our experiences so far

Postby jay » Fri Feb 27, 2015 8:46 am

Nikki I would like to send you something too if you don't mind sending your details to Jenni to pass on. Jem never went on the forum but he often asked how Paul was doing.Can't stop thinking of you all.
Hugs Nikki
Jayne
x

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Abraxane -our experiences so far

Postby nikkis » Fri Feb 27, 2015 10:18 am

Bless you Jayne, of course you can, I will let Jeni knowx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Abraxane -our experiences so far

Postby Slewis7313 » Sat Feb 28, 2015 8:51 am

Dear Nikki, I am so very sorry to hear that Paul has succumbed to this awful illness.... You and the family must be totally devestated. It only seems like yesterday that you were our pioniers for Abraxane with the hope that it brought to us all. Your family will no doubt be a great support to you through this difficult time and the special arrangements for Paul's service sound to be a fitting tribute to a special person.

Please take care of yourself and the family, especially over the next days.

Steve
X

Fifi

Re: Abraxane -our experiences so far

Postby Fifi » Sat Feb 28, 2015 9:31 am

Sounds like Paul's service will be very special and very beautiful.

How are you and your girls?

Leila xx

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Abraxane -our experiences so far

Postby nikkis » Sat Feb 28, 2015 10:31 am

Hi Leila,

The girls and I are doing ok. I guess it helps that we have had time to prepare for this, it doesn't mean we miss him any the less, but I remember when my Dad died suddenly of a heart attack, it was just so hard to take in. I have also spent so little time with the girls over the last 8 weeks, it is good to spend time with them, even if we are very sad,
Love,
Nikki

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Abraxane -our experiences so far

Postby sandraW » Sat Feb 28, 2015 12:16 pm

Nikki,
It sounds such a special place to have Paul's service, it will be beautiful I am sure.
It is obvious that you and Paul, are very special people too.
I too lost my Dad suddenly when I was only 17, he was then the centre of my world, as I am sure Paul was for your two girls, he has been gone now for over 50 years, but I still think of him often and always with a smile, so tell your girls that their Dad will be with them always, and be at their shoulder helping them make decisions in life. I still think, what would Dad do.
I lost my Mum 3 years ago to Old age at 96, so I understand what you mean when you said you had time to "prepare" for losing Paul, its such a strange position you don't want to loose them, but you don't want to see them in pain and distress either, you just want them to be at peace.
It is devastating to loose some one you loved so much and my heart breaks for what you are going through, and I also realise that it is something I will have to face too.
We will all be thinking of you over the next few days and sending our strength to you all, thank you for letting us know how you are doing, take care love sandrax xx

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: Abraxane -our experiences so far

Postby SusannaUK » Sat Feb 28, 2015 12:45 pm

Dear Nikki,

I've just read your post. I am so sorry to hear that Paul has passed away. I am crying now. It is such a shock. He was a great fighter and you were such a good support for him!
My sincere condolences to you and your family.
I know how you feel now, it is sad and the coming months will be hard but you've done everything you could and we sadly all knew that PC is cruel. I still can't believe that my husband is not here any more.
I wish you all the strength to go on and good memories will never fade.
All the best and I am thinking of you and the girls in this difficult time.
Love,
Susanna xxx

Bowie
Posts: 115
Joined: Sat May 03, 2014 10:35 pm

Re: Abraxane -our experiences so far

Postby Bowie » Sat Feb 28, 2015 2:32 pm

Dear Nikki, I am so very sorry to hear of your husband's passing. I haven't posted for a while, loads of bad stuff happening and I haven't felt able to, but have come onto the site from time to time and always look for your posts. You and others have managed to provide support to me and James through your advice and words even when things are going badly for you. You are such a special person. I am thinking of you and your girls and offer my sincere condolence. Fiona X

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Abraxane -our experiences so far

Postby Cathy » Sat Feb 28, 2015 6:29 pm

Hi Nikki

That does sound lovely and will be a special memory to cherish and will be a comfort for you I am sure in the days, weeks and months ahead.

I look forward to that strong drink! ;) Jeni and Dianne have my details if you would like them.

Much love

Cathy xxx

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Abraxane -our experiences so far

Postby jay » Tue Mar 03, 2015 7:28 am

Hope you are ok Nikki
love Jayne
xx