The forum have been set up for people affected by pancreatic cancer to offer and receive support. The aims of the forum are to:
• Provide practical and emotional support
• Share real life experiences with a group of people who understand and are going through similar experiences themselves
• Provide mutual support to other people using the forum
We have produced some community guidelines to ensure the forum is a friendly, welcoming and supportive space for people affected by pancreatic cancer. By signing up to be a part of this community, we expect that you will respect and follow these guidelines.
Please remember that the information contained in these discussion forums is shared in a supportive manner. It is not intended to constitute medical advice and should not be used to replace advice given by health professionals. You are strongly advised to consult a doctor or other health professional before taking action on information contained on these forums.
1) Be kind to each other
Many people using the forum are going through difficult times. A few kind words can go a long way. Please welcome new posters – it can be very nerve-wracking to post on the forum for the first time. Give each other the benefit of the doubt: it can be easy to misinterpret other people’s comments, especially when read or written in haste.
2) Celebrate difference and disagree respectfully
A wide range of people with different experiences use the forum. Differences and debate are welcome, but this is no place for personal attacks. Please make your points respectfully. Equally, be prepared for people to disagree with you and try not to take it as a personal attack when it is not meant that way.
Don’t post any content that treats anyone unfairly because of their sex, sexual orientation, race, colour, nationality, ethnic or national origin, religion or philosophical belief, disability, gender identity/reassignment, marital status, family circumstance or age; or anything that is threatening, obscene or in any way offensive. Please do not swear or use terms that people find offensive.
3) Keep yourself safe
These forums are public and your posts may appear in internet searches. Also please remember that anyone can view the forums without registering. Please be careful with your personal information. Don’t use your real full name (or email address) as your username and do not post your contact details on the forum (we will remove them). Think about your safety when arranging to meet people you have met on the forum.
Please do not share or post anyone else’s personal information.
For the protection and safety of children, this forum does not support members under the age of 18.
4) Keep it legal
Only post your own content, otherwise you could be infringing copyright. This could include poems, stories, photos and reports.
Please do not identify specific healthcare professionals (especially by name). Please do not 'name and shame' individuals or organisations. Publishing statements which damage others’ reputations could leave both the forum user who posted the statement, and Pancreatic Cancer UK, vulnerable to legal action under libel law.
5) Keep it useful and honest
Sharing experiences is at the heart of the forum, but please be careful not to give medical advice.
Conversations on the forum can be wide-ranging, but if you post something that is completely unrelated to the original topic, we may remove it or move it to a more appropriate area. We have a ‘general chat’ area where discussion of more light-hearted matters is welcomed.
Do not create multiple accounts. Do not pretend to be someone else.
This is a support forum, so please do not use it to try to sell things to other members.
6) Alternative therapies
Please remember that it is sometimes difficult to prove the efficacy of an alternative therapy. Keep in mind that the majority of them are not approved by the medical authorities (i.e. they are not registered drugs or treatments). Be honest and do not exaggerate too much the benefit of such therapies. If you have reliable references then we invite you to provide links to these sources of information.
How you can help
Stick to the community guidelines and give us feedback about how they’re working.
If someone posts something you feel violates our community guidelines or terms and conditions please report it by sending an email to firstname.lastname@example.org or use the ‘Report this post button’ which looks like this ! and appears at the top of each post.
Some people enjoy getting a reaction, and post nasty comments just to provoke a response. The best way to deal with this is to report it, then ignore it.We would also appreciate any feedback you’d like to share with us about our discussion forum. To do this, please complete our feedback survey: https://www.surveymonkey.co.uk/r/KY5GZYR. You can complete this at any time and your feedback will help us to ensure that our discussion forum is working in the best way it can and is meeting your needs.
How we will help
Our team of specialist nurses moderate the forum during the working week. Our aims when moderating are to keep the forum safe, legal and supportive.
We do not approve posts before they go live. This is why we need forum users to take responsibility for their own postings, and to report inappropriate posts.
When you contact us, you should expect a response within 1-3 days (it can be sooner). If you report a post, we will usually let you know what action we have taken.
We understand that people make mistakes. If you breach our guidelines, you will usually get a warning. If you continue to breach the guidelines, we will ban you permanently from the site. We issue permanent bans only as a last resort to protect our community.
See Topic ‘How we moderate’ for the action we may take.
We aim to be consistent in applying our guidelines. If you have any comments about how we moderate, please send an email to email@example.com.
Some tips on how to post on this discussion board, and terms and conditions
1 post • Page 1 of 1